reeetz
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Latest Celiac Disease News & Research:
Everything posted by reeetz
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ARCHIVED British Born
reeetz replied to swiegie's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Swiegie, I have read many things about about European descent having Celiac the most. My boss, who is also from Scotland, printed out this article for me the other day from one of the newspapers in Scotland. It was talking about a women there who is making her own gluten free bread and how she will end up making so much money from her new business.... -
ARCHIVED Blood Test Came Back Normal...so Is That It?
reeetz replied to lissm's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Everything I have read says that you have to be eating gluten before you do the blood test. What I am wondering though is how long on the gluten free diet for it to come up negative? I was on the diet for 6 weeks before I took the blood test. The test came back normal. So..I decided to try my own test by eating gluten and guess what happened? The next... -
ARCHIVED Please Help, Scared And Unsure
reeetz replied to Mandy Armfield Jennings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Mandy... I just thought that I would put my input in on your situation. I agree with what everyone is saying. You do need to be eating gluten to have the blood test not screwed up. I also think a Colonoscopy is a good idea, but ask to see if you can get an edoscopy at the same time. The first doctor I went to said that he would "check" for Celiac disease... -
ARCHIVED Never Eating Gluten Again!
reeetz replied to reeetz's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you everyone for replying so fast and for the support. Luckily the Zofran is working I think for the nausea and the D has finally come to and end (hopefully). I don't think that there is anything left in me anymore. I still have the stomach pain but it is getting a little better now. I will probably try some Pepto soon to see if that helps. Flagbabyds... -
ARCHIVED Never Eating Gluten Again!
reeetz posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Ok...so I made a really stupid decision on Sunday. After getting back negative blood test after being on the diet for 6 weeks, I decided to test myself and see what would happen if I ate gluten. So I did. Now this is what I have been going through the last few days: Day I ate gluten: Got really really bloated that night and really tired. Nothing too crazy... -
ARCHIVED Gluten Reaction?
reeetz posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So I have been gluten free for 7 weeks after about 2 months of feeling awful. Once gluten free I started to feel great and finally keep food down. I had the blood test last week which came back negative(although I had been on the diet for 6 weeks already). I decided to do a little gluten challenge for myself. I had to know if gluten was causing the problem... -
ARCHIVED Suspected Celiac, And Feeling Very Lost And Frustrated!
reeetz replied to book-worm's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi book-worm. Well, what you described sounds almost exactly like what I have been going through as well. I had the same symptoms after some food poisoning a few months ago, and they just wouldn't go away. I too had a CT scan, ultrasound, even a colonoscopy. I just had the celiac blood test done last week which came back as negative, but I had also been on... -
ARCHIVED The Almost "Definitive" Celiac Sticky
reeetz replied to Wolicki's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you for posting this! This really does help encourage me especially since I don't have that diagnosis of anything specific yet, but all I know is that I have felt so much better on a gluten free diet! I can actually function throughout my day now! -
ARCHIVED I Need Help!
reeetz replied to reeetz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
They did mention that the elvated liver enzymes could be tied to Celiac, so that's why they wanted to do the testing. It was in the hospital that these liver enzymes showed as being elevated, but they just said it was for a number of reasons. This is all just so confusing! -
ARCHIVED I Need Help!
reeetz replied to reeetz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thank you for the response! The only reason why I am thinking of doing the gluten challenge is because I am doubting myself in the diagnosis. If I get sick then I will probably go gluten free again right away. I know I can't stand it again. But I just keep thinking to myself that maybe it was a coincidence that I felt better when I went off gluten. I guess... -
Hi Everyone! I need some help and advice please! I just got a call this morning from the docs office saying that my tests all came back as normal. They did the celiac blood test and a liver function test because I had elevated liver enzymes before. Problem is, when doing the test, I had already been on a gluten free diet for almost 6 weeks. When talking...
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ARCHIVED Celiac Blood Panel
reeetz posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I finally found a great doctor! I am just 5 weeks too late though. I started the gluten free diet 5 weeks ago and feel sooo much better now. I went to see a new doctor today...who was great. Since I hadn't had the Celiac blood panel before, she wanted me tested for it. She of course did mention that because of the diet, the results could come back normal... -
Hi! I have a little problem here. I was really sick for a few months after food poisoning and had a lot of testing done, all which came out negative. None of these tests were for Celiac though. I hated the doctor I saw so I made an appointment to go see a new doctor. The problem is that I have already started the gluten free diet and I feel much much better...
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Tammy, I am having the same problem right now! I was also told that I would be tested for Celiac (through a colonoscopy) which came back negative. Although I should have been having my small intestine tested! Of course it came back negative! The doctor didn't even run the blood panel to test, he just said that he thinks my symptoms are too severe and that...
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Thank you so much for posting this. Like so many others that have posted, I am going through the same thing right now just beginning this diet. Although it is helping tremendously, I still have those days that are awful. This was perfect timing for this post because I had an episode a couple days ago and still haven't felt completely great since. This is...
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ARCHIVED So Sick Of Being Sick!
reeetz replied to sandsurfgirl's topic in Introduce Yourself / Share Stuff
I am right there with ya! I have only been on the diet for about 3 weeks now. I finally started feeling good. Better than I had in a long time and I felt good for about a week. The I woke up yesterday and my head was pounding! I could totally feel a cold coming on. Then I went to work and made an even more stupid decision. I decided to try to eat out for... -
Hi Everyone! I want to know if anyone on here has a good GI doc they go to or have heard about around the Denver/Boulder area. I have already seen one...which I could not stand, and have an appointment with another on the 25th. I don't know if she is any good though so I was wondering if anyone had any recommendations they could give me. Thanks for any help...
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I was just wondering how long it takes to feel normal again. Since starting the gluten free diet (2 weeks ago), my symptoms have improved greatly. But I still don't feel "normal". Some days will be fine but I still have those bad days where I just don't feel right. Did this happen to a lot of people? Am I doing something wrong?
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The doctor I went to took the biopsy during the Colonoscopy also saying it was for microscopic colotis and celiac. They came back negative. But in the paper I received with the results it mentioned negative for celiac under the Endoscopy section which I know he did not do. And everything I have read said that an Endoscopy was the way to diagnose it anyways...
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Aura, thank you for posting your old thread you had on here. It does sound exactly like what I am dealing with right now too. I have not been eating many veggies and I just started to cut out dairy as well. I just can't stand not eating dairy! I have done the prune juice thing a couple times but I just don't like it. My main concern is making sure I'm doing...
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Thank you so much for the replies. Sandsurfgirl, I completely agree with you about eating the gluten again. I have read that the tests may not come back completely right, but I just couldn't take being sick anymore. It was something that I was willing to try because nothing else was working. Well...this seems to be the one thing that has worked for me. I...
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Hi everyone! I am new here and newly on a gluten free diet. I have not yet been diagnosed but will be seeing another doctor in the next few weeks. I have been having Celiac symptoms for a couple months after I got food poisoning. I mean horrible symptoms too! I have seen a GI doctor but he was of no help and just blew me off when I brought up Celiac saying...