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Beccels

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Everything posted by Beccels

  1. Beccels
    Hey! I think it would be a good idea to sit down and have a heart to heart with your parents. Are they aware that you are experiencing this level of anxiety? I think that would be a good place to start. Secondly, do you have a good family doctor? I would recommend you go and have a chat with him/her to discuss your concerns and work out a way...
  2. Beccels
    Thanks for your reply! My blood test was: Gliadin Iga Abs: Results 2 (range 0 - 20) tTG IgA/IgG: Results 2 (range 0 - 20) Then I am heterozygous for the DRB1*07-DQA1*02-DQB1*02 haplotype. My signature (which said 95% gluten & dairy free) is very old. I just deleted it Either way, I think I have learnt the lesson that my body prefers...
  3. Beccels
    Hello! So, I have DQ2 although have not tested positive to celiac testing. Original investigations were due to atypical neurological symptoms that had no logical cause. My doctor has advised me to be gluten free. I have been gluten free in the past and oddly, my symptoms improved greatly! And then I began to cheat I have not ever had typical...
  4. Beccels
    Oh my .. I read your reply last night although I was too upset to answer. Your story, is almost exactly my story. It really upsets me to think that you have gone through this as well. But - I am so amazed and over the moon to hear from you! I totally understand what you are saying about living in your head. Everything is so inward, and scary - that everything...
  5. Beccels
    Luckily, my meds have a really short half life. So they are totally out of my system within 48 hours.
  6. Beccels
    Oh .. my ... gosh ... I have never ever found anyone with these problems! Where to start! All my problems started when I was about 17 years old (Im now 28). Long story short, I started feeling very strange things - that terrified me. I was told for many years that I had 'emotional problems' and that it was anxiety and panic attacks. I...
  7. Beccels
    Hi! Thanks for that. I tend to agree, it sounds logical in a semi medical non-discript way! Im going to check out that website now. Thanks!!
  8. Beccels
    I was just wondering if there are any articles or study's on the internet about B12 creating a false positive, so I could send it to my Dr? I can't seem to find anything. I have googled!
  9. Beccels
    Hi! The headaches are only new to me. Even though my main possible symptom is technically 'migraine', I never get a headache with it at all. Its just neurological symptoms. The headache I get now, which I think it a result of gluten feels like my head is in a vice. And I get pain behind my eyes. And then I will get mini thunder clap pains on either...
  10. Beccels
    Hey! This might be a long shot, but here is my suggestion ... If your craving cheese it might be the calcium that you are after. In dairy products, there needs to be equal amounts of magnesium to be able to absorb the calcium. But, in milk and cheese there isn;t enough magnesium so you don't really get the full benefits of the calcium! The best source...
  11. Beccels
    Hi! Thanks for your reply! But would it be that way with anyone who just decided to go off Gluten for any reason? Or might it be a bit more of a hint as to being Celiac or Gluten Sensitive?
  12. Beccels
    Hi Gals, So ... my husband and I are now keen for a baby. Thing is, I get these neurological issues (prolonged aura, 'derealization') which my Dr is trying to treat as I can't be on the meds if I want to be pregnant. And, past attempts to get off my meds have been horrible. Its been going on for about 12 years. Its been pretty bad. To the point I cant...
  13. Beccels
    Hi, I know this thread is for Mums with Celiac kids, but I was wondering if there were any pending Mums to be who have gluten and / or Celiac? I am desperate for our first baby. For years I have had neurological problems which we narrowed down to some sort of migraine, but not actually a migraine (prolonged aura / derealization). Although I can't be...
  14. Beccels
    Hi Everyone, I just had a quick question. I have been dairy, wheat and gluten free for 6 weeks now. I have the gene, but unsure if I am sensitive or not as my possible symptoms aren't typical (migraine aura / derealization). Yesterday was a hard day diet wise as I was at my god daughters birthday party almost all day and I didn't really think ahead...
  15. Beccels
    Thanks so much for your reply. Do you think I might be on the right track? If you both tend to think so, I think I might begin to feel a bit positive about the whole thing. I remembered a full blood count that I had a few years ago. The total of bloods, that indicate strange counts are as follows: Magnesium (super super low in urine collection)...
  16. Beccels
    Hi, I was just wondering what minerals and vitamins are typically low or depleted in undiagnosed Celiac disease or related gluten conditions. The reason I ask, this (below) is me over the last few years .. I am trying to figure out if this means anything or not, and its hard to find specifics on the internet. Magnesium (super super low in urine collection...
  17. Beccels
    Hi Vixxy, I am in a slightly similar boat to you ... Here is me: Anaemia (although ok now on oral supplements) Vitamin deficiency B12 (ok now on oral supplements) Selective Iga (Im not sure about this one but mine measures at 2, normal range being 0 - 20. Sleep Problems (Its currently 3.30am! Need I say more! ha!) Muscle Weakness (Sometimes it...
  18. Beccels
    Thanks so much for the reply ... I really appricate it. I have been on a gluten, wheat and dairy free diet for 5 weeks now. I have been in a bad detox for about 3 - 4 weeks, only now just starting to feel semi decent. What are false negatives? Where do I go from here?? Sorry. So many questions. We only got these results 1 week ago. It's all totally...
  19. Beccels
    Im not a Dr, but it sounds to me - like your body is trying to get rid of something that it doesn't like. And its coming out through your skin. Why don't you just try, taking gluten, wheat and dairy out of your diet or just gluten. Its hard, I know - but its not going to have a negative impact on you. If you give it a red hot go for a for 4 or 5 weeks...
  20. Beccels
    I was wondering if anyone can make sense of my genetic testings; here it is: "Heterozygous for the DRB1*07-DQA1*02-DQB1*02 haplotype which is consistent with the DQ2 phenotype" My blood tests are (although I had already been on the gluten free diet for 1.5 weeks at the time of the test): Gliadin IgA Abs: 2 (Normal Range 0 - 20) tTG IgA/IgG: 2 (Normal...
  21. Beccels
    Hi! I am on week 6 of a dairy, gluten and wheat free diet. I have only start to feel slowly better in the 2 weeks, but I have still had really bad days during those two weeks. In my first 3 - 4 weeks, I was up and down and up and down. My mood was all over the place, I was really teary and grumpy. I felt sick in my stomach, my feet and legs hurt like...
  22. Beccels
    Hi Donald, I wanted to share a bit of my story with you, I really understand how you feel. I am currently 29. When I was 17, I started to experience really strange neurological symptoms. I couldn't describe them, it was more than distressing. It impacted my ability to work and function on any normal level. I spent about 7 years being stupid and taking...
  23. Beccels
    Hi! Thanks so much for your post!! You simply must tell me the blackberry ap! I have a blackberry curve. Yay! Excited! Ohhh .. I have been on my diet for about 4 weeks now! Only in the last 1.5 weeks have I started to feel ... good! I have been detoxing though as I am off wheat, gluten and dairy.
  24. Beccels
    I am new to this whole gluten caper, but I have always had low iron. If it has anything to do with gluten problems, I dont know. But I have never been a big meat eater. I have also always had low magnesium levels. They didn't even really measure on the first test.
  25. Beccels
    Wow! What an amazing story. Oh gezz ... some Docters! How can the Doctor ignore the evidence? I have heard that lost of Dr's don't like to actively diagnose Celiacs as there isn't much money involved in it for them. I would hate to think that, but I have read it so many times - and hearing your story ... it really does make you worry! I've been on my...
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