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mimommy

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Everything posted by mimommy

  1. Hello Clarkston! So nice to hear from you. I have been looking for a place where my 8 year old daughter can talk to and interact with other children with celiac. I did find the tccsg (tricounty celiac support group), but their meetings take place at a church at 11 Mile & Farmington Rd (I am near Lakeside mall.) Their web is tccsg.com. I am going...
  2. Thank you, thank you, thank you! I am so grateful to have found this board. I have already learned so much from you. I hope that my child's experience will help others, as well.
  3. February, 2008: My 8 yr. old daughter attended a b-day party and developed flu-like symptoms. 2wks. later: Still vomiting, cramping, diarrea, not eating, no fever. Took her to ped. (saw the partner). Diagnosis--Gastroenteritis 10-14 days later: Still vomiting and having severe stomach pain, suffering through the night and sitting on commode for hours...
  4. Hello all! I am from the n. eastern suburbs of Detroit and am looking for a support group in this area. I know the tricounty group has a meeting in Farmington, but it is quite a hike from here. Is there anyone here from this area? Would you be interested in a group near R.O./Troy Beaumont or Henry Ford Macomb? I am seeking peer support for my young child...
  5. I totally agree and am shocked and appalled at the crass insensitivity by her doctors for even mentioning it in front of her--the last thing a sick child needs to hear is that she's overweight! Especially when she eats better than most ADULTS. I have argued with her peds. about this more than once, and am most upset that there is now a seed planted in her...
  6. "as an adult I would get random shooting pains. " That is EXACTLY how my daughter described it. She has been on a strict gluten free diet since last August, with a few mishaps and accidental contaminations. I have been rechecking and rereading all food labels again to be absolutely certain there is no hidden gluten. Just the thought that we could...
  7. Hello. I am new here and am so very happy to have found a place to ask questions and share my concerns! I would like to know if any of you have noticed that your child, like mine, complains of stiffness and/or pain? My 8 year old has been diagnosed with celiac disease recently, but has complained of tender achy pains in her legs for years. From the onset...
  8. Not only is it possible to be overweight and have celiac, it may delay your diagnosis as many medical practitioners are following a protocol that is limited by symptoms such as weight loss. My eight year old daughter was unable to get an official diagnosis because she was overweight and did not fit the "typical" patient. Even after her blood work showed...
  9. Hello--does anybody know if maltodextrin is ok for gluten free? It seems like it is added to just about everything. I have read several conflicting food lists regarding this additive--including information from my GI. I have researched this on line, as well, but find maltodextrin listed on safe and unsafe gluten-free food lists. I would really appreciate...
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