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CMG

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CMG

  1. CMG
    I had genetic testing done for the same reason as lizard00. My allergist suggested the test after I told her how I react to wheat/gluten. I am DQ2 positive, went to a GI doc with this information, but he won't diagnose base on genetics and symptoms. I did a gluten challenge for a little over a month, and my biopsy was negative. So, I still don't have...
  2. CMG
    I've read that it can take up to a year gluten free for significant growth to be apparent. I noticed it after about 18 months - my daughter went from 3rd percentile at 4 1/2 to 20th percentile as we approach her 6th birthday.
  3. CMG
    I did a gluten challenge - 4 servings a day for a month after a year gluten-lite. My biopsy was negative (no blood work - I don't know why). But the severity of symptoms, along with DQ2 gene, left me with no doubt that I won't eat gluten again. 2 months off gluten is enough to affect your test results. I think you would have to be back on a full gluten...
  4. CMG
    I had chronic diarrhea, urgent trips to the bathroom; bloating, gassy and reflux every time I ate things like pasta and pizza. It all improved within days of going gluten free - which I did initially to help my then-4-year-old adjust to a gluten free diet. I figured if we were in it together it would be easier for her. So that's why I never got tested...
  5. CMG
    My daughter dropped from 75th percentile to 3rd in about 18 months (1 1/2 to 3 years); tummy aches, aches and pains, hyperactivity, irritable, pale skin, dark circles under her eyes. We had her tested for celiac at 4 1/2 when she started losing ability to control her BMs. Blood tests were negative and I did not request and endoscopy. I put her on a gluten...
  6. CMG
    My girls both loved mini rice cakes. I think MiDel makes gluten free arrowroot teething cookies. As for the messier and more nutritious stuff, my girls both loved mashed or cubed avocado, and one liked cubes of tofu (the other is allergic to soy). Good luck!
  7. CMG
    Like you, the greatest benefit for me is that doing the challenge left no doubt in my mind that I cannot have gluten. My husband was asking every day when it would be over so I could get back to my gluten free diet and really wanted me to give up the challenge and skip the biopsy because I was so sick. The rest of my family gets it that I have an issue...
  8. CMG
    Just today, I discussed w/ my GI doc testing my 5 year old daughter, who is mostly gluten free. Basically, we are gluten free at home, and I let her eat any special treats at birthday parties and in her classroom. My doctor seems to think that this could be enough gluten to test a symptomatic child. He specified that we should use Prometheus labs for the...
  9. CMG
    Hi all, I wanted to give an update on my gluten challenge. As you can see from the title, my biopsy was negative. I had been largely gluten free for close to a year - cheated once in a while, like when my sister baked cookies. I learned in December that I have the DQ2 gene and decided to do a gluten challenge for testing. After about a month of ...
  10. CMG
    I'm with everyone else in praise of Disney. I went last year with my 2 children - one gluten-free and dairy-free, the other dairy-free and soy-free. We notified guest relations of the restrictions and it was noted on every reservation we made. Whenever we checked in for a reservation, they immediately brought out a chef or a manager to walk us through...
  11. CMG
    Sounds very much like my 5 year old daughter. Her celiac panel was negative a year and a half ago, and we opted not to do the biopsy because she was so young. We kept her on a strictly gluten free diet for about a year and she thrived. I then decided that, since the celiac panel was negative, I would let her "cheat" occasionally - like at birthday parties...
  12. CMG
    He didn't pick it up before because I had never been to him before. I haven't been to a GI doc in about 15 years. Back then I was told that all my symptoms were stress related. Then I just assumed it was gallbladder related since everyone in my family seems to have their gallbladders removed. I finally started pursuing this last year when my daughter...
  13. CMG
    Have you had genetic testing done? I was gluten-free/ gluten-lite for over a year and had symptoms every time I did eat gluten; so, I had genetic testing done and found that I have HLA-DQ2, which puts me at high risk of celiac. I did decide to do the gluten challenge and endoscopy for a couple of reasons. First, I thought it would help me determine how...
  14. CMG
    Thank you for the information Meline. I do have a positive HLA test, so I think gluten challenge and testing is the right next step. I have an appointment with a GI doc next week.
  15. CMG
    Hi. Like many who post in this area, I'm new here. I have been "gluten-light", as I like to call it, for over a year. I know I feel better when I exclude gluten from my diet and we are gluten free at home. I just don't worry so much about what I eat outside of our house, so once a week or so I'll end up having pizza or pasta. I recently had a positive...
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