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Foxfire62

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Foxfire62

  1. Foxfire62
    I don't know what the genetic markers mean, but I can tell you that you probably had a negative response on your blood work because you were on a gluten-free diet. You really need to be on a gluten-free diet for awhile (2 weeks - 1 month) and then do blood work or get scoped and have a biopsy done. Only the biopsy is the sure-fire way to diagnosis, and to...
  2. Foxfire62
    I never had any of those symptoms until I became backed up and a boat-load of things happened to me. I didn't have phobias or depression, but I started suffering from anxiety. A quick change to a hypoglycemic diet helped me immensely. I still do get anxious at time, however, when I get backed up, and the gases go into my other organs and cause me to nearly...
  3. Foxfire62
    I totally agree with you...eat as clean as possible. That's what I've learned as well! Forget trying some of the products in the regular store that say "gluten-free." If you're extremely sensitive, it doesn't bode well. I've learned MY lesson!
  4. Foxfire62
    Depends on your age. The younger, the better. For example, my blood results for ttg were 100+. I'm now down to 14. I started to feel great up through December. Then starting January/February, I started to feel full. My new GI doc thinks I got glutened again. I did begin experimenting with other supposedly gluten-free products (i.e., Kettle Chips and Kraft...
  5. Foxfire62
    Push for it. Although doctors know a lot, they don't know everything, which is why celiac disease is such a hard thing to diagnose. Don't take "no" for an answer! The earlier celiac disease is caught, the better and quicker/easier recovery. Good luck!
  6. Foxfire62
    The villi can be seen in the small intestines. If he did not biopsy the small intestines, then you cannot be given a 100% diagnosis of celiac disease. A tTg/IgA test (the blood test he is referring to) can give you some clues, but the only sure-fire way to diagnos celiac disease is by having the duodenum biopsied to check for blunting of the villi. Be sure...
  7. Foxfire62
    Only a biopsy can confirm that you are negative for celiac disease. And for that, you have to continue to consume gluten. But if you're gluten-intolerant, you needn't do a biopsy and can just experience with a gluten-free diet.
  8. Foxfire62
    When in doubt, leave it out!
  9. Foxfire62
    What are your symptoms?
  10. Foxfire62
    Before eliminating these products from your diet, you need to confirm with a blood test and biopsy preferrably that you have celiac disease or are gluten-intolerant. In order to do this, you need to stay on a gluten-filled diet (not gluten-free) prior to testing. As for how to eat on a budget once you've been diagnosed, if you stick with cooking from scratch...
  11. Foxfire62
    Before you go on a gluten-free (gluten-free) diet, you should have blood work done to confirm diagnosis. Even with a positive blood test result, you would need to be scheduled for a biopsy for a 100% diagnosis. You should not go on a gluten-free diet before these confirmations because it can alter the results. However, if you are diagnosed with celiac...
  12. Foxfire62
    I can tell you, recovering from celiac disease can be complicated. Since my recovery process, I have had the following: GERD Burning in my throat Feeling of fullness Constipation which led to not eating which led to starving myself and losing weight, which led to: Lightheadedness Heart attack-like symptoms (i.e., pain in chest, shortness of breath...
  13. Foxfire62
    Going on a gluten diet for 3 days will probably not significantly raise your tTg levels, I wouldn't think. I'm no doctor, of course, but 3 days is really not enough. Two weeks would be better, or even a month, but I'm guessing you wouldn't be able to tolerate that anymore. The only real way of diagnosis is a biopsy. Again, you would probably need to consume...
  14. Foxfire62
    I hope I can help with the vitamins. I was told my nutritionist who also has celiac disease that NatureMade vitamins are gluten-free, and I even called and confirmed. Also, I believe Dove is supposed to be gluten-free. You might want to check. Good luck!
  15. Foxfire62
    How old are you? I've been going through fullness feeling too, and my new GI thinks I've gotten glutened. Right now, I feel full too, and it's ever since I started a medication (progesterone) that I've called on and confirmed had no gluten (but they always give a disclaimer). When I didn't eat because of full feeling (was pretty constipated, turned out),...
  16. Foxfire62
    What you are possibly experiencing with the tingling sensation in your hands and feet is called "neuropathy." And guess what? It can be associated with celiac disease. Since celiac disease runs in families, it is quite possible you do have it. I know it is discouraged to go on a gluten-free diet before a biopsy is taken (assuming that's what you're going...
  17. Foxfire62
    I've been able to hear my heart for a long time; I started getting palpitations in my 20s. I especially notice it when I go to bed. In fact, I had started getting palpitations right before bedtime and had difficulty falling asleep because they were continual and in a constant rhythm...until I found a position where they didn't do that. I'm guessing it's because...
  18. Foxfire62
    If biopsy is negative, then more fiber is warranted or maybe check for colitis or crohn's disease; these are also autoimmune disorders that can cause same symptoms.
  19. Foxfire62
    Are you having hypoglycemic attacks maybe?
  20. Foxfire62
    I don't know if my blood sugars are out of whack, but I was tested for diabetes, and they said I didn't have it. But there are times I'm jittery and sometimes I'm not. I don't understand what's going on with me. A few people think it's because I'm 46 and might need some progesterone. Could this be the problem? I will be starting progesterone tomorrow...
  21. Foxfire62
    My nutritionist is making me eat a lot of protein since I've become so jittery lately. Is there a reason for that? I was constipated a few months ago and didn't eat, thereby losing weight, so I know she wants to put meat on my bones, but is there another reason?
  22. Foxfire62
    I had the procedure three times before...with sedation. You don't remember anything. You remember them getting you set up, and they may ask a few questions. Then they give you the stuff in the IV, and you don't remember the stuff they spray in the throat or anything else. Later, after you're dressed, you wonder how you got dressed in the first place!!! ...
  23. Foxfire62
    You said you had a panel, and I'm assuming that's a blood panel. The only way to be 100% sure you do or don't have celiac disease is to get scoped and have a biopsy of your intestines. If you have not done this, I would recommend getting an appointment set up and get tested. That would require ingesting gluten. Is there any kind of gluten-containing food...
  24. Foxfire62
    I am having problems with this. I go to bed with heart palpitations and rushes to my head, which inhibit my sleep. Last night, I tried not eating later than 6:00 p.m. I was hungry by 3:30 a.m. In the morning, I was soooo jittery, I had to take something to calm down my nerves. Of course, I ate too, which helped. I had 2 eggs, yogurt, and some Rice Chex and...
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