Celiac.com Sponsor (A1):



Celiac.com Sponsor (A1-m):


Sin3str0

Advanced Members
  • Content Count

    18
  • Joined

  • Last visited


  1. A little background first,

    A couple of months ago my Doctor suggested that I may have celiac disease. I went Gluten Free but at the same time had moved out of my home and started to feel better actually. I was so relieved that I could have finally have found what was making me ill all this time.

    Fast forward 5 months later, I move back home and ALL of my symptoms return with a vengeance, even though I had been gluten-free for 6 months now. I was still gluten-free, so I was baffled at would could possibly be making me sick. Not only baffled, but frustrated and heart broken.

    So I begin to do some detective work and I find a disgusting looking garden of Mold in parents AC unit, because I figured that whatever was making me sick had to be related to their home. I move out and symptoms improve, but not fully.

    I go back to my doctor and get tested for Celiac's via a basic allergy panel, it came back negative, so I had no clue what else it could be.

    I decide to do the A.L.C.A.T allergy test and behold! It comes back that I have a severe reaction to gluten! I stop eating gluten again, feeling somewhat better...

    ( Thank some kind of God! )

    So my question to you, my gluten-free family, is that it? Seeing that I am reacting to Gluten based off my Allergy Panel results from A.L.C.A.T and that I do feel a difference when I avoid it, can I finally be sure that I have Celiac Disease?

    Why would mold affect me so severely? I mean, mold is terrible as it is, but could I have such a strong reaction to it because of Celiacs or another Autoimmune problem?


  2. Here is my odd situation and since my Doctor sucks, I come to you.

    I usually have cold hands and cold feet. I can really notice it with my hands more than my feet since they are always exposed.

    The only time they get warm is if I eat. Every time I eat they regulate and then a couple of hours later they get cold again.

    I have no clue what it is at this point or what is causing this.

    I did the standard blood work and they Doc said nothing about my Thyroid being out of whack. Is there a specific thyroid test or can we rule out that it is not my thyroid?

    I'm at a loss. x_x

    Thank you.


  3. It is entirely possible to have both Celiac and a yeast overgrowth. It is also possible to be yeast intolerant or allergic, and not have an overgrowth.

    However, many people are highly sensitive to MSG (Monosodium Glutamate). Since many prepackaged foods have yeast as a way of disguising the presence of MSG, it might be that.

    Though not conclusive, many times, a yeast overgrowth causes a whitish coating on the tongue, especially towards the back. IMHO, if you had candida, avoiding yeast in foods for a few days wouldn't make any marked improvement in how you feel. But it could for a sensitivity of some sort, be it to yeast, MSG, or some other thing.

    If you had positive blood and gene tests for Celiac, that would seem conclusive. If not, you may want to try having only yeast-free gluten-free bread, and see what happens. Baking powder biscuits, gluten-free or not, could help narrow it down too. But if you have an intolerance or sensitivity to one of the other ingredients, it might be misleading. So, you may want to try each ingredient used in some food you react to, one by one, until you find the culprit.

    As for doctors, most do not know or believe anything about candida, so it may be tough to find one that knows enough to help you. There are apparently some tests which can be done.

    Now that yo mention it, I do have a white coat on my tongue, especially towards the back. Been that way for years. I also did the candid spit test in a clear glass of water and it seemed pretty evident of yeast overgrowth.

    The thing is, my Doc refuses to run anything outside of allergy and regular blood panels right now. I guess once I get my allergy blood results I'll ask for more thorough testing. It is just a pain to deal with constantly getting blood drawn due to Doc's not running ALL tests in one shot.

    Exactly, my Doctor doesn't even believe that there can be an internal yeast overgrowth. x_x Waaaaaah!

    Thanks!


  4. Although I posted this at another section I did mention I'd keep you guys updated, so:

    So I get home yesterday to eat this gluten free bread I've been eating ever since moving back in with parents and I decided to read the labeling. I did this because the day before I had eaten 6 slices of bread and the next day I felt worse than the usual crap feeling. I noticed the gluten-free bread had yeast in it, so I decided to avoid it and anything else containing yeast.

