
fripp017
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Everything posted by fripp017
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ARCHIVED Does Anyone Experience Violent Dreams?
fripp017 replied to msmini14's topic in Related Issues & Disorders
I have always had dreams I could remember - some bad and some good, some very violent or disturbing. When I started having Celiac symptoms my dreams were usually worse. I definetly sleep better when I haven't had any gluten, but I still have dreams. I mostly did want to comment on the smoking part. I also quit smoking after being diagnosed and I had horrible... -
ARCHIVED Frustrated With Doctors And Test Results
fripp017 replied to Mom of a Celiac toddler's topic in Parents, Friends and Loved Ones of Celiacs
I am right there with you, only I have two children! My daughter is 26 months and my son is 4. They both had the endoscopy and biopsies taken in July. They both came back negative. I put them on the gluten-free diet and they are so much happier. My daughter sleeps better, she rarely has rashes anymore, and she is just better. My son is alittle bit harder... -
ARCHIVED Two Sick Kids And No Diagnosis
fripp017 posted a topic in Parents, Friends and Loved Ones of Celiacs
So, after being diagnosed with Celiac I noticed my children had similar symptoms. So, I had blood work done on them. The blood test had some higher levels of antibodies, so they were both refered to a pediatric GI specialist at Yale Hospital. I kinda thought that since they would be going to a specialist for children, at a well funded medical facility that... -
ARCHIVED Celiac Test Is Neg. - Now What?
fripp017 replied to Mizyellow's topic in Parents, Friends and Loved Ones of Celiacs
I was diagnosed with Celiac Disease not too long ago. After I started getting better on the diet, I noticed that my daughter (21 months at the time) and my son (4-years-old) were displaying similar symptoms. They were tested with the blood panel and they showed no "evidence" of Celiac (according to the GI specialist), but they were refered to the specialist... -
ARCHIVED What Is The Point Of Diagnosis?
fripp017 replied to TotalKnowledge's topic in Coping with Celiac Disease
I think your question is such a big issue for patients and doctors. The disease has only recently started becoming more recognized, but doctors still know very little about it and why the body has such a response. In my experience, I HAD to know. It just bothered me that I suffered for so long and I trusted doctors so much that I couldn't understand why the... -
ARCHIVED Celiac Vs Gluten Intolerance
fripp017 replied to fripp017's topic in Parents, Friends and Loved Ones of Celiacs
Since no one seemed to have any ideas on my topic, I searched around for information and found a very useful book. If you are curious like me, this book has alot of answers for Celiac Disease and Gluten Intolerance. It's called Heathier Without Wheat. -
ARCHIVED I'm G.intolerant - Son Has Diarrhea
fripp017 replied to 2plustwins's topic in Parents, Friends and Loved Ones of Celiacs
Hi. I know this is off topic to your question, but I was wondering how you were diagnosed with gluten-intolerance. My kids seem to be showing signs of gluten-intolerance and/or Celiac Disease. They are in the process of being tested, but the doctor practically ignores the idea of gluten-intolerance. I was just wondering what it took to get the diagnosis.... -
ARCHIVED Where Do I Start?
fripp017 replied to mum2 charlotte's topic in Parents, Friends and Loved Ones of Celiacs
LOL! Yes, there is ALOT of hidden gluten! Some research and lots of label reading. The one thing I dread the most now that I am on the gluten-free diet is grocery shopping. It used to just be in and out, but now I spend most of my time checking the labels. Hints that I can give you - stay away from foods/products with: monosodium glutamate (flavor for chips... -
ARCHIVED Just Diagnosed - Weight Loss?
fripp017 replied to LiveLoveLaugh3's topic in Related Issues & Disorders
Hi. From my experience, you will initially loose some of the wieght when your body starts to heal. It starts absorbing the right foods, you feel better and you can be more active. It only took me about 3 days to start getting up and moving around more. I had sevre abdoinal pain as my main symptom, on top of the extreme tiredness. I spent alot of my sick days... -
ARCHIVED Where Do I Start?
fripp017 replied to mum2 charlotte's topic in Parents, Friends and Loved Ones of Celiacs
Hi. My children are in the process of being diagnosed as well. Doctors are still getting used to the idea of Celiac Disease. They aren't really sure how to test for it, how to know anyone has it for sure until they are very, very sick. So, I would keep trying. If you want to switch her onto the diet to test it, I think it would be less overwhelming than you... -
ARCHIVED Celiac Vs Gluten Intolerance
fripp017 replied to fripp017's topic in Parents, Friends and Loved Ones of Celiacs
My daughter is 2. Her results were as follows: Gliadin Ab IgG - 35 (suggested results should be less than 11) Gliadin Ab IgA - <3 (suggested results should be less than 11) Tissue Transglutaminase Ab IgA - <3 (suggested results should be less than 5) My son is 4. His results were as follows: Gliadin Ab IgG -20 ((suggested results should be less... -
ARCHIVED Celiac Vs Gluten Intolerance
fripp017 posted a topic in Parents, Friends and Loved Ones of Celiacs
Both of my children had the Celiac blood test. The both had high levels of IGG but no real presence of the other antibodies. The GI specialist said that they are doing the full work-up because I have Celiac disease, but IGG antibodies are "non-specific" and could be an allergy to anything. I was just wondering and reaching out to the parents whose children... -
ARCHIVED What All Were You Tested For Before Celiac Diagnosis?
fripp017 replied to latteda's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's kinda wierd, but mine all started with a visit to my ob/gyn. I spent a month or two in and out of that office and then in and out of my doctors office until the celiac panel was done. I was diagnosed with (and prematurely treated for) : miscarraige menstrual cycle cramps uterine infection PID Diverticulitus (sp?) Irritable Bowel... -
ARCHIVED I Need Support With My 3 Year Old!
fripp017 replied to sol's mom's topic in Parents, Friends and Loved Ones of Celiacs
Hi, I was just browsing through this post and the replies. I have Celiac Disease. My two children have been screened by blood tests and both have come back with positive results. I am in the process of getting them tested. My son is 4 and my daughter will be 2 in a week. I have looked online, aniticipating their results, and I have found a couple of cute... -
That is kinda weird. I also smoke. I did notice that, but maybe not to the extent that you did. I quit for a week and I felt great, but I had a gluten-free lifestyle break down, so I started again. I felt much better when I quit though. I am going to try again. I did notice that once my body started healing smoking made me feel sick. That is why it was pretty...
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Warning : This may be a large post of venting, but I hope someone can relate to it. So, I found out I had Celiac Disease February 2009. It wasn't a big deal at first. I thought that all I needed to do was change my diet and life would go on... WRONG!!! I had my two children tested, just to be safe. I'm glad I did because the blood results show signs...
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ARCHIVED Endoscopy And Kids
fripp017 replied to fripp017's topic in Parents, Friends and Loved Ones of Celiacs
I have been searching for some easy bread recipes. I have a bread maker too, it's just hard to find all the fancy ingredients. So, if they aren't too complicated, I would love to get some of your recipes!! I think that is a great way of looking at it. I am not exactly a positive person, so it's hard for me to focus on the more positive ideas. But, I... -
ARCHIVED Endoscopy And Kids
fripp017 replied to fripp017's topic in Parents, Friends and Loved Ones of Celiacs
Thank you all for you input. It looks like it's going to be a long road for me. My son's test came back and his were very similar to mine. So, looks like my bad genetics were pretty dominant. My son just turned four. He loves pizza, toast, and crackers. I am so upset. I think he is going to have a hard time. He has no choice, but he chooses not to try new... -
ARCHIVED Endoscopy And Kids
fripp017 replied to fripp017's topic in Parents, Friends and Loved Ones of Celiacs
What is dd, dh, ds, etc. ? I am lost lol celiac-mommy - I know. I had to kinda do that with myself. I have personally been through it and as long as you have results there is still hope through a second opinion as well. There are some awful doctors out there. You could always consider that for your family. You don't have to put them back on gluten, just... -
ARCHIVED Endoscopy And Kids
fripp017 replied to fripp017's topic in Parents, Friends and Loved Ones of Celiacs
Thank you all for your opinions. It really means alot to me. I discussed it with my husband and he was not worried at all about getting our daughter tested. He didn't really see why I didn't want it, but told me we didn't have to do it. He can be such a man sometimes. I do feel that I agree with linsmad and the only reason I think I am probably going to go... -
As a Celiac myself, I would like to know if they have it. My daughter was tested, she will be 2 in May, and her blood panel came back a pretty high response to gluten. She didn't show definitive lab results for Celiac though. They want to do an endoscopy on her in the next couple months. Has anyone done this to their child? Is it worth it? Against my...
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ARCHIVED Another "female Issues" Thread
fripp017 replied to ohsotired's topic in Related Issues & Disorders
There reason I was actually, eventually, diagnosed with Celiac Disease is because it all started with abdominal on top of irregular bleeding. I started having "normal" menstrual bleeding two weeks after I just finished my last period. I am also pretty regular (28 days) and I bled for 12 days straight, not always heavy but enough to have to use some kind of... -
ARCHIVED Getting Diagnosed
fripp017 replied to mikehall117's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I actually went back on gluten for my endoscopy. I had already had the blood tests and my Primary care doctor told me to go on a "low-gluten diet" since I didn't have a large response to gluten antibody-wise, but any gluten causes me serious abdominal pain and nausea. I went off gluten for a week and felt great!! When my GI said I was supposed to be eating... -
ARCHIVED New Reactions To Dairy
fripp017 replied to samcarter's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That just happened to me too! I just put up a post for dairy-free advice! I have only been on the gluten-free diet for 2 months, and I have seen many people on this site gluten-free, dairy-free, soy-free, etc. and wondered if I would be next. Needless to say I am now gluten-free and dairy-free. Agian, like the other posts you have already recieved, I have...