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laurie9141

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by laurie9141

  1. laurie9141
    Hi! you answered your own question! you dont want to waste your time ans probably money, and social life eating expensive stuff.. that no restaurant cooks and no one in your fam understands. so get the gene test, get the biopsy... call GI drs until you find one that will listen and do it... if Celiac is not found, then move on from there.. but at least exhaust...
  2. laurie9141
    Hi.my NUMBERS ARE tested at every dr I see,everyone wants to do their own.. they all want to blame how I feel, on my thyroid... I do have 20,000 antibodies in the testing... or use an antidepressant.. the ssri's have interacted w my headache meds no one knew at the time ( only a few years ago!) so I ended up w a heart cath. stress test and cardiac monitoring...
  3. laurie9141
    hi, have more and more tests get definitive answers! Im 47 and have been struggling to find the answer... NOW doing it myself! if dr doesnt send you to gastro / celiac guy.. then find one yourself... like you, I have no interest in eating an expensive, tasteless, never-can-find-a-food-to-eat-in-a-restaurant diet. if I dont have to... have been off of gluten...
  4. laurie9141
    I think I am celiac have all the s+s plus. Have Hoshimotos.. have 160 speckled ANA several different doctors. no one is taking reaponsibility for any.. each orders one little thing and doesnt like how the other did. have leakey gut too it looks like. I guess I should just have the endotest done and get it over w? anyone know? switched to synthroid at my husbands...
  5. laurie9141
    Hi, Im pretty sure I have celiac havent doen the scope yet gotta wait ot finda babysitter . in the menatime trying to go gluten free tried to do less and I def feel better w less... but not sure ow to celar out all together.. fir instance.. what fast food places? how do I order a burger that hasnt touched a bun or for anyone to understand what I wnat anyway...
  6. laurie9141
    good question for me too! I have IgG of 9 and IgA of 4 tissue transglutam Ab IgA is 6 my CO2 is always low I have no idea of how all of this fits,,, any ideas thnaks
  7. laurie9141
    HEY!! been taking Omega 3's for anxiety years and years of trying SSRI's BEFORE they figured out that they dont go w triptans for headaches..( told me I was just anxious) so the circle goes... Omega 3's!!!! cant take trypto phan and ssri's bad bad thing.. read up on depression + omega 3's tried melatonin.. is Ok.. but still working on it.. love the Omegas...
  8. laurie9141
    no one answered am discouraged. called dr office have appt on feb 23rd. but to discuss what? I see alot of you on here say drs. dont " get it" don't know WHAT to eat, to go on the diet or no? waste a whole lotta money on expensive food... what type of dr to see an Internist, but my results from last year are as stated above... What tests to I additionally...
  9. laurie9141
    Hi. years ago b4 I knew anything about gluten had horrible abdominal pain and diarrhea felt horrible too. I found it was from "bagged" lettuce any fake thing on asalad bar and I would be amess! In addition found out after we moved from our rental to this house, that our water softener system had changed... NEVER had to take the meds like I did b4... its...
  10. laurie9141
  11. laurie9141
    have my bloodwork in my hands.. says celiac disease IGG is 9 and IgA is 4 Tissue transglutamin Ab IGa is 6 Reticulin IgA screen is neg... have all the s+ s but this is negative right? how long to not eat gluten before a false neg? these are antibodies or no? anyone? thanks
  12. laurie9141
    Hi just starting this madness.. ate canned chicken members mark I love it didnt find gluten ( I thought ) on the label but read in 2 books now not to eat canned meats? what gives? anyone know?
  13. laurie9141
    great answers but triggers another question.. I have to wait a few to maybe more to see my ped if not an emergency... Unless I lie, lol... been having these behavior problems for too long.. ped pulmonologist just threw the now 2 yr old, on meds and said get used to it.. I dont agree. it isnt that often that he wheezes and I dnot want him on steroids to cover...
  14. laurie9141

    ARCHIVED Blood Testing

    laurie9141 posted a topic in Doctors

    had what I thought was celiac blood testing (was neg I think,) cant make sense of it all tho' I am an RN! have all the s+s but I read here that maybe I didnt have gluten in my diet b4 the test? it might be false neg? I cant keep paying for blood tests that are wrong.. what do I ask for? I pd 450.oo for a food sensitivity test now the current drs I see say...
  15. laurie9141
    WHAT do you cook or prepare for the week in 10 mins or an hour of shopping? not to be smart or anything... or how is it less expensive? I'm seein 8 bucks for a bit of flour.. how does it keep all week? what books do you use? maybe I bought the wrong ones... they were expensive and had nuthin I have any interest in eating having tried some a few mos ago..have...
  16. laurie9141
    I agree, just wanna go thru a drive thru SOMETIMES and EAT.. I see lots of recipes from the people who find it "fun" or "easy" Im still mad about the diagnosis probably, but I have sensitivities to much of the "fun, easy" foods, like tomatoes, almonds, garlic, oats, yeast, milk, etc. OR HATE much of it.. and getting close to the last of my complaints is...
  17. laurie9141
    several questions. suspect gluten intolerance in my 3 yr old.. am changing diet..how do I make her understand that she cant eat the fun cookies that everyone else is eating in preschool (esp w Valentines parties coming up).? If anyone has a kid in school and its "their day" to bring snaks do I bring gluten free food for everyone? this stuff is expensive....
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