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DreamWalker

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  1. I'm sorry I never followed up on this. It's happened two other times that I remember since posting. Um... I mentioned it to the resident during my last GI appointment ... So far no one seems to think it's much. In all reality, I wouldn't be surprised if it was nothing more than exhaustion. Although, it might be high blood sugar. I know I fall asleep on my...
  2. So, this is really weird. Before going gluten-free, I had several friends think I had narcolepsy as I'd frequently fall asleep without warning. It's been over a year since the gluten-free diet and this issue virtually disappeared. On Saturday, I ate a new brand of rice cereal (which I highly suspect of containing gluten) and fell asleep at my computer....
  3. I used to adore kombucha yet I can't drink it anymore as it causes a lot of sharp, burning pain. The only explanation I can think of is that the tiny amounts of alcohol from fermentation set my pancreas off. Then again, pedialyte or even water can anger it. My guts definitely miss kombucha but it just isn't worth the pain (or price). Anyone else with this...
  4. I've had two pre-gluten free eras. The first one I don't remember well yet I was 65lbs and around 5ft. The second time I was in the mid-to-high eighties at 5ft 2in. (I think. The weight loss disturbed me so I quit stepping on the scale.) And the most bizarre thing about it was my appetite was absurd. I would eat entire jars of nut butter in one sitting...
  5. I bought a box of this last night and after eating a few bowls, I fell asleep on my floor. Anyhow, thirteen hours later I woke up and was slightly confused as to why it was nine a.m. Also, my fingers are pretty swollen. Weird. My usual reaction to gluten includes mouth sores, diarrhea, falling asleep (even if I am in the middle of a conversation...
  6. I definitely had the brain fog issue. Also, look into your Vitamin B levels. Skye - have you looked into other intolerances in addition to gluten as well? Particularly casein/milk protein? Your post reminds me of a friend of mine with IBS, fibro, and idiopathic seizures that are not controlled with anti-epileptics.
  7. Chronic Pancreatitis. At least I have my answer. I look like a skeleton and I've pretty much been living on my floor this entire time yet at least it's no longer a mystery. . . and I don't feel like a loony hypochondriac. Thank you for the link Generic. Did you ever managed to try the pancreatic enzymes? CP in its more advanced stages is difficult...
  8. Are you sure your drink wasn't spiked? The way you described the feeling as though alcohol stayed in your system parallels a description of a GHB-laced drink. Over two years ago (well before I was gluten-free), I had 1.5 glasses of wine & I remember nothing of that night or well into the following day. I was sitting on the couch watching Malcom &...
  9. I'm unsure what the GAPS diet is as well. What supplements are you taking exactly? As I'm sure you're well aware, celiacs have issues with absorption. Until you've fully healed, you mightn't be capable of absorbing tablets. I know I'm repeating what MommaGoose said, but it sounds like you need to head back to your doctor to check for deficiencies. You may...
  10. Heh. Yeah.... I ramble a lot. It's difficult for me to follow a full train of thought. I think it's the sleep deprivation (pain) coupled with anemia. My body went haywire when they removed my gallbladder 3+ months ago. Anyhow perhaps a list will be a bit more organized: - I don't eat dairy or soy. - All the medications are gluten-free. I called...
  11. Anyway, I suppose the title explains the gist of my topic. I've been gluten free since the beginning of Oct '08 and all my other vitamin deficiencies have cleared. Actually, my B12 came back too high last time and my calcium & vit D are peachy. However, my ferritin & RBC keep dropping (at least it explains the thigh bruises that will not leave) &...
  12. Listen to Momma Goose. I had the exact same issues. When I discovered my B12 was low, I began supplementing with sublingual Vit B12 3000 mcg 2x per day & found myself able to walk straight(er) lines & hold conversations. Although, my memory is still in the tank. Months later, I began developing the same issues then randomly discovered I was anemic...
  13. I know this sounds a bit extreme (yet your attacks seem to warrant great measures) but have you tried keeping a very detailed journal of what you come into contact with on a daily basis? There does seem to be a connection between the bathroom & the attacks & chemical compounds are sneaky additives not only in food but everything from cleaning supplies...
  14. Generic, I'm so sorry. Your story .... I don't understand what's wrong with the medical community. That is one of the most horrendous things I've heard. It really is. I can't believe a stone was lodged for four months and no one believed you. (I mean, I believe you I'm just ... speechless... at how cold doctors can be.) Lisa - I've heard of exactly...
  15. It was sort of the opposite after going gluten-free with me. Before, quite a few meds seemed pointless which I mentioned to a doctor once who... didn't believe me. So, I dropped it. Anyhow, are you taking an extended release form of a med? The molecule is attached to a polymer which your body has to digest through before receiving the intended medication...
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