    Today, I feel human again. No D, less congestion, spitting all the backtrack out, etc. I've noticed the same thing happens if I drink gluten-free beer or gluten-free sake. Same goes for frozen food that is gluten-free and contains yeast.

    I'm beginning to think and even question my doctor, since he mentioned I probably had celiacs the first time I saw him, went on the diet, and started feeling better immediately. Here's the thing, gluten-free diet removes a large amount of yeast consumption from our diet. When I moved out of home, I was restricted on what I could eat since I did not have a proper kitchen. I noticed at home that I've been eating a lot of frozen food that contains yeast, although the food is gluten-free I was still getting sick.

    Here's what else. There was a point in time within this last year that I could eat anything and everything I wanted for a period of 2 months without feeling ill at all. I mean, I had my health back at 100%. 2 months later all of my symptoms came back and I started to feel like crap again.

    What are the chances of me having candida and leaky gut issues and not celiacs?

    Also, what doctor do I need to go to figure this out? My current doctor just wants to run allergy panels all the time.


  5. Like I had mentioned in one of the other sections, recently I moved out of my own place and went back home with my parents.

    When I was gone I was on top of the world. I felt great! But ever since moving back with the parents I have been getting sick again.

    Most symptoms coming back are: Spitting a lot of mucus from throat, sinus congestion, pressure in face, itchy and sore throat, itchy inner ear, cold hands and feet, bad circulation, tingling in hands, arms, and face, gas, burping, heartburn, reflux, and last but certainly not least, the BIG D!

    So I get home yesterday to eat this gluten free bread I've been eating ever since moving back in with parents and I decided to read the labeling. I did this because the day before I had eaten 6 slices of bread and the next day I felt worse than the usual crap feeling. I noticed the gluten-free bread had yeast in it, so I decided to avoid it and anything else containing yeast.

    Today, I feel human again. No D, less congestion, spitting all the backtrack out, etc. I've noticed the same thing happens if I drink gluten-free beer or gluten-free sake. Same goes for frozen food that is gluten-free and contains yeast.

    I'm beginning to think and even question my doctor, since he mentioned I probably had celiacs the first time I saw him, went on the diet, and started feeling better immediately. Here's the thing, gluten-free diet removes a large amount of yeast consumption from our diet. When I moved out of home, I was restricted on what I could eat since I did not have a proper kitchen. I noticed at home that I've been eating a lot of frozen food that contains yeast, although the food is gluten-free I was still getting sick.

    Here's what else. There was a point in time within this last year that I could eat anything and everything I wanted for a period of 2 months without feeling ill at all. I mean, I had my health back at 100%. 2 months later all of my symptoms came back and I started to feel like crap again.

    What are the chances of me having candida and leaky gut issues and not celiacs?

    Also, what doctor do I need to go to figure this out? My current doctor just wants to run allergy panels. What should my next step be to figure this out?

    Thanks!


  6. It is hard. Very hard. Sometimes it gets harder, other times it gets easier. Very emotional and physical roller coaster ride that you want to get off of, but getting off means feeling like garbage.

    Like my friends will say something like "let's get a pizza" or "try some of this", completely forgetting the situation I am in. I work in a cooking school and on a daily basis I am reminded of what I cannot eat. My co-workers also apologize or ask me to try something until they remember. People give me sad looks, one of my friends makes stupid comments about it sometimes, although I know that is how he deals with things.

    Be strong, we all may be far apart from each other but we are all here for the long run.

    It's funny because sometimes I question if I really have celiacs, but then I remember how bad I had it before I went on the diet so I stay strong. Right now I'm going through a health crisis since moving in with parents, but I have to hang in there until I move again.

    Best of luck!


  7. Gentleheart, JNbunnie, thank you!

    I spoke to my chiropractor about my current situation and he seems to believe that I may just have a chlorine/chemical hypersensitivity. Also, sharing plates and silverware and getting contaminated makes a lot of sense now. I will try my best to do what needs to be done to solve this problem. I am even moving out again, because I honestly think that I have to live alone with this celiac thing. It's funny, I thought coming home would help my parents, but im just getting in the way. I'm gonna move out a.s.a.p.

