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CMG

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CMG

  1. Thanks for the input - we have 4 days, so I plan to try them all!
  2. I have a similar story, too, although my daughter did have the celiac blood tests done before going gluten free. They were negative. She had dropped from 75th percentile on the growth charts at birth to 3rd percentile at her 3rd birthday. It wasn't until she was 4 1/2 that my sister suggested the gluten free diet. She was introverted, clingy, irritable...
  3. I will be spending a few days in Manhattan and am looking for kid-friendly gluten free options near our hotel, which is on W. 63rd. I know there are plenty of options throughout the city, but specifically need something for when we arrive w/ 2 tired children (ages 4 and 6) right around dinner time. Thanks!
  4. The following is a link to the recipe for my favorite gluten free bread from Gluten Free Girl. (I hope the link copies, I'm not very good at this!) It's also a favorite of the non-gluten-free members of my family -- they start eating it as soon as it comes out of the oven! Open Original Shared Link I have made a lot of gluten free bread from mixes...
  5. Thanks so much for the post on The Gluten Doctors! I live only about 20 minutes away from their practice and didn't know about it. I just made an appointment for myself so maybe I can get some validation on my self-diagnosis. I'll probably take my 6-year-old daughter in, too!
  6. I have read/heard this with respect to both gliadin and casein (milk protein). I have not read scientific research, but first heard about the theory and studies from a developmental psychologist who evaluated my daughter for ADHD. Some doctors believe that this opiate effect is the reason so many with autism, aspergers and adhd respond positively to the...
  7. I agree with mushroom's comments, and also would recommend an alternative medicine doctor if you have access. I went to an alternative doctor 14 years ago, who diagnosed me with yeast syndrome. He put me on heavy duty anti-fungal meds and a yeast-free diet (which, as it turns out, was nearly gluten free). It was the healthiest time of my life. And also...
  8. I was thin to begin with; not unhealthy but within range for my height. I gained about 10 pounds within the first 2 months gluten free. I assume, in part, because my body is absorbing nutrition better now. But also, I think a lot of gluten free baked goods contain more fat and less fiber than their gluten counterparts. Since I figured that out, I'm more...
  9. Bell & Evans makes gluten free chicken fingers, which my girls both love. Try rice noodles / rice pasta instead of standard pasta. If he likes the ramen packets, try Thai Kitchen rice noodle bowls instead. Also gluten free mac and cheese - my girls favorite is the DeBoles brand. If there is a Trader Joes near you, the Trader Joes brand gluten-free...
  10. I have been brining food to birthday parties for my daughter since she was a year old - first because of dairy allergy, now gluten, too. I have never checked with the party locations in advance. If anyone asks, I just tell them my daughter is allergic to dairy and wheat and therefore can't eat standard pizza. I have been buying frozen gluten free pizza...
  11. I read recently about companies using a salt-water solution to "plump" meat for packaging. It looks like there's no harm in it other than that you are paying a price per pound for meat when some of that weight actually is salt water.
  12. Have you asked your doctor's office to put you on a waiting list for cancellations? They might end up getting you in sooner and then you won't have to worry about it for so long. I got lucky - when I went in to see my GI, they had had a cancellation of an endoscopy for the next day, so I got right in. (Not so lucky was that my biopsy was negative after...
  13. Cooking quinoa is very similar to cooking rice. You should rinse it first, or it can be bitter. Then just simmer in either water or broth for about 15 minutes. Add any seasonings you like and you have a great side dish.
  14. I had the same issue. I gained 10 pounds in my first 2 months gluten free. I'm now realizing that gluten free baked goods are higher in fat and lower in fiber that their gluten counterparts. I second the soup suggestion. There are lots of soups that are packed with vegetables and I always add beans for protein and fiber, even if the recipe doesn't...
  15. I had the same questions, and my answer, too, is 100% gluten free. I put my daughter on the gluten-free diet for intestinal symptoms (she was already CF because of milk sensitivity). Her physical symptoms improved quickly, but I also was stunned to see a significant improvement in her behavior. We were just beginning down the road of ADHD evaluation...
  16. My daughter had the same issue when we put her on a gluten free diet. We had concerns about ADHD, but put her on gluten-free diet for intestinal issues. Intestinal problems resolved fairly quickly; but her behavior got worse for several days. I would say that by about day 5 behavior was significantly better.
  17. You might refer her to the National Institutes of Health Celiac Awareness Campaign. www.nih.gov, search celiac. It provides a link to educational materials. I also would recommend the book "Celiac Disease: A Hidden Epidemic" by Peter Green. Finally, I would agree with the others who recommend that you take your kids to the doctor yourself. I don't know...
  18. When I started gluten free, it was for my daughter, who was 4 1/2 at the time. She ate peanut butter and jelly sandwiches every day. So, I was on a mission for a good gluten free bread. I've lost count of how many mixes and recipes I've tried. The best I have found is "gluten free sandwich bread" from www.glutenfreegirl.blogspot.com. My husband, who...
  19. Your questions sound like mine just a few months ago. I had been gluten-lite for a long time -- just knew that I felt better on low carb diet and that I did better with rice than with pasta. This past December, my allergist ordered the celiac plus panel for me, which includes the genetic test. The celiac panel, of course, was negative (because I had...
  20. I think the "brain fog" is a relatively common symptom, and like Riceguy said, could be gluten withdrawal. I had it throughout my gluten challenge and for about a week after I went gluten free. It's now my first tell-tale sign when I have gluten by mistake. Good luck!
  21. You won't necessarily get a positive diagnosis after a gluten challenge. I tried it a couple of months ago and was had worse symptoms during the challenge than I ever did before having gone gluten free. I've read quite a few posts of people who have had negative tests after gluten challenges, but still know that they respond well to the gluten free diet...
  22. My 6 year old daughter and I each have a single copy of the DQ2 gene. According to her pediatrician and my GI doc, that single copy of DQ2 increases your chance of developing celiac to 10 times that of the general population. Both my daughter and I have responded remarkably to the gluten free diet, although both of us had negative blood results and...
  23. I was 43. First figured out that I did better on low-carb diet back when I was 30. At that point I had had many symptoms for 10 - 15 years. So, somewhere around 25 years of symptoms before figuring out that gluten is the culprit - including migraines, brain fog, vertigo, neuropathy, rheumatoid arthritis, possible sjorgrens syndrome, reflux and all the...
  24. I was diagnosed with yeast syndrome 13 years ago. I figured it out myself based on Dr. Crook's book "The Yeast Connection" and made an appointment with one of the doctors listed in the appendix of the book. He diagnosed me by looking at a drop of my blood under a microscope and found lots of yeast in the blood drop. apparently, there shouldn't be yeast...
  25. I have a similar question. I was gluten-lite from August 2007; positive genetic test December 2008; gluten challenge january/february 2009; followed by negative biopsy. During my gluten challenge I broke out in what I thought was some weird kind of acne around my hairline, on my neck and a bit on my scalp. It just kept getting worse and tremendously...
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