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MaryannG

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Latest Celiac Disease News & Research:

Everything posted by MaryannG

  1. MaryannG
    My 4 1/2 year old has been diagnosed with celiac since she was 18 months. This has turned into a blessing because it never bothered her that she couldn't eat gluten... until now. Up until this point she woudl say she can't have it beacuse it has gluten, or as if it has gluten in it. It's almost like she takes pride in things being gluten free. Recently...
  2. MaryannG
    I had something similar. My daughter had severe constipation, failure to thrive, poor growth, and a distended belly. Her first GI tested her and said it came back negative. Well mothers instinct told me to go to another one. Thank God I did because he looked at the bloodwork and low and behold they didn't test all the levels needed. I am looking at my...
  3. MaryannG
  4. MaryannG
    My daughter is attending camp next week and they are having themed crafts made with food that they can eat. I called and got a list of things so I know what I should bring. Although I have no problem with her not being able to eat everything when we go out, at camp I'd really like her to be able to participate in this. They are making something with licorice...
  5. MaryannG
    For those that don't know, Bisquick is coming out with a gluten free version. It's already mnetioned on their website! I can't wait to try it! RIght now they are just saying the summer. The recipes look really good! Open Original Shared Link
  6. MaryannG
    I totally understand the frustration of people not wanting to get tested. My daughter has celiac and my husband and I got tested, which both came back negative. The GI dr says to get tested every 3-5 yrs. My other daugthers will also get tested every few years as well. We don't know which side of the family carries it, but my husband I each each have...
  7. MaryannG
  8. MaryannG
    By far this is the best flour mix I have tried: Brown rice flour (extra finely ground) 2 cups I use Authentic foods (a 3 lb bad is $15 but so worth it) potato starch NOT FLOUR 2/3 cup Tapioca flour 1/3 cup mix together and enjoy. It tastes almost identical to regular flour. I got this from Gluten Free baking classics by Annalise Roberts. An incredible...
  9. MaryannG
    I recommend Namaste Cake Mix or Pamelas (my first choice is Namaste). I add choc chips just cuz I love chocolate. I use Betty Crocker smooth and creamy chocolate icing, or anything else right off the shelf that doesnt contain wheat. I don't buy gluten free labeled icing, I just check the ingredients. If you have time, I also recommend Gluten Free Baking...
  10. MaryannG
    Personally I would do the celiac panel but like someone siad your child will need to eat plenty of gluten or else you will get an innacurate result because you need gluten in your system to tell if you have celiac. The only reason I would do this is because you can grow out of an allergy but you can't of celiac so if there is any chance of growing out of...
  11. MaryannG
    Jenny, If you are think you might be giving your child gluten but are unsure, perhaps see a nutritionist. It really helped me! I made a food log by brand name of what my child ate and was able to determine the culprit! good luck!You can always post questionable foods on here and we can all help you determine if it is gluten free.
  12. MaryannG
    Chex used to supposedly be gluten free, but they still contained malt. They took this out and the boxes that sayd Gluten Free on them are fine acording to the customer service at Chex. Incidentely, Vans waffles did the same thing and then they fixed the problem.
  13. MaryannG
    I would go to a gastro. Most peds don't know much about celiac. In fact, when my daughter was first tested her first gastro read the results wrong, we went to another one because I didn't feel like I was gettin anywhere by just giving her plenty of fruits and veggies, so the second gastro caught the mistake. So not all gastros are even perfect! Even if...
  14. MaryannG
  15. MaryannG
    That is wonderful that your school is so good! Everyone should be aware that the law MANDATES that kids should be able to get a gluten free meal in school. This goes beyond a salad or rice cakes. It should be a hot meal and meet the nutritional requirements. At our celiac meeting a woman from DC came and spoke about the legislation that passed for this...
  16. MaryannG
  17. MaryannG
    can you get the cupcake maker mixes in a regular store?
  18. MaryannG
    I thought I read somewhere a while ago that you can make or buy gluten free recipes for the easy bake oven cake mixes? Does anyone know anything about this?
  19. MaryannG
    ABSOLUTELY get him tested! If it is in your family, it is a red flag, plus his symptoms are pretty common for celiacs. There are so many signs on celiac, that not growing isn't the only sign to look for. Some people show no signs at all, but it is a heriditary disease and so many people are misdiagnosed. If he doesn't get diagnosed and eats gluen, it...
  20. MaryannG
    I am looking for advice on how to handle gluten free at pre-school, although this probably applies to elementary school as well. I have started drafting a letter to list the food my daughter can't have and some typical snacks she can have. I just want to make sure the school doesn't mess up giving her snacks that aren't gluten-free. I plan on supplying...
  21. MaryannG
    I use Authentic Foods ultrafine brown rice flour. It's hard to find, I have special ordered it and I believe amazon might have it. I know Whole Foods does though. I blend it with a few other things which I can't think of right now but I can get you if you want to send me an email. It is the best I have found! It doesnt taste gritty at all and it very...
  22. MaryannG
    I can't believe your dr said she could cheat. That is insane. My dr says absolutely no gluten. Any little bit still destroys the intestines. Please don't listen to that dr. In my opinion you might want to shop around for a new one. I have been to 3 gastros. The first told me she didn't have celiac, it tunrs out she didn't look at the blood work correctly...
  23. MaryannG
    We just had my daughters party and we only had gluten-free food. I served tostitos, cheese doodles, potato chips, fruit and a gluten-free cake and gluten-free choc chip cookies. People couldn't believe everything was gluten-free and it was great! I didn't do the meal thing but if you want to you could make a pasta salad using schar pasta (I find this to...
  24. MaryannG
    My daughter was 19 months old when we got the upper endscopy done. I think it was worse on me than her! The hardest part was not giving her anything to eat or drink beforehand, but we had the test first thing in the morning. I think it is the best thing you can do for your child, and although it is very scary to put them under anesthesia so young, trust...
  25. MaryannG
    What do you use for a breadcrumb replacement? The only thing decent I found so far was by Schar. I'm looking for something close to the regular breadcrumb taste. Any success in this area? I would prefer not to make my own, as I did see the Chex recipe post. I will try those, but it would be really nice to be able to just buy a decent brand!
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