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Chalula88

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Chalula88

  1. The cinnamon chex make me very, very ill as well. This is the first time I have ever gotten sick from a gluten free food. I am pretty sure it is some kind of gluten CC because I have eaten all of the ingredients in other foods without a problem.
  2. I, like Gemini, have not really had any trouble finding safe foods. I always read every single ingredient every time I purchase a product, even if I've purchased it a hundred times before - this has saved me from a number of glutonings. I buy all of my food from the regular store aisles, not from the "specialty" aisles, with the exception of two products...
  3. Does anyone know if soybean malt contains gluten? It seems, from what I've read, that it does not contain barley, but I can't tell for sure. It is an ingredient in an otherwise safe Korean hot pepper paste. Thanks!
  4. I have a TON of gluten free (but not dairy free) food in Cincinnati, Ohio. I can't use it anymore because I found out I can't have dairy. There is a TON of stuff - cases of Mrs. Leeper, different kinds of chips, mac and cheese, soups, TV dinners, etc. I'd prefer to sell, but at this point I'm moving and just need it gone, so unless I get more than one...
  5. In my experience most restaurants do not have a gluten free menu and most of the ones who say they do, really don't (they use the same fryers, ovens, work spaces, etc.). I really only trust Chipotle (everything except their tortillas are gluten free)and P.F. Chang's (they have a separate kitchen and large gluten free menu). When I hang out with friends...
  6. Going dairy free was way WAY easier for me than going gluten free. I don't miss dairy at all. I used to love cheese, but I never drank milk, used butter, or ate yogurt, so cutting it out wasn't a big deal for me. I just stopped using cheese, which wasn't even noticeable because I almost immediately converted to a whole foods diet. I feel happier and...
  7. One important thing to note about oats is that just because you feel okay when you eat them doesn't mean it is definitely not harming your intestines. I think it would be a good idea to get your villi and/or blood checked after eating oats to make sure everything is doing okay.
  8. I always get sick when I eat oats, no matter what. So I don't eat them at all. Try cream of rice, it's good. Personally, I wouldn't risk oats so soon. I don't buy gluten free rice, but I buy it in bulk at an Asian market and it comes from a rice only facility and is unprocessed. I don't know if there's a risk ordinarily. It might be good...
  9. I cannot eat oats for that reason and for stomach problems. A lot of people intolerant to gluten also can't stomach oats. I'd just cut them out. Try cream of rice or rice pudding instead.
  10. I understand how you feel. It took my sister getting really really sick before she and my parents would listen to me. My mom knows she has problems with gluten, but takes a pill that "makes it all better" instead of change her diet. My brother has many classic symptoms of gluten and casein intolerance but said he refuses to get tested because he "doesn...
  11. Yeah, it really is ridiculous that doctors don't know anything about it, especially with its prevalence. I hope that changes in the near future. Just as a quick point, you might want to look up calcium and milk. Most new research has indicated that milk actually leeches calcium out of your bones, causing osteoporosis. The link between milk and bone...
  12. How long did you do the elimination diets? My understanding is that it can take a year or more to heal your villi on a vigilant elimination diet. Not to be knit-picky, but if you've "tried dairy", which it sounds like you may have done on more than one occasion, you are essentially starting the diet over again as even the tiniest bit could be causing substantial...
  13. The gluten free diet will only solve medical problems related to consuming gluten in the first place. It's possible you have medical conditions completely unrelated to eating gluten, but that doesn't reflect badly on the diet as you'd surely be worse off 9 years later if you kept eating gluten. It's possible you have other food intolerances. I have...
  14. I hit puberty at 12 and had pretty widely and unevenly spaced periods for about 2 years. I was about 5'1"-5'2" and 112 pounds at 12 and now at 21, I am about 5'3" and 105 pounds. I didn't know I was Celiac until I was 19, so I missed any chance at growing bigger. I never really *ahem* "developed", only sports bras are tiny enough and I pretty much look...
  15. I'm doing the honey thing right now, but my sister was advised to avoid honey for now. Just a note about it, make sure you buy local honey. If you don't, you won't build up immunity to local environmental allergies. Also, some foreign honeys have been found to be substantially corn syrup and not labeled as such. Your best bet is to buy it at a farmer...
  16. Hi jdrexler, My sister was just diagnosed with EE and identifying the trigger is probably going to be a long process. If you haven't already, you want to find a specialist who will do scopes every three months to check for worsening/improving symptoms. The only way to really find out what the cause is, is to go off something for three months, get scoped...
  17. I'm in Cincinnati, if that's anywhere near you. Feel free to PM me.
  18. I think my recent terrible symptoms are related to casein withdrawal. I'm starting to feel better again and my sister is doing great without milk. We're going to give that a while and keep food journals to try to catch anything else that comes up.
  19. Ordinarily, I don't eat any pre-packaged food that has any dyes, preservatives or more than 3 ingredients. The three days I posted are just the days without dairy where I had to find something else to eat and those were the things I had. That is not at all my typical diet. I don't eat pre-packaged gluten free foods, except very occasionally bread...
  20. I'm more than willing to make dietary changes. Unlike most people, I'm not attached to the foods I eat. I'm not a foodie at all and I just want to be healthy. So I don't really care about finding alternatives for the things I normally eat, I can just stop eating them. But now I am feeling a little overwhelmed, because I'm not sure what I can eat...
  21. Thank you pricklypear, I don't mind tedious or boring, I'm willing to do anything that will work!
  22. Yes, my sister's doctor thinks that she has EE. She has already seen a really good specialist. The problem is, they can't figure out what food is causing her symptoms. She has no symptoms from most of the food she tested positive for and severe symptoms from food she tested negative for. So we have no idea what to have her avoid. Right now she is avoiding...
  23. Thanks so much for the replies! rosetapper, thanks for the links, I will look into it! My sister tested as not nutrient deficient, so I'm not sure that that could be the cause. My parents were told my sister is allergic to mold and thoroughly cleaned their basement (though found no mold there) and her symptoms have not changed. I live in an apartment...
  24. Thank you so much for the replies! No food journal yet, I will start one today, any tips? I gave up soda and caffeine about 8 months ago and I have felt better since then, though the better feeling leveled off and started declining and now I feel pretty much back to my previous exhaustion level (this seems to happen with any food I try eliminating...
  25. I have been gluten free for a little over 2.5 years (since age 19). I had extremely severe symptoms throughout my entire childhood that were mostly ignored by doctors as "nervous stomach". I had severe stomach aches almost every day, alternated between D and C, was tired, depressed and anxious all the time, as early as I can remember. After reading...
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