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BlessedMommy

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Latest Celiac Disease News & Research:

Everything posted by BlessedMommy

  1. BlessedMommy
    I was beyond thrilled to find Minnesota grown wild rice for only $1 per 12 oz bag! Now, I need to figure out what to do with it. Anybody have any recipes?
  2. BlessedMommy
    Can you get a DH biopsy done? Many people with DH test negative on blood work.
  3. BlessedMommy
    Did your test cover the alpha and beta parts of it? Do you mind if I ask you what your results were?
  4. BlessedMommy
    If someone can "tolerate" 20 PPM of gluten, does that mean that your body essentially doesn't recognize that small of an amount? Do people's body's abilities to "recognize" gluten vary?
  5. BlessedMommy
    I talked with my mom on the phone and I again asked her to please consider celiac testing. Crossing my fingers and hoping that she does eventually--for her sake as well as for mine.
  6. BlessedMommy
    I've been wondering that very thing as well and I'm not looking for permission to cheat either, so I understand where you're coming from.
  7. BlessedMommy
    Thank you! For years, I'd been overly careful about vanilla and vinegar, now I can possibly have more options. So good to have a community where we can ask questions and learn. So, the generic term "vinegar" always refers to white vinegar and if it's malt vinegar, that's clearly specified.
  8. BlessedMommy
    Okay, something that I don't understand, if you just see the word "vinegar" on a salsa label or salad dressing label, can you assume that that vinegar is gluten free? Or not? I've heard such mixed reviews (and I know that vinegar is typically made from grain) so I play it safe and don't buy any salad dressing or salsa with vinegar unless it's either labeled...
  9. BlessedMommy
    I see. So it really isn't very helpful, because it can't rule it out?
  10. BlessedMommy
    What is the disadvantage of only testing for the beta?
  11. BlessedMommy
    I don't go to doctors much at all. I even had home births with all 3 of my kids. I don't get routine check ups of any type at Dr's. I only go if there's a dire need (like UTI or 2nd degree burn or something) or go to the ER in an emergency, like when I had my TIA or when I cut my finger badly and needed it stitched. Being uninsured makes it financially...
  12. BlessedMommy
    Dinner tonight is lentil burgers, salad, and fried polenta.
  13. BlessedMommy
    Does it do the complete testing, though, alpha and beta?
  14. BlessedMommy
    You know, something recently occurred to me. If I got to a celiac potluck, should I even eat the food there? Or should I find out what the celiac's practices are who cooked it? There are many celiacs who will do stuff like discard the bun and eat the burger. I also don't really know if they cleaned their house out and got rid of old pans and utensils after...
  15. BlessedMommy
    Gemini, which lab or provider did you get your test through?
  16. BlessedMommy
    No offense to anyone else who feels differently, but personally I feel fine with going along with the University of Chicago research. Being that they are the leading celiac researchers, I will accept their findings. And as of now, they're saying that unless you have either HLA-DQ2 genes or HLA-DQ8 genes, you cannot develop celiac. Perhaps in the future, they...
  17. BlessedMommy
    Thanks for the recommendation! I'll look into getting it on Amazon. I have a tortilla press and have made lots of corn tortillas in the past, but prefer to switch to organic or non gmo masa harina and it's much harder to find than the regular.
  18. BlessedMommy
    Thanks for all the advice and thoughts. I know there's a lot of different viewpoints on the genetic tests and it's good to hear both sides of the coin. I wish that NCGI was better understood and I wish that there was a way to test for celiac without a gluten challenge. In the future, if they make a test like that, I'll be the first in line to take it. LOL...
  19. BlessedMommy
    I bought the flav-organics brand which says gluten free right on the front.
  20. BlessedMommy
    I'm fortunate in that I'm very healthy. I'm 32 and I would say my health hasn't been this good since I was about 16. So apparently the gluten-free diet has been working really well, because my health had started to go downward in my early 20's. I have a mom and older sister who both have very poor health (whom I suspect have un'dx'ed celiac based on their...
  21. BlessedMommy
    *giggles* That list of celiac stuff is too funny! Our grocery bill is kind of high, but that's not all due to gluten free, but also because we buy a lot of organic. I try to not pay full price for most of our gluten free pre-packaged stuff. The kids' pretzels that they're eating this morning were 65 cents a bag and the loaf of bread that I'm toasting...
  22. BlessedMommy
    I'm so sorry for all that you've been through. I'm undiagnosed (but maintain a 100% gluten-free diet) and I think that it's best to get a DX while you can. Adding gluten back in later can be extremely difficult or impossible, if you ever want a DX later on. Like the PP said though, it's a personal choice that only you can make. Best of luck!
  23. BlessedMommy
    I am definitely having a hard time deciding which way to go, especially being that I'm uninsured so I can't afford to choose the wrong/unhelpful way since I have to pay for every penny of it OOP. Thanks for understanding and being patient with all the questions. I've done a whole hoard of google searches too. I know there's no looking back, I'm definitely...
  24. BlessedMommy
    I see, thanks for your explanation.
  25. BlessedMommy
    My doctors initially didn't know what my problem was and didn't even suggest the possibility of gluten. I eventually had to figure out myself that gluten triggered my problem. By the time I was gluten-free for a few months, I was wanting a DX, but I ended up having major troubles with the gluten trial and abandoned it rather than going on to have a full blown...
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