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scaredparent

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by scaredparent

  1. scaredparent
    I am so happy your daughter is doing well. But as far as relatives not believing you who cares. My in laws are very anti medical. THey think dr are crazy and if the test don't show positive then it is not true. But my son didn't have a postive dx but my inlaws see how well my son is doing and they applaude the diet. They say we can see how well he...
  2. scaredparent
    My son has been gluten-free since Feb and when he gets glutten he gets big sores on his bottom and dh. He is also very fussy. When it is the flu he just get dh.
  3. scaredparent
    Wow I didn't think someone story go be as close to my son's life. My son is now 26 mo and has been gluten-free since Feb. But I had a long hall to hall before Feb. My son was born July 2 2003 weighing 8 lbs 6oz and was 20 1/2 in long. (We have 5 children 3 girls and 2 boys and this is my youngest that I am talking about.) But with my first 4 children...
  4. scaredparent
    Now that all test are done you could but her on a gluten-free diet and if you see improvements then wether the test are postivie or negitive you can tell by a diet change. All of my son's test came back negitive but had a postive dietary change. He was 15 mo when tests were done and 20 mo when we started gluten-free diet and 4 days latter he was a...
  5. scaredparent
    We Tyson chicken all the time and my son doesn't have any trouble. My grandmother works at a food pantry in Arkansas where the Tyson plant chickens are raised and so Tyson always gives the chicken and turkeys and she gives us some. We have always eaten them with no problem.
  6. scaredparent
    My son has been gluten-free for about 7 mo and I was told by my "mentor" (another celiac disease patient and her husband) that maltodextrin was not ok. I keep away from it at all times.
  7. scaredparent
    Are you and her father tall? My daughter who doesn't have celiac disease is about 43 inches and weighes 41 lbs and she just turned 4 in June. My husband and I are very tall and she was at about the 75 percential at her 4 yr check up. Children with celiac disease or glutten intollerance can be small. She might be a little small but is about the right height...
  8. scaredparent
    I agree with lbsteenwyk. My son never had a postive dx but my son has had great improvement on his diet. My son been completely different and he a wonderful kid now. I would never put my son back on glutten. His gi dr told me that their was nothing wrong with my son but he is the youngest of 5 and I knew that 18 stools a day and vomitting everyday and...
  9. scaredparent
    My son is 2 so he puts everything in his mouth but if they have grain out thier and he is touching it and not washing his hands good and then eating he might be geting a cross contamination. Its on his hands then touchs food and food goes into his mouth. We live across the street from our feed mill and 1 and 1/2 blocks from 2 wheat field and during harvest...
  10. scaredparent
    You would be amazed at what restrants put flour in. I took my son for homemade icecream at a restaurant and I decided to ask for ingredient and they put flour in their ice cream. I almost didn't ask for ingredients and I was verrrrry glad I did. When in doubt ask for ingredients. Most place will tell if you tell them you are highly allergic to wheat,...
  11. scaredparent
    My son was growing and doing fine at the age of 3 mo and the dr had me start him on rice cereal and week later oatmeal . I started him on the oatmeal and he started to get sick. I knew nothing of celiac disease and it took us 17 mo to get him dx with a glutten intolerance. Don't let it go as far as we did. At 20 mo old he was having 18 stools a day...
  12. scaredparent
    He is not able to drink OJ because it cause severe diahrea and sores in his mouth. I had heard that OJ helps. I haven't tried OC vitamins.
  13. scaredparent
    My question is simple, does every with celiac disease have to take iron supplements? My son was not animic until he went gluten-free. When he was having severe dh about 15 stools a day, and vomiting 2 times a day his iron level was between 12 and 13. He has been gluten-free since Feb of 05 and in March his iron level was 11.3 which was borderline and then...
  14. scaredparent
    I took my almost 8 year old to the dr today to be tested for celiac disease. A dr from Kansas City ordered all the tests Iga, Ttg, Anti-edo??, T free, and a thyrod test in the first of July but she couldn't have the test because she had been gluten-free for a week. My daughter had her tonsil out and could only have popscles and ice cream. I saw the dr...
  15. scaredparent
    My son has celiac disease and I make him stay away from MSG and maltodextrin. I think there are mixed opinions on the maltodextrin but I was told to stay away from it. Good luck
  16. scaredparent
    I took my son there and he had thier chicken tenderloins with no sauce and my son dipped it in ketchep. He then had mashed potates on gravy. He also had a small salad no crutons and I brought his own dressing. He didn't get sick so I guess he did okay. The chicken was just boiled and the brought him like 5 pieces of chicken and he was only 20 months old...
  17. scaredparent
    My son was diagnosed at age 20 mo and I agree with every one else kids adapt fast. My son still likes to have cookies and I make my own. We live about 3 hrs from a health food store. So we don't have acess to any gluten-free food. I order flour once every other month and I make every thing from scratch. I have 5 children and this disease can affect everyone...
  18. scaredparent
    Shortly after my son was dx the lady that has helped me out alot told me msg was not good for celiac disease patients. My son kept getting sick after eat certain things and I read her the label and she said it was the msg and every since we took him off of that he has not gotten sick except when he has gotten a hold of glutten. He just turned two so some...
  19. scaredparent
    May be you could try wearing gloves and then throw them away after each use. Then wash like crazy. Good luck
  20. scaredparent
    We have insurance and the reason being that if we didn't we would spend about 6000 dollars a month alone on meds. That doesn't include dr appt. My husband only brings home about 1100 dollars a month you do the math. We could not survive with out insurance.
  21. scaredparent
    I have a 24 mo old with undiagnosed celiac disease. He had a positive dietary change. He has been gluten-free for about 7 mo and is doing very well. But here is my question. We are getting ready to test my 7 yr old to see if she has celiac disease? My mom has chones and I told her that she should be tested and she blew up at me because she said "that...
  22. scaredparent
    I would love a list also dsaabbb2005@yahoo.com Thanks PS unzipped
  23. scaredparent
    My husband and I make a glutten free chicken stuff. It tastes kinda like sweet and sour chicken. The recipe is 1 c salsa, 1 c mayo (helmans) and your chicken pieces. Warm chicken and then add other ingredients and simmer on med heat untill warm. Place over rice. MMM good. My son has been gluten-free since Feb, and he loves it. He usually has 2 and...
  24. scaredparent
    My son started out being breastfed and was growing and doing fine and at 3 months my dr told me to start him on rice cereal for a week and then oatmeal cereal 1 wk later. So I did. To make a long story short, he got very sick. The diahrea started and kept going and going. He would be put in the hospital for being dehydrated and so sick. We would pull...
  25. scaredparent
    I appriciate you putting this on because my son just had a pick line in because he can't tollerate oral antibiotics. Does any one else have this problem.
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