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TracyB

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Everything posted by TracyB

  1. TracyB
    thanks - I thought of chili but seemed heavy for lunch! I ended up looking up Campbell's broth online and it listed it as gluten free but now I'm wondering if it was U.S. or Canada? I'll check again.. TracyB
  2. TracyB
    Hi everyone, I'm having my neighbour over for lunch tomorrow and want to be sure everything is gluten-free. I'm making cornmeal muffins as that's what she made when I was there last time. She made red lentil soup which was good too - but thought I'd try to make something different - any ideas? TracyB
  3. TracyB
    Hi Coldnight and Gemini, Good luck finding the answers you need Coldnight! It's difficult being told you have IBS esp. if you feel it is something more. I was diagnosed with IBS at age 3. Something unheard of nowadays. You comment Gemini about IBS basically being a cop-out instead of looking to find intolerances or allergies is probably true. I...
  4. TracyB
    That's absolutely correct - and after the biopsy, I intend to go that route - at least for a road test and see if there are marked improvements! TracyB
  5. TracyB
    Hi Julie, I don't have my blood results with me, but I believe they did a total IGA on mine. It just said I was IGA sufficient - I don't think they gave me an actual reading. You do need a bit of interpretation on yours - call the lab and perhaps they will have somebody there to help you. I am hoping to go on to have a biopsy - even if it's just to...
  6. TracyB
    Hi, I had asked you a question on my last post but it kind of got lost in the shuffle! I was just curious as to what your blood results actually were? The reason I ask is that you said you'd had symptoms since 17 and were essentially misdiagnosed all these years. I have been curious about blood results - and thought that because mine was fine (2....
  7. TracyB
    Hi again - well, your story sounds much like mine. I'm 46 and was diagnosed with IBS after 1 week in hospital and pains in my gut that dropped me to the ground. My Dr. says today that would never have been the diagnosis - and they would look further today. It really could just be IBS though of course. But I'd like to know for sure. So happy to hear...
  8. TracyB

    Lost

    TracyB commented on haley12mom's blog entry in haley12mom's Blog

    I'd encourage you to check out the pre-diagnosis forum. They may be able to help you. Some feel Enterolab is not an exacting science - others swear by it. If she has celiac and is still sick, she could still be getting gluten unknowingly - you may need to educate yourself on cross-contamination and gluten in products that you don't realize are...
  9. TracyB
    Hi Laura - thanks for the reply. Can I ask - do you know what the blood results were - I think the TTG is the one that's 0.0-20.0 scale and is generally considered a sensitive test. What prompted a biopsy in your case, instead of the usual blood test first? And I wondered how long you may have had signs of celiac before the biopsy? I saw your signature...
  10. TracyB
    Here's the results - I think everything that was needed was run...? IgA T. Transglutaminase - Celiac disease is negative and the patient is IgA sufficient. This screen is only accurate if the patient receives a gluten containing diet. False negative screens rarely occur. If you still suspect celiac disease, the patient should be referred to a gastroenterologist...
  11. TracyB
    I notice in your signature that you have been gluten free since Aug/07. If you were gluten free at the time of blood testing at Kogan CC that would skew your test results I think? You need to be eating gluten for a few months prior to testing for the blood results to be considered accurate. TracyB
  12. TracyB
    If it were me I would have myself and my husband tested first - because if one of you has celiac than it is even more likely your son could have it. You can then decide from there what to do about diagnosis for your son. There is a higher likelihood of somebody with celiac disease having a parent with celiac so get yourself and your husband tested (blood...
  13. TracyB
    I have asked my doctor to send me for a biopsy regardless of the blood results - I just want to put this all to rest. She agreed but there is no telling how long an appt. will take. There is somebody on this board in the same city in Canada as I am and even with a positive blood result it was 5 mos. before she was able to get in with a gastro. The likelihood...
  14. TracyB
    Just curious - you said your bloodwork was negative - do you mind me asking what range you were in - I think the tTg (TtG?) range is 0.0 - 20.0. My bloodwork was negative too but I'd like to have a biopsy to know for sure. It will likely be a very long time before that happens since my bloodwork is negative -but my symptoms have been lifelong, so who knows...
  15. TracyB
  16. TracyB
    Hi Shay - yes I do have most of the symptoms with regards to the Ferritin (this is iron right??). If the TSH range (new) is .3 - 3.0 wouldn't that then put me in a better picture? - I'd kind of be in the middle then. No - she didn't do the T3 or T4 - wish she had. I may ask her about that - if the range she's looking at is 6.0 than it seems that mine is...
  17. TracyB
    Sorry I can't help with your Enterolab results (although I think it was good that the doctor is open and did suggest them). However, I just wanted to comment on the gluten free diet. If you are celiac or gluten intolerant the likelihood is that you will gain weight once you are rid of something that is irritating to your system. Also, I just yesterday...
  18. TracyB
    Hi all, I've been popping in and out for the past couple weeks - flirting with the idea that perhaps my diagnosed IBS (since 3 yrs. old) is celiac. Here are the blood test results - could somebody interpret? I think it shows negative but will still be getting the biopsy to put this all to rest for good. IgA T. Transglutaminase - Celiac disease...
  19. TracyB
    Hi - I saw something (I think last night) on the tv show called The Doctors. They were demonstrating the pill camera that a patient can swallow - anyway, there was a woman on that had been very ill for 7 years - down to 70 lbs. at her worst - she was finally diagnosed with Crohns Disease - but from the pictures (showed a healthy intestine vs her intestine...
  20. TracyB
    I was wondering about the gluten challenge - I have no idea what "normal" is as far as how I ought to feel. I was thinking that after testing, regardless of the results I think I'd like to try gluten free and see how I feel. If the change is dramatic, I think I'd have my answer. But I was wondering how pre-diagnosis you all felt? I mean, did you get...
  21. TracyB
    I posted info. about that test last week -you'll have to let me know how it goes. Are you in Canada? I know that it said that it couldn't be shipped to the U.S. - hopefully that has changed... TracyB
  22. TracyB
    A question for you Jennifer - just curious really...When celiac is silent, how is it that people find out they have it? What prompted tests to check for celiac? Family history perhaps?? Thanks! TracyB
  23. TracyB
    Love your warrior quote Mtndog - I copied and pasted it so I can show my son -it is so him! TracyB
  24. TracyB
    The screen will be the IgA-TTG. The doctor should have put Celiac Screen rather than Endomysial AB which is the old name for it. That's a relief - the document I have from the exec. director of Canadian Celiac Assoc. says that to screen properly it has to be the IgA-TTG OR IgA-EMA. The one the lab here does is the TTG. Chantalle
  25. TracyB
    Dang it! So the EMA and TTG and the Total was missed then - but it's not even on the lab requisition. Maybe I should call the lab services and ask if they even test for those here. Chantalle
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