nmlove

Hi there. I second cyclinglady. For what it's worth, my sons were diagnosed at 2 and 4 (VERY positive). The oldest was the only one who had an endoscopy, but GI doc at the time diagnosed my youngest son due to numbers and brother's diagnosis. Fast forward a few years and I was positive. I check my daughters annually and a little over a year ago, my oldest...

Hi there, You've had such wonderful responses! I just wanted to support the "keep on gluten and see the GI doc first" point of view. Having had to see a variety of specialists for a number of years, two months is quite decent and such a small window in the larger picture of life. My third child was diagnosed with a "weak positive" (by weak her...

Thanks HannahR67! From the very little I know and have experienced, the healthiest (for anyone) is more veggies and fat, then protein, fruit, carbs in moderation. Due to celiac, we definitely eat better than the average Joe but I have a feeling his T1D diagnosis will clean us up more. Pasta seems ok for him. Lots of insulin that he typically doesn...

Thanks so much!

I have heard both for the test and it isn't necessary from the doctors. My oldest had it done around the same age. The doctor said he likes to make sure they have time to play catchup before puberty. My son never had fractures, broken bones, etc. and it was found he had ostopenia! The endo wasn't overly concerned as he had celiac and was still healing get...

Is this a pediatrician or a gi doctor? I could see the reply from the one and not the other. My kids saw the gi doctor every 3months for awhile and then every six months until normal labs and now they go once a year. Doc checks not just celiac stuff (adherence to diet) but vitamin levels (particularly d and calcium), and also thyroid. Adult doctors...

I say chill. She's four. ☺ - says a mom to four kids. If it persists she will let you know it's a problem.

So sorry you're having to deal with this! My boys took awhile to go down - year and a half. For the most part it was a gradual trending down. However, they spiked back up and had symptoms return. Like you, we homeschool and we're strict. My kids don't react much to one glutening so to have symptoms return was so frustrating. I looked at what they ate...

Thanks cyclinglady! I know eating clean and lower carb helps me (not diabetic thankfully but have too many risk factors). It is definitely hard to rethink carbs, fats and whatnot with my son. While I know a roll will spike blood sugar more versus an apple, is it normal to keep it elevated for that long? It maybe that in that case he needs more insulin...

I'm sorry! When you find a person who tries and gets it, you will feel even more appreciative. Even with three kids with celiac - because people seem more concerned when one is a child rather than an adult - it was a huge learning curve. Even now, over six years later, I trust three people to feed my children: my mom (who later finally tested and was...

My 11 year old son was recently diagnosed with type 1 diabetes. He was diagnosed with celiac disease at 4. We eat a fairly clean diet, with many of our higher carbs coming from potatoes or fruit or similar. But we do have occasional baked goods or pizza. My question is eating such gluten-free items and having blood sugars go higher and remain high for...

I'm in the camp that thinks it was awesome of your son to have such a great attitude about it all and know not to eat it if he doesn't know the food. That's how my oldest has been from the get-go, and now his two younger siblings are as well. Sometimes you just can't do what others can. Simple. No drama. That said, I think the teacher should have given...

Skullgrl, thanks for the info. I am in the middle of reading the article. I love personal stories as it helps me visualize symptoms. A list of symptoms can really bring out the hypochondriac in me. Food bothers me neurologically as well - diagnosed celiac and dairy/egg/soy issues - so I shouldn't be too surprised if my son is too much like me. Who knows....

Yes, Colleen! I am so glad you mentioned this. I should have but wasn't thinking. My son is 9. It's very normal to have spots as you age. Heck, you can have a ton of neuro symptoms and have a normal looking brain. (I did when I had an MRI when I started experiencing hemiplegic migraines for the first time last year!) Nicole