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It is unclear from your post if you son is living in dorms on campus or on his own while he is in college. He might be finding it so hard to find gluten free food on campus that he figures it is not worth the effort (especially if the dining halls are very impersonal.) I wasn't diagnosed until recently and am going back to graduate school this fall. It has made me think of when I was in undergrad and how hard eating gluten free would have been even though we had small personal dining halls where I knew the staff. He may feel uncomfortable asking for what he needs as it would require them to cook food differently specifically for him. My college didn't even do vegetarian and vegan food well, so I would suspect that gluten free would be a challenge. You might ask him if he would like some help talking to food services (or whoever it is at his college) about his dietary needs. Even though college students don't want their parents involved, sometimes they are the most influential when it comes to dealing with college administration. I don't know if this will help his eating, but it is one aspect to think about. Good luck.

Wenmin,

Thanks for that comprehensive list. This whole thing just shows how little I actually knew about what I was putting in my body. Thanks again.

I know what you mean about being upset by the possibility of not being able to backpack. It was one of the first things I thought about not being able to do. If you have a stove and don't have to carry your water you can always take rice and beans (dehydrated) for food. It is a good source of protein and not too heavy. Humus and cheese for lunches with soft corn shells. I would suggest dried fruit and nuts for snacks. Good luck.

If anyone is interested they are talking about a study (not the best analysis, I think) on the prevalence.

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Yeah! I think I just looked at their pre-mixed ones at the store.

Thanks for the information. It will be on my next shopping list.

Thank you everyone for your advice. I am most pessimistic because I went to the grocery store near me and found very few gluten free foods (no gluten free pasta for example). Your lists of foods to add helps. I don't eat beans (except for green beans) as I have never liked their texture and have always been limited in the meat I eat. I guess now I have a reason for eating the plain foods I have always liked better than the seasoned ones. Ahhh well, I will have to go to whole foods which will be more expensive and requires public transit for my food.

Hi,

I used to drink Carnation instant breakfast when I was running late, but it is not gluten free. Does anyone know of any good tasting gluten free instant breakfasts I can have instead? I am often running late in the morning. I don't have any problem (so far) with dairy so that isn't an issue. Thanks.

I don't see nearly enough protein in your diet. The eggs suggested will be excellant for you. Is there a reason you don't eat meat? You may have to get at least a little in there. Your body especially your muscles, like your heart muscle, really need protein for good health. Eat more nuts and avocados are a good scource of dietary fat. All those changes should help with the tiredness and hunger. You need more gas in your engine!

I tend to eat meat once or twice a week at dinner, chicken usually. Before going gluten free I never ate much meat, but I had a lot of milk and cheese and peanut butter, which usually was enough. Now I just seem to be unsure about everything I eat. I used to know how much of different things I would need, but now I just feel confused abou the whole topic of eating. I will try to eat more chicken and increase my diary intake (I don't seem to have any problems with dairy). I just feel lost, and there is no one I know off-line who is dealing with this. I felt like before it was easy to just grab something when I was hungry. Only since this weekend have I had any munchies in my cabinet which I think is helping. But at the same time I don't want to eat my food too fast as it was a stressful and expensive trip to the grocery store last weekend. I don't know. I see the doctor next week and the nutritionist the week after that. I will also add eggs in.

Well, you could still be tired, you've only been healing for two weeks. Depending on how long you've had it and how old you are, etc., could be 6 mos. to even a year to complete healing.

I don't have a gluten free kitchen either (my husband is not celiac) but, aside from things that are "mine" (gluten-free) like cutting board, colander, even mixer, you don't need to get new dishes or utensils unless they are plastic or wooden. One thing you do need, however, is your own toaster. And also beware of teflon coated pans. We have a couple non-stick pans that no gluten is allowed to go into (no regular pancakes, french toast. pasta, etc.).

An easy safeguard, for day to day prep in the kitchen, is to never put anything down on the counter. If it's for you, lay it on a plate, paper plate, paper towel, piece of wax paper, etc. Then you always have a shield between your food item and a possibly contaminated surface. It will get to be habit in no time.

When it comes to putting things down on the coutner, I have a small space that is just mine. However, do I need to worry about gluten that might be on the bottom of the dishes I am using if I have to put them down in the other area? What about the door nobs to the cabinets? Is the regular setting on the dishwasher ok or should we have it do the pots/pans setting that is longer and harder? If I can't see the gluten can it still be there (for example the fridge door handle)?

As for what I am eating I think I just am not eating enough. I am eatting 2 apples a day with peanut butter (one breakfast, one lunch), 2 string cheese for lunch, and whatever I have the energy to put together for dinner (usually when I am the most tired). I had to get rid of my multi vitamin (not that I was taking it) because it had gluten in it. I am seeing my doctor next week and hopefully she will have something to say about what vitamins I might be needing to take. I hope to add in rice cakes to my diet tomorrow and buy cereal for breakfast on my way home tonight. I feel like before i was able to just grab something when I was hungry but now I can't seem to figure out how much I should be eating.

Thanks again for answering my questions.

This weekend when I was shopping for cereal I must have seen the old boxes. It is exciting that corn chex will also be gluten free.

Thanks for all your suggestions. I asked because it seems like every other time I shower I somehow end up with shampoo in my mouth no matter how hard I try not to. I just figured it would be easier to have all my products gluten free especially since I like being outside and when reapplying there isn't always somewhere to wash your hands.

Thanks again!

Hello,

I was diagnosed with celiac disease almost two weeks ago. I only went through the tests because of an off handed comment I made to a doctor about some D. A couple of months later I got the diagnosis after blood tests and biopsies. My symptoms (thankfuly) were never very bad. It was intermitent. How do I know now that I have succeeded at becoming free of all Gluten. I am sharing a kitchen with two roommates who are trying to be careful, and I am being very careful about checking ingredients so I haven't ingested any that way. How do I know that I'm not getting any from my kitchen for example? I have washed everything down, but right now just don't have the money to get all new dishes. I did get new spoons and spatula. I am going to find a colinder and cutting board when I can. How do I know that I have succeeded as I don't feel too different except tired and hungry?

Thanks.

Hi,

I was wondering if anyone knew where I could find a list of gluten free shampoo, conditioner, body wash, sunscreen, make-up? I found the list of ingredients in foods that shouldn't be eaten. I was wondering if there was a similar list for body products.

Thanks.

My dd reacts to the Honey Nut and Corn Chex....I don't think it's gluten though, but rather the whole grains b/c she's fine with the Rice Chex. I also seem to have a problem with most whole grains, we've really had to cut back on the baked goods ( I use brown rice flour) and whole grains in general. Why we are having problems with grains now after years of gluten free has me completely stumped, but I guess the journey with Celiac is never ending.

I really think the Rice Chex is gluten free.....my dd is a good gauge of any tidbit of gluten b/c she is super sensitive, and these don't give her a problem. Hope that helps.

Corn Chex are not gluten free, also it does not say it is on the box.