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Benshell

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Benshell

  1. Benshell
    Hi - I'm the "good news" poster. WHen my child was diagnosed, I didn't know any better and the first year was a learning experience. Once my daughter moved up to elementary school (k-1 is in a seperate building), the vice prinicipal is the one who actually approached me about the 504plan - which I know from others probably never happens. So onece you get...
  2. Benshell
    My daughter has celiac and no one else in the family does. I make our family dinners 100% gluten free - MOSt of the time. My husband complains that when I make food with gluten free substitues - like gluten-free pasta or bread, he gets constipated. I tried going gluten-free due to thyroid issues and felt great for about a month until I started getting really...
  3. Benshell
    Quick question, my daughter who has celiac has started to complain about armpit oder. Her pediatric endo said she can start using deoderant/anti-persperant, but it must be gluten free as well as fragerence free as the fragrences can cause irritation/rashes as well as spur on hair growth (she has none yet). Can anyone recommend a good deoderant for my 9 year...
  4. Benshell
    I cook ALL of the holiday meals for our family/extended family. However, I started doing this before diagnosis just because of aging parents. I make mostly gluten free dinners and I tell my daughter ahead of time what she can/can't have. She always takes first and takes plenty as I don't want her taking 2nds in case of contamination issues. When we do go...
  5. Benshell
    We're venturing into camp possibly this year. I have the luxury of working from home, so previous summers my daughter did 1/2 day enrichment programs. The first day I spoke to the counselor and explained about my daughter and simply said - it needs to be treated like a severe peanut allergy. I know its not, but it tends to get their attention and usually...
  6. Benshell
    The chances of a false positive are almost none, false negatives are more common. Also, once you have one auto-immune disorder, the chances of having another, increase dramatically (you mentioned thyroid disorder and diabetes). I felt the same way when my daughter was diagnosed - like what else can go wrong, she's got no thyroid (been on medication since...
  7. Benshell
    First - it is not your fault! Whomever was left in charge was responsible for giving your son gluten. Had it been a severe peanut allergy, would they have not said anything??? I found water and sleep are the best medicine for being "glutened". He needs to get it out of his system to feel better. I know its not a medical treatment, but the only thing...
  8. Benshell
    I know this may be long - but for all those struggling or just starting out...please read, I guarantee it will make you feel better. I think back 3 years ago, my daughter's stomache was bloated, she hadn't grown in 10 months, she had dark circles under her eyes, belly aches and BM 5 times a day. When I first got the call from my daughter's doctor saying...
  9. Benshell
    my 8 year old has celiac, was diagnosed when she was 5. We have not had the genetic tests done in the family (too expensive $), but we've all been tested for celiac and no one in the family has it (parents, grandparents, aunts). I know there is a genetic componant to celiac, but not always. My daughter has a thyroid problem and once you have one auto...
  10. Benshell
    My 8 year old daughter is doing a research project on Celiac Disease. She is in the gifted & talented program at her school and they are required to do an Independent Research Project which will result in a paper, oral presentation for her class and a presentation in from of her peers grades 3-8. She was diagnosed with Celiac at age 5 and has done wonderfully...
  11. Benshell
    Best way to answer you is to tell our story. My now 8yr old was diagnosed with Celiac at age 5 via blood work (symptoms - frequent BM, lack of growth, big belly). The pediatric gastro wanted to do a scope - saying it was the "gold standard" of diagnosing celiac and it was the "norm". When I heard they put kids out completely, not a twilight sleep like...
  12. Benshell
    I'm hoping some experienced parents can help me figure this out. My 8 year old daughter was sent home sick from school yesterday. The school nurse said that several kids were sent home sick with a "quick stomach bug" that is going around. This was at 3pm (she got sick at about 2:30). She was throwing up about every 1/2 hour, fell asleep for an hour and...
  13. Benshell
    My daughter is going into 2nd grade and I've spoken to the teacher about her celiac and the precautions that need to be taken, not just with food (she knows what she can/can't eat), but with contamination, school supplies (glue, paint, etc..). The teacher was very nice and concerned and asked me to come into the class on the 2nd day of school to give a little...