    I'll keep you guys posted. Thank you so much for being here for me, cause I was in bad shape emotionally today and this place gives me a bit of hope.


  8. My parents home is not gluten free, but I do not use anything they use that has not been cleaned in the dishwasher. Heck, all I share with them are glasses, plates, and silverware. All fresh from the dishwasher.

    In the shower I've not been using anything out of the norm before I moved back. They use shampoo's that contain gluten like wheat protein isolate, but I don't touch the stuff.

    The only thing I use is the big oven, and not in convectional mode, so I'm sure thats safe. Hell, I can't remember the last time they used the oven.

    When I shower, that's when my nose gets very burny-tingly and I start to sneeze.

    Last night I slept in the car and I do not plan on showering here today. Hopefully someone can hook it up.

    Haaaaaaating life. :)


  9. 2 months ago my Doc told me that chances were I had Celiac disease. I listened to him because I've suspected the same for a while now. I dropped ALL gluten, moved out of home, and started to feel great! Sure, some days I would feel crummy, but for the most part I was on top of the world again, minus delicious gluten.

    So this is the part that gets very, very weird...

    Recently I decided to move out of my own place and go back with my parents in order to save some money up and travel around a bit. Guess what? I'm being glutened every day! I mean, at least all of my symptoms have come back. D, Abdominal pain, trouble breathing, congested, tingling in the hands and arms/body. Just very heavy and sluggish feeling.

    It is especially worse if I take a shower. Oh boy, watch out if I take a shower. I'll come out of there with nose burning and the craziest need to sneeze.

    Using my detective skills ;) I gathered that the house is infested with mold and that I am being glutened by said mold.

    Am I crazy or is this possible? I'm already making plans to move out again, but damn if this doesn't frustrate the hell out of me.

    The worst symptom is trouble breathing. I feel really hot as well. Just all yucky in their house.

    Help my Obi-Wan Celiac forum, you're my only hope. :lol:


  10. About 2 months ago, thanks to process of elimination and an opened minded doctor, I discovered had celiac disease. I've not done any of the testing due to my doctor saying that it'll be a waste of money when it's very clear that I have it and me agreeing.

    My health has improved greatly since I've stopped eating gluten, but on some days I just feel plain ol bad... like today!

    Here are my symptoms:

    Heartburn

    Gastritis or Ulcer, although im thinking the first due to the cramping and pain going away once I release air (burp or pass it) :P

    Depression

    Anxiety

    Moody and irate

    Tingling in hands and feet. Used to be my whole body until I completely stopped eating gluten

    Congestion! So badly congested :(

    Cold

    Here's my dilemma. Today I'm having one of the worst days I can remember having health wise in over 2 months.

    I use a separate oven to cook my food, I've gotten rid of all of the allergens in my bathroom. I use Nature's Gate Deodorant, Tom's of Maine toothpaste, and none of my shampoo's have gluten.

    As far as dietary goes, I still eat corn, dairy, soy, etc. The only thing that I have completely cut out is the gluten.

    Like I said, today I feel really bad. Most of my symptoms are running rampant and I feel piss poor.

    Here is what I ate yesterday. with whatever could cause a problem after.

    2 pork sausages from whole foods - Natural Flavor - New to diet

    A box of rice crispy snacks from envirokids, so about 6 bars - New to diet

    2 servings of Corn puffs from envirokids - Corn - New to diet

    A gluten free pizza from pizzafusion - Dairy

    1 box of Mary's gone crackers - Safe

    Rice milk labeled gluten free

    The newest things I've added to my diet are the bars and cereal

    Could it be that I need to drop the corn completely? I feel so bad today. :(

    Anyways, like I said I'm fairly new at this and I need any advice that could help me recover that you guys could suggest.

    Clearly I've continued to eat dairy and corn, so do I need to eliminate these from my diet?

    What are the steps I need to take? What foods are totally safe?

    I'm pale, people notice somethings wrong, I want to quit my 30 minute away job for something closer because I feel weak, etc.

    I'm tired of my health holding me back from my true potential.

    Thank you.