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Seosamh

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Everything posted by Seosamh

  1. Seosamh
    Hi folks. If anyone is still curious about this topic. I bought Amazing Grass Organic "Amazing Trio" Barley Grass, Wheat Grass & Alfalfa Whole Food Drink Powder, which is labelled Gluten Free & Raw. And, right now (2 days after drinking it), after having put it in a juice, I feel very raw on the inside! I'm not 100% sure that this...
  2. Seosamh
    Our guts take a long, long time to heal. Do you visit any naturopathic doctors? They have helped me figure out what to take and what not to take--how to get my gut working, after a lifetime of it not working right. They focus on helping your body heal, not just diagnosing and medicating. Hope you feel better soon! Good luck--! Seosamh
  3. Seosamh
    Hi there,I'm writing today, feeling fairly well. I wonder how other celiac's who were long undiagnosed got through it. Are other people as angry at the medical establishment as me? At themselves? I still often feel depressed, wishing that I could have led a healthy life up until now. I always knew something was wrong--I wish I would have figured this...
  4. Seosamh

    Celiac, C'est Moi

    Seosamh posted a blog entry in Seosamh's Blog

    Here goes:This blog is a long time in the coming for me. I have "belly-ached" about my belly aches all of my life and had few interested listeners. I would have started a blog long ago, but I was just too damn angry. I'm still angry, but I have a better handle on it at the moment. So:After being sick for most of my life, I was diagnosed as a celiac at...
  5. Seosamh
    Finlay, I strongly agree with KVoght and others who've posted. I was not diagnosed as celiac for 30 years! I tended to avoid things like bread but was sick always with nearly the same symptoms that you describe. I went gluten-free, and could notice the difference in weeks. I'd say, let the MDs scratch their heads (they can do that for a long, long...
  6. Seosamh
    Hi, Anyone reading involved in a support group here in NYC? I live in Manhattan and would love to check my reality with other celiacs. I've seen some names listed and have emailed them but haven't yet heard back. best Seosamh
  7. Seosamh
    Thanks ST--drop a line when you come to NYC. I've been trying to meet other celiacs in NYC, but haven't had a lot of luck. I've emailed some coordinators of support groups, but haven't heard back from them. If anyone out there is actually in a NYC support group, could you let me know when a meeting will take place? Thanks, Seosamh
  8. Seosamh

    ARCHIVED Palm Pilot

    Seosamh replied to a topic in Coping with Celiac Disease

    Hi Dreamhouses-- I've got a PDA (palm pilot) with the downloadeded food and drug lists from Clan Thompson ($38). I love it and have benefitted from it--for instance, the drug list let me know that Maalox anti-gas tablets and Tums have gluten--something for a celiac to be aware of! Yes, maintaining your own list is a good idea also. And I believe...
  9. Seosamh
    Hi all, It is so refreshing to hear other people's perspectives on this! I can sympathize with Tammy a bit, however. My family initially took some convincing to even accept that I have celiac disease--and that it was a "real" disease. I'm amazed at the level of support so many folks on this list have had. My sweetie is my rock and lends me strength...
  10. Seosamh
    Hi Agee, I don't want to insult the medical profession--or maybe I do just a little--I think you should trust your gut! I did not for decades and instead listened to MDs tell me all sorts of things (such as that I was anorexic even though I ate and ate). Once I went off gluten, I knew it was the right thing for me. Months later medical science "proved...
  11. Seosamh
    BamBam, When I was first realized that gluten was the culprit behind so many secondary illnesses, I became depressed--or rather my depression became overt. One of the main things that has helped me is that my long-time partner started shopping for gluten-free things and even baking gluten-free cookies and banana bread--her devotion and support showed...
  12. Seosamh
    Hi-- In addition to celiac disease, I have hypothyroidism. Does anyone know if the various thyroid medications, particularly Armour Thyroid and the generic Qualitest Thyroid are gluten-free? I found this description below for Armour thyroid, but Qualitest seems a sketchy organization at best--their thyroid medicine was recalled last summer for faulty...
  13. Seosamh
    Thanks--
  14. Seosamh
    I've had joing pain for years, and it certainly seems related to celiac disease! Knees and elbows and wrists. Glucosamine + Chondroitin helps me--at least the arthritis end of it.
  15. Seosamh
    I don't know, but usually caramel coloring manufactured in the US is not made from gluten-containing grains. And, I think, Quaker manufactures in the US. In Europe, caramel coloring often has gluten--watch out for Ricola cough drops!
  16. Seosamh
    Yes, one often does feel a bit out of it for a day or two after a colonoscopy. I've had one and my girlfriend has had two. I certainly felt a bit bruised inside. I hope you figure out what's going on!
  17. Seosamh
    Thanks--I live in NYC, where eating out is the number 1 social activity. I'm really careful and avoid most of the menu--but I thought meat would be safe. Ah well. I'm still raging from years of misdiagnosis, many secondary illnesses, plus years of disbelief in an illness that I could have been diagnosed with 30 years ago. But, thanks. It is good...
  18. Seosamh
    Hi! Thanksgiving was great, but the day after is not! I've been sick all day--from something I ate last night, I'm fairly certain. Its the same sort of symptoms I had before going gluten-free on Jan. 28th this year (I'll never forget the day). I went out last night for Thanksgiving with my in-laws to their fav. French restaurant and had turkey w...
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