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BlueTaelon

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by BlueTaelon

  1. BlueTaelon
    Shots? You poor thing! They haven't done those in years, I hear they were very painful. Both my kids have CVID and 1 receives Ig therapy. Now you have a choice of monthly IV which is done over several hours or weekly sub-q therapy at home. I wouldn't credit it for any long term benefit the Ig only lasts about 21 days in the body then you need another infusion...
  2. BlueTaelon
    Honestly I didn't realize I had been in pain until the pain was gone. I was sent back to GI because I kept ending up in the ER with heart issues/muscle cramps due to chronically low potassium/magnesium levels. They did an EGD and found that my intestines looked good but I had atrophic gastritis caused by B12 deficiency and malnutrition. Rather then do a bunch...
  3. BlueTaelon
    I was told 3 years ago that I had pancreatic insufficiency caused by chronic pancreatitis as a direct result of celiac. If you google "exocrine pancreatic insufficiency celiac" you will get a lot of information. I was started on Pancrease MT 20 at that time and I've been fine since as long as I make sure to take the enzymes with every meal/large snack. ...
  4. BlueTaelon
    I ran into the same problem with our GI and he swore even a week would be enough to get + biopsy. I tried and dd reacted to badly, I ended up going behind his back and had DNA testing done and of course she came back + for the gene. He kind of backed off a bit but did state we can just test her when she's in her teens and hits the rebellion phase and starts...
  5. BlueTaelon
    I agree and they haven't ID'd all the celiac genes yet I don't think. I was gluten-free for a couple of years for my dd who reacted strongly to my eating gluten when she was nursing and I got really sick when I tried eating gluten again around a year of gluten-free. Neither of us could stay on gluten long enough to get a + test the symptoms were so bad. We...
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