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fripp017

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by fripp017

  1. fripp017
    For some reason, I seem to go against most of the forum members on this one, because I went through alot doctors to find out that I had Celiac Disease. Most of the members replied similar posts about staying on the diet, which is VERY good advice. But, I figured I would play devil's advocate. I have two children and I wanted to know if I had Celiac...
  2. fripp017

    fripp017,

    Got your comment. Glad you appreciated the post. In the interim I've learned a few things. For one, isolating allergens is key--elimination diets to find out what's going on. Reading all the other posts started to make me think I was allergic to life itself. Nope, just soy, gluten, and intolerant of shrimp. Second, vitamin C (timed release) has made all the difference, along

  3. fripp017
    My daughter will be going to Yale Pediatrics for further testing.
  4. fripp017
    Thank you so much for your advice. I see how creative you can be. It's just frustrating to have so many "normal" options taken away. By the way, where do you buy the almond milk? Thanks, Jessy
  5. fripp017
    Kathy, I see that you are gluten, soy, and dairy free. What can you eat!?! I find it tough already to avoid gluten, and I have learned about some of the tricky wording for it, but to have to do that with all three? Do you feel better? Have your symptoms stopped all together yet? Thanks for the help, Jessy
  6. fripp017
    So, my Celiac "diagnosis" is a long story. Needless to say, I have been gluten-free and feeling pretty awesome for a little over a month. Suddenly the abdominal pain has kicked back in, but not as severely as before. I assume it's dairy and blame my stubborness for not just avoiding both. My main concern is if I have to stay away from dairy products or do...
  7. fripp017
    I'm glad you posted this. I was "diagnosed" with Celiac Disease in February. My doctor couldn't give me a full diagnosis, because he's a jackass, and me and my pcp believe that I caught it pretty early. I had only a few symptoms, but they were severe. I had abdominal pain that would send me to the ER and extreme fatigue and irritibility. I have been gluten...
  8. fripp017
    For the first part I quoted - I am the same way. I actually saw my GI on Feb. 25th and he said "You probably have Celiac." What the hell is "probably"? I argued with him and he even used the expression "ape poop" when I asked him why he couldn't diagnose me. My blood test antibodies were elevated, my biopsies came back showing damage, and my h. pylori test...
  9. fripp017
    It's nice to know I am not the only one with an idiot doctor. My is actually my specialist. I have had blood work come back showing signs of Celiac. My GI even did the biopsies and just ran tests for stomach bacteria, even though all of my symptoms point to Celiac. I was off gluten for a week before I saw my GI and I told him how great I felt. He said it...
  10. fripp017
    My PCP gave me copies of my labs to take to the GI specialist. I looked it over and I was postive for IGG and equivocal IGA. I just had my endo on the 6th. My doctor didn't tell me much. He said everything looked "fine." When I called him for the results, which took five calls to the office, he told me the biospy was "inconclusive." I have read that sometimes...
  11. fripp017
    I did the same thing ... I was on a gluten free diet for a week. After 3 days, my pain noticably decreased. After the third day, my energy returned and my irritibility went away. Everyone thought I was a different person. I had my GI appointment so I was doing research on Celiac and read that you "should not start the gluten-free diet BEFORE you are diagnosed...
  12. fripp017
    I regret to inform everyone that Mystery Diagnosis is "to be continued" I went into for my blood test today, after going off the gluten-free diet again and suffering. It turns out the head gastronentenologist of this group wanted to draw blood for the bacteria that causes ulcers (h. ply-something or other). The person at the lab told me she wasn't even...
  13. fripp017
    Thank you Kristen. I have considered it. And, after this last blood test today, I may even ask for a second opinion. I actually believe that 20 month old daughter may be showing symptoms and I would hate for her to have to go through this so young. If I am not confirmed, then we would have to start all over again with her. With the blood tests, I am not...
  14. fripp017
    I agree that doctors are human and make mistakes (and cover themselves so they can't be charged for mistakes). Maybe, they could take alittle time to act more human. I feel like a pay check rather than a patient. I don't know if I have just had bad luck with doctors. I just think it is, well - as childish as it may be, unfair. I just want to get better and...
  15. fripp017
    I have read all of them so far. It's actually very depressing. I have done my research online and apparently Celiac is on the top ten list for most commonly misdiagnosed conditions. It's just frustrating to tell a professional that "something" is not right and they don't believe you. I want the diagnosis so I can test my children for it. If I am not diagnosed...
  16. fripp017
    BTW, a stool test cannot indicate Celiac. My bad, lol. The doctor gave me a printout of my results and they are kind of hard to read. The doctor found that my Gliadin IGG (from a blood sample) was 20 and it's supposed to be less than 11.
  17. fripp017
    So, I have been suffering from mild to moderate abdominal pain for about 4 months now. I have seen at least 10 doctors ranging from ER (for some of the more moderate pains), Ob/GYN, Primary doctor, and now a Gastroentenologist. Has anyone else had a doctor not believe that they were having pain? I remember one appointment where I walked in, the doctor...
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