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The genetic testing wont tell you if you have celiac, but it will tell you if you have one or both of the two identified genes that cause celiac. 

Hello. 

I have had to deal with this with my therapist. I have a new therapist now than I did when I was diagnosed. It was months for me between the blood tests and the endoscopy so my first therapist got to learn all about celiac as I was learning.  It seemed for a while I was talking with everyone about what I was learning as a way to cope. However, my current therapist had to get some crash courses on Celiac from me. Therapists wont know about every medical illness that a client can have. I agree with the others about providing her some written material to read and then provide information about how it impacts you specifically given that it is different for everyone. I would provide the information given how much stuff is out there that does not take us seriously and you don't want her finding that stuff. The first few sessions of therapy are often giving background, and for you this is a major part of your background. 

Thank you everyone for your recommendations. It has really helped. 

I will be traveling to Chicago with family in 2 weeks. I was wondering if people had recommendations on good Restaurants there. I will be there for 3 days. We will have a car to get around. Any assistance would be appreciated. Thanks. 

I'm meeting up in Chicago with my family. None of us live there. I was wondering if people have suggestions for restaurants there that are good. I will be there for 3 days. Any recommendations would be wonderful. Thx. 

Judy: Smoke salmon. yummy! It is my favorite fish ever. You should try it. 

CyclingLady: Energy is so awesome. 

Bartfull: Yes. Sleep is so wonderful!

I've been gluten free for 6 years this month from the day after I got my diagnosis. It is hard to believe that it has been that long. I knew I needed to go gluten free immediately or I would keep putting it off. I've learned so much. I'm so glad that I am feeling better. I am still emotionally coping with having to give up dairy about  2 months ago but I know I will come to terms with that too after I figure that all out.  I am doing so much better after going gluten free. All of the symptoms that had been developing since I was a child and had never been seen as connected to one condition (and some which I didn't even know were not normal as they had been around for so long,) have gone away and pretty much only come up when I get glutened again. Along with this I finally found a GI doc who I like. I was talking with colleagues today about our teenage years and so many things seemed to start about then. The relief from my depression that came with going gluten free which was just getting worse as I got over is like nothing I ever remember experiencing before going gluten free. It was such a relief today thinking back to that time and how much better than that it is now. I can't imagine what it would have gotten to had I not gotten diagnosed then. (And I know that people here have experienced that). The best thing from the diagnosis for me was the relief from my severe depression which had lasted for 12 years without relief. 

What was the best improvement in symptoms that you had when you went gluten free? Which one are you most happy to have gone? 

I found my cat's food was causing me problems. I transferred them over to gluten free food and it helped cut down my gluten cc a lot. Even thought I washed after feeding them and before cooking, they liked to clean themselves after eating and I think that it was then transferring to me and things they moved around to in the house. 

I also second that it could be a new issue. I recently had to go dairy free because I started having D. But I had been fine for almost 6 years after going gluten free before starting to have (identified) issues with dairy. 

Thanks everyone. My supervisor went in and wiped everything down and vacuumed. I'm hoping that does the trick. I was in the room for a couple hours the other day and it was okay (whereas before the cleaning I got really sick before the cleaning.) So i'm hoping it is better. I'm just waiting to go into the other office to make sure it has been cleaned. It is complicated because these are the general work spaces that out of office staff (like myself) are able to use. Luckily at the other office there are two rooms and only one got remodeled. I know that all sounds very confusing. Thanks everyone. 

I started having intermittent problems with D and it ended up being dairy that was causing problems. I removed that and things got better. Good luck. 

I drive for work too and have to find foods that I can eat while between jobs. I use sting cheese (well used to before having to go dairy free), carrots (i buy baby carrots and throw them into a  bag), chips (I find corn chips work best), beef jerky  (oberto brand original is gluten free), pepperoni (I just use sliced pizza pepperoni), there are these crackers at Kroger that I get that are gluten free but I don't know if they are nut free (I know they have sesame seeds). I will also buy other prepared vegetables from the store and throw them in a bag together to make a "salad". I hope this helps. Think Thin bars are gluten free (don't know if they are nut free-some definitely are not) and I will eat those. Also applesauce pouches are really easy to eat while driving. It ends up being like drinking applesauce. There are multiple flavors. I hope this helps. 

They did construction at work last week. I spent a couple hours in the room where it was done last Friday and then was sooo sick on Friday night. I have asked my supervisor to have everything wiped down and the room vacuumed. While this wasn't at my main site, they are also doing construction at my main site where I work. What else needs to be done to make it safe for me to go back. Luckily I'm not in my work place every day because I work in the field, but I don't want to be sick when I go in to work. Any advice would be great. Thanks. 

This giving up dairy thing is ending up being so much harder emotionally than giving up gluten was. I'm sure if I was just giving up dairy and could still have gluten it wouldn't be this hard. It is really both of them on top of each other. One of my clients was talking about pizza today and it made me so sad. When I was first diagnosed with celiac I reminded myself it could have been worse, I could have had to give up dairy too as a lot of people do. I don't want to sound like a whiner, but this just SUCKS. Dairy has always been part of my favorite foods. 

I didn't actually know about the inflammation in the colon from the first time until my new GI was looking at my records. My new GI mentioned that it was in the same place this time as the first time I got scoped. I moved right after my initial dx so this is really the first time I've done much to follow up medically except for being gluten free as the first GI I was referred to after I moved was awful. And since I was in school didn't have the time or money to deal with trying to find another doctor. Long story short, I haven't taken anything for the inflammation. The GI wasn't sure what was causing it. But I see her again in a couple of weeks. 

Thanks everyone for the food advice. I will be putting them to use. I did find the earth's balance and have been using it for butter. It has been going well. I also tried the Daiya cheese, but didn't like it very well on pizza more than just a sprinkling. 

"What, flour has wheat in it?" 

My digestive tract is much happier now that I am dairy free. But I'm definitely feeling some depression about it. I tried some Silk milk, but didn't like the thickness of it. So I will be trying something else soon. I was happy to find out that my donuts don't have dairy. Does anyone know what I can substitute for butter in baking? Thanks. 

Thank you both. My doctor wants me to be really strict at first. Ugh. So much stuff has dairy in it. I feel like I'm back to the figuring out what is gluten free again. I'm just trying to figure out what for now I can have for meals. As all my easy go tos have diary. 

The good news: The biopsy of my small intestine and blood work show no sign of celiac. Yay for the gluten free diet working and all my careful eating. Yes I will continue to eat gluten free, but nice to know the hard work is paying off.  

The bad news: They don't know what is causing the inflammation in my colon (which apparently .is in the exact same place it was when I was diagnosed).   They also don't know why I was passing and throwing up blood, except they said that it might be stress. Good luck getting that to go away with my job.

What I really need help for. The doctor wants me to go diary free to check and see  if that helps with my D that I have been having. I'm really sad about having to give it up. I eat a lot of dairy. The help I need is finding replacements for the dairy I eat. I don't even know where to check for dairy in my diet except for obvious places (milk, cheese etc). Any advice from people who are diary and gluten free would be really helpful. I'm not that good of a cook, so I need help. I also use dairy for protein, but don't like beans and don't eat a lot of meat. So help there would be appreciated. 

If you wear makeup you are going to have to check with the makeup companies to make sure that the makeup you are wearing is gluten free.  Also check out your soaps and conditioner and facial products, lotions etc.  Most of the information lines are only open 9-5. Check any over the counter medication that you take for gluten. Good Luck. 

I don't think it is funny. While we can see it as a comment on the larger aspects of society, kids with celiac (and other medical conditions) are bullied by other kids enough. They don't need to be made fun of by adults too. Even if it is social commentary. A kid who sees this isn't going to see the social commentary, just another thing that shows it is okay to make fund of kids with celiac. 

Hi,

I just saw this thread. I have a number of issues. 

1) Trust: Being able to trust the restaurant that I want to eat at. That they aren't going to make me sick because they are doing stupid things. The one that blew me the way the most and has kept me from eating anything at their restaurant was when I went and they had their french fries on their gluten free menu (yay for me as I hadn't had french fries except ones I made in over 2 years) and when I was asking questions about them they said that while they had a dedicated gluten free fryer, when things got busy they would just throw everything in whatever fryer. But yet they had their french fries on their gluten free menu. 

2) Dessert. I want a yummy satisfying dessert that isn't ice cream. I love ice cream, but when everyone else can have cake and cookies and other nummy looking and smelling desserts and I'm left with ice cream, it makes me sad. 

3) Cinnamon rolls!!!! I have not had any good fluffy cinnamon rolls, I've tried Udi's and they just don't cut it though I love their muffins.. (I have cravings for Cinnabon cinnamon rolls). Everything is so dense across the board when it comes to baked goods. 

4) Being taken seriously.By wait staff and friends and the public in general. That we aren't asking questions to be obnoxious. That it isn't something to joke about. I want to be able to go out with my friends to eat and not have them feel uncomfortable because I can't eat with them. 

I found I was getting glutened when I ate at shared computers at work. It forced me to take a break to actually eat lunch. 

Thank you everyone. This is the first time I've had to deal with this as most people stopped giving me food once I was diagnosed. This relative being the exception. 

I got food as gifts from my extended relatives. They often give food as gifts. Last year my relative searched a lot for a baking mix that went with a cookbook and was gluten free. But I don't think they really understand what gluten free means. This year everything she sent me food wise contained gluten. I am very thankful for the gifts that they gave me. I don't know if I should mention when I thank them for the gifts that they got me that I will be sharing the food with friends since I can't eat any of it. I don't want them to think I don't appreciate the gift, but I don't want them going and buying me food year after year that I can't eat. Any advice? Thanks. Just another piece of information. Since I live on the other side of the country I don't see these relatives so they don't understand about the whole gluten free thing as they haven't been part of that part of my life as I was diagnosed after I moved. 

Depressive episodes are one of my symptoms of being glutened. I had horrid depression growing up and was hospitalized because of suicidal ideation. Now I only get suicidal like that after being glutened. Sometimes I still get depressed, but not nearly so bad. So yes depression can clear up because of being gluten free.