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DrLeonard

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Everything posted by DrLeonard

  1. DrLeonard
    I have celiac disease and I'm going to the gulf coast to help provide disaster relief after hurricane Katrina. I'll be part of a medical team and where I get sent depends upon whether or not MREs are gluten-free. I can't find any factual information about whether red cross or military MREs are truly gluten free...does anyone know for certain? Or even have...
  2. DrLeonard
    A nutritionist assured me years ago that Bombay Sapphire Gin is gluten-free, but now that I'm looking for confirmation I can't find any. Anybody know?
  3. DrLeonard
    Not to add to the confusion, but I also got the word that Hornsby's ciders are NOT gluten-free. Earlier in a different message, I had said that I was able to drink them without problem but that's because I thought they were gluten-free---not taking that chance anymore. Here's what the Gallo people say about their other products: "In response to your...
  4. DrLeonard
    celiac3270, I just had a gluten-free frozen pizza from Amy's---plain cheese, but still pretty good.
  5. DrLeonard
    Since you mentioned Thanksgiving and booze, I'd like to vent about going to a big party and bringing my own food and beverages. Since there were 20 people there, that led to 20 separate explanations about celiac disease. Then, in what was probably a well-intentioned gesture, people decided to try my gluten-free food to see how it tasted. Trouble was, they...
  6. DrLeonard
    Yes, Disney may be not only the happiest place on earth but also the most celiac-friendly. Like MySuicidalTurtle said, it's still best to have some plans with them ahead of time but for me, part of the fun is being able to walk in most anywhere at Disney and have gluten-free food. I used to know a few chefs who worked at Disney and they were all trained in...
  7. DrLeonard
    Have you ever noticed that when you're telling someone about the gluten-free diet for the first time, how they go through this list of foods saying "So you can't have ____?" And when they get to bread, they so often get emotional about it: "So you can't have a sandwich? Or a hamburger? Or a hot dog?" Life would be so much easier if there was good, gluten...
  8. DrLeonard
    Hi None of the store-sold bread in Florida is gluten-free---in fact, the Whole Foods where I shop now has a huge sign saying this about millet bread sold in Florida. There might be small bakeries around that make gluten-free bread but in four years, I've not found anything. I'm one of those celiac's who can't eat millet; three tries, three trips to...
  9. DrLeonard
    I'm so sorry for what you're going through. I think I can relate to the frustration, as I'm sure a lot of other folks here can, too. I first posted to this website (after four years post-diagnosis) last week because I picked up a new disease---and it makes me furious sometimes. It helped just to read what others have gone through...maybe you can find some...
  10. DrLeonard
    how about popcorn at the movies? anybody know if that's ever safe? I've had the same reactions to popcorn but not consistently. Feels almost as bad as a gluten reaction but not quite the same. It's good to know I'm not the only one...thanks for mentioning it.
  11. DrLeonard
    It was the cookies and cream one that got me sick---thanks for jogging my memory. It has malt listed on the label but when I called they said it was gluten-free. It's not, as they later confirmed.
  12. DrLeonard
    About two years ago I ordered some. The ingredients listing was like a chemistry lesson, so I called Atkins and they assured me that the bar I had was gluten-free. But I got really sick. I called them back afterwards and they did an investigation, and found out that at least for the bar that I had tried, there was definitely gluten in it. I gave up on them...
  13. DrLeonard
    Hi I just wanted to add to all the great support you already got here. It takes a lot of courage to contend with an ED and celiac disease and I hope that it's getting easier.
  14. DrLeonard
    You mentioned coffee and I've wondered about that, too. I know that the coffee I drink is gluten-free, but sometimes it's just as painful. I've noticed that it's especially harsh if I haven't been eating regularly---maybe coffee on an empty stomach is just rough, celiac or not?
  15. DrLeonard
    This is one of the most interesting topics I've read here so far---it's such an important question but it's surprising how little research has been done about it. I'd like to add some things (I was going to say "weigh in" but...) I've had celiac disease for at least ten years but was only diagnosed about four years ago. I'm a psychologist but I have absolutely...
  16. DrLeonard
    Who knows why these things happen, right? I had the same experience as darlindeb25, where once I got healthy, I lost my alcohol tolerance. But it seems like something different is going on with you...here are some guesses: If you only get sick like that when you drink at bars/clubs, you might think about cross-contamination. Maybe they mixed you the wrong...
  17. DrLeonard
    Does anybody know of books, articles, etc. that are written about this kind of problem? My library of gluten-free guides and celiac disease books doesn't get into what you're supposed to do when someone chooses to cheat on the diet.
  18. DrLeonard
    Hi I'm a clinical psychologist and I was diagnosed with celiac disease about four years ago. I now work with others who are having emotional problems secondary to celiac disease. I'd definitely back up all the advice of having your boyfriend go through a thorough work-up to rule out medical conditions, but it's not unusual for people with celiac disease...
  19. DrLeonard
    Hi This might sound kind of hokey, but for me when it came to dating and bringing of celiac disease, I figured that the kind of person who I would want to have as a partner would be understanding and supportive. I found out that meeting for coffee works best as a first date because if you hit it off, the natural next date is dinner, and then you can explain...
  20. DrLeonard
    Another good doc is Dan Kosches: 5601 North Dixie Hwy Suite 322 Fort Lauderdale, