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NYCCeliacMom

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Everything posted by NYCCeliacMom

  1. NYCCeliacMom
    I don't know about drinks but another area to be careful about is the bathroom. My husband and I have similar toothbrushes and we were sharing a rack. He is an enthusiastic cereal and wheat bran eater. It took me a while to catch on that this was a problem. I advise being careful and separate toothbrushes if you are living with wheat-eaters. A nutritionist...
  2. NYCCeliacMom
    My daughter's GI prescribed Creon for her and they did seem to help. She took them for about 2 months about 3 months after her diagnosis. She was having a lot of reflux at the time and it took a while to get everything under control. I had the impression from the dr that taking digestive enzymes is a short term thing for celiacs, and that they can be helpful...
  3. NYCCeliacMom
    There is a new restaurant in Portsmouth run by Traci Anello. The cafe is entirely gluten-free. She used to have a little bakery in Wells ME and opened the one in Portsmouth very recently. This is the website: Open Original Shared Link I haven't been there personally since I live in NYC but the bakery in Wells was a little piece of heaven, and I am sure the...
  4. NYCCeliacMom
    My daughter's GI suggested Fibersure, which I got at the drugstore. It is made from inulin which is a vegetable source of fiber and gluten free. It is oderless, tasteless, etc. and you can stir into water or any other food you are eating. I put it in baked goods along with a little ground flax seed. You can eat whole grains that are gluten free but they require...
  5. NYCCeliacMom
    Ginnybean, the lack of compassion in your family just made me cry. I haven't been on the board much and came on because my daughter went on a long trek to a bakery that makes gluten-free treats along with ones made with spelt. I was up in for hours last night with the consequences--have to call them and try to figure out what happened. So I felt a bit sorry...
  6. NYCCeliacMom
    Thanks, everyone. This forum has been just great for information...I am still floundering, but can see I will get a handle on it. Laura
  7. NYCCeliacMom
    I am just starting to try to bake non-gluten. When a recipe calls for egg replacer, I think they mean for you to add it dry, not mix it up with water as it says on the box. I just wanted to verify this. Also, if you are using agar agar instead of unflavored gelatin, do you just use it dry out of the package? I have looked and looked for the sweet rice flour...
  8. NYCCeliacMom

    ARCHIVED Dietician In Nyc?

    NYCCeliacMom replied to givenupgluten's topic in Doctors

    I wanted to post a correction. Oxford will pay for the nutritionist to see my daughter at the pediatric Celiac Center, but will not pay for me to see a nutritionist while a patient of a doctor at the adult Celiac Center. The fee is $200.
  9. NYCCeliacMom
    I have a bag of both but have only used Bob's so far. Bob's lists it's ingredients as Garbanzo beans, fava beans, and Authentic foods lists its as Garbanzo flour, fava flour. Chances are they are very similar and can be substituted for each other. I am new to gluten-free baking, but have read that it is important to measure carefully. We made baked pakoras...
  10. NYCCeliacMom
    The rice pudding was a big success. My puddings are usually thrown together and I hope for the best. This one was leftover white rice, a cup of light coconut milk, pinch salt, two beaten eggs, and some brown sugar. 350' for 40 minutes or until set. The rice in the finished pudding seemed softer than with the cow's milk, but it might be that since it got eaten...
  11. NYCCeliacMom
    Well, I am encouraged to charge ahead, then. Will let you know the results...
  12. NYCCeliacMom
    My 16 year old loved rice pudding and I would like to make her a dairy free one. I was thinking that coconut milk (we have some light coconut milk leftover) might work. She will drink a little rice milk but so far doesn't like any of the other alternative milks. Thanks.
  13. NYCCeliacMom
    My 16 year old is having a very hard time making the transition to gluten-free. I was diagnosed myself a week ago, and she was diagnosed about two weeks before Thanksgiving. She is clearly still very lactose intolerant (she is having the breath test early in January). I have tried having her take lactaid but she doesn't do it enough to make it meaningful...
  14. NYCCeliacMom
    My 16 year old daughter was diagnosed in mid-November. We are have a lot of trouble getting her comfortable, and now I think the lactose is the problem. She went off to school furious today...to be denied dairy in addition is very hard for her. I tried having her take various lactaid products but they don't seem to help. Her dr. wants her to take a lactose...
  15. NYCCeliacMom
    Thanks for all the replies. We are on a gluten-free (despite mishaps) now at home, and I have an appointment for my daughter with the Columbia Center nutritionist at the end of January. I am going to get my records from the ignorant GI and take them to another doctor. I am not sure about pursuing it further (a bit overwhelmned right now) but will make sure...
  16. NYCCeliacMom
    My daughter was diagnosed in November by a pediatric GI. I saw a GI three years ago b/c I was anemic and had various digestive problems referred t as IBS by my internist. The GI did a conoscopy and an endoscopy. I had very positive bloodwork for celiac done a few weeks ago. At the consultation before the most recent endoscopy was sceduled, the doctor told...
  17. NYCCeliacMom
    I am 52. My 16 year old daughter was recently diagnosed via blood test and biopsy. My blood test was high postitive. My endoscopy is scheduled for the end of the week. My issue is my doctor. I saw him 3 years ago for colonoscopy and endoscopy because I was anemic and and gastro symptoms, including reflux. I should add that I am about 30 pounds overweight...
  18. NYCCeliacMom

    ARCHIVED Dietician In Nyc?

    NYCCeliacMom replied to givenupgluten's topic in Doctors

    I have an appointment at Columbia for my teenage daughter. I was told by the dietician that I could see her and have the appt covered by insurance if I brought my daughter to see one of the doctors there first. I have to bring all her diagnositic results with me. We have Oxford insurance, and they have a list of dieticians you can see, as well. The appointments...
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