  14. Benshell
    My now 7 yr old was diagnosed a year ago at age 6 was also almost completely asymptomatic..just a few tummy aches and no one in the family has celiac, so it came as a complete shock when the blood work came back positive. We decided to skip the endoscopy and just try the gluten free diet and then recheck her bloods - which 6 mos later were completely normal...
  15. Benshell
    Just need some help/feedback/examples. My 7 year old daughter was diagnosed last year with very few physical symptoms (tummy aches, frequent BM, lack of weight gain/growth). We've been gluten free for a year and she's done excellent...in fact after 6 mos her #'s were back to normal. In the past year, she's had accidental glutening perhaps 3 or 4 times. It...
  16. Benshell
    I admit it..I'm an over controlling, overly cautious mom. It's been a year now and we still only eat at restaurants with gluten free menus. Most important point being is that the staff (cooks through servers) have been properly trained to avoid contaimination. A year ago I called fridays and asked them about gluten free and I was told they cannot guarantee...
  17. Benshell
    My 7 yr old was diagnosed with celiac based on bloodwork a year ago, she had almost no symptoms (just not growing for a year and some tummy aches). We also skipped the endoscopy choosing to try gluten-free and see how her #'s went...since going gluten free, her #'s are back to normal. SO that was proof enough for us. Anyway, she has only been accidently...
  18. Benshell
    First - good luck on your move. Depending on where you are in TX (city vs. rural) will give you an idea of how easy or hard it will be to be gluten free. I'm from NY, but about an hour or so outside NYC...so it's probably pretty similar. Regarding Dr's - my daughter sees a gastrointerologist. He happens to specialize in celiac, among other things. I...
  19. Benshell
    We're thinking of taking our first vacation since our 6 1/2 daughter was diagnosed with celiac. In the past, cruising has been a great option for us and we all love it, but have never done it with her being gluten free. I've heard some wonderful things about cruise lines catering to people with special diets...but I've also heard some horror stories as well...
  20. Benshell
    My 6 1/2 yr old daughter was diagnosed with celiac about 7 months ago. Our dr is amazed that her #'s are now absolutely normal with a strict gluten free diet. She was/is feeling great. Problem is about a week and a half ago she started have only what I can call loose stool. It's only in the morning during breakfast (which is when her normal time to go...
  21. Benshell
    6 months ago my daughter was diagnosed with celiac based on blood tests. She didn't really have a lot of the "typical" symptoms...she had only gained 1 lb in 9 months and was having tummy aches frequently, so her endocrinologist had included a celiac panel with her normal thyroid bloodwork (she was born without a thyroid and been on synthroid since birth...
  22. Benshell
    My daughter is only 6, but loved playing dressup and make up before being diagnosed with celiac a few months ago. I have heard here and there that celiacs have to use gluten free makeup. Can someone explain this to me? I thought she only needed to worry about ingesting gluten. I can understand about lipstick or gloss b/c its on the mouth, but why the rest...
  23. Benshell
    My 6 yr old daughter was diagnosed with Celiac about 3 months ago through blood test. We chose to skip the endoscopy and just go straight to the gluten free diet as the gastro dr felt he would definatley find some minor damage. She had minor symptoms (tummy aches, no weight gain for 6 months). So we started the gluten free diet about 2 1/2 months ago,...
  24. Benshell
    I was very surprise to learn that Torches on the Hudson (newburgh, NY) has a gluten free menu. It is one of my favorite restaurants because of the food and the view of the hudson river. My 6 year old daughter was recently diagnosed with celiac and we were worried we would have to give up going to Nice restaurants for Uno's (not that there is anything wrong...
  25. Benshell
    My 6 year old was diagnosed with celiac via blood test, no outright gastro symptoms, just no weight gain for 6 months. We chose NOT to do the endoscopy also, due to the scaryness of the anesthesia (putting her completely out). The dr felt he would be "very surprised" not to find any damage in the endoscopy, therefore would put her on a gluten free diet. So...
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