FranDaMan
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by FranDaMan
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Since Dapsone does work so well on DH I guess it is an inevitable evil. My concern is long term usage and effects. I know some of you have been on it for long stretches with presumably little or no ill effects. Others have had anemia and other health issues from it. I'm currently on 100mg and will presumedly be on that dose for another 1 1/2 months. I don...
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I assume since you're from RahChaCha that you know of or are involved with these fine folks: Open Original Shared Link I'm new to all of this but they have been very helpful and I'm sure if you asked them they may have information that could help. Besides, the gluten-free goodies after the meeting are worth the price of admission!
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I won't pretend to be a doctor or even too knowledgeable in this area as I was diagnosed with DH just last month. I do know I'm on 100mg per day and the results have been very good. On the other hand I did have to request from my doctor a blood test due to the side effects. No sense getting something worse if a change in diet will fill the bill. Welcome...
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ARCHIVED Fllod Resistant Rice?
FranDaMan posted a topic in Gluten-Free Foods, Products, Shopping & Medications
I read this: Open Original Shared Link and my initial thought was that this is a good thing and very benign. Then I realized that once again they are messing with the gene structure of an innocent and innocuous food staple for most of us. I'm not an anti-science guy by any means but it seems that we never know what these changes mean to humans for several... -
I do the bulk of the cooking anyway and there never were too many dishes that I prepared with any kind of flour. The odd stir fry things I'd use corn starch anyway. I do think the baking sheets are history though, once my wife gets through the frozen cordon bleu and such. They get old real fast anyway (the sheets that is). Wooden spoons and toaster are on...
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ARCHIVED Maltodextrin
FranDaMan replied to mimommy's topic in Gluten-Free Foods, Products, Shopping & Medications
I'm still new to this myself and any time I see "malt" I just panic! I'm going to assume going forward that maltodextrin is safe for now. But the question arises with all of the recent food issues from Chinese supplements, melamine and such will it be safe in the future? If it becomes imported is there an obligation to name the source or will it be just good... -
Smoking Wrap?
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Nice site! I'll definitely put it to use in the next few days and let everyone know how they turned out!
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Thanks. I see people saying to ditch the teflon still. I may be able to swap them out down the road when we accomplish gluten-free instead of GL.
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ARCHIVED Pierogie Casserole
FranDaMan replied to Fiddle-Faddle's topic in Gluten-Free Recipes & Cooking Tips
What style of "simply potatoes" do you use? Sounds yummy BTW! -
My wife and I were in Germany this past fall (BEFORE I got the DH and went gluten-free!) and happened upon a vendor in the shadow of Neuschwanstein castle selling what we later learned to be quark balls. Quark is a kind of cheese. It reminds me of yogurt actually. Anyway, they made these deep fried dough balls with the cheese in the mixture. If they're cooked...
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ARCHIVED Interesting Article I Found
FranDaMan replied to Cath4k's topic in Coping with Celiac Disease
The original link is quite old but I poked around and did indeed find thearticle on page 10 here: Open Original Shared Link -
I broke out on my elbows, buttocks and knees in mid-December. Searching the web I concluded DH and was subsequently confirmed by skin biopsy. I'm currently on Dapsone and the rash is well in check. I'd love to say I'm totally gluten free but I'm more likely gluten-lite as another poster refers to. I haven't consciously had any gluten since the diagnosis but...
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Well! I thank you all for your replies. I'm in the Rochester, NY area (the home of Wegmans) so I'll poke about in their beer section. There is also Beers of the World. I'm hoping to get there this week and poke about a bit. I've been on the Dapsone a few weeks and the rash is nearly gone so I'm a bit more pleasant to those around me than I was just prior...
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Thanks to all! I have the Redbridge but haven't yet tasted it. I guess I'll have to try it soon. Red wine sounds good and I live near the Finger Lakes in NY and they are well known for some great wines so maybe a tour is in my future. I was especially concerned with the positive biopsy on the DH as to what it actually meant. Assuming it means I have "it...
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I'm new to all of this so a tiny bit of background first...and soooo many questions. I broke out in the classic rash in mid-December (both elbows, both "sweet cheeks" and both knees). Thanks to the web I figured out the WHAT of what did I have and did go to my doc mostly for the HOW. As in HOW do I stop it? While there he took his pound of flesh and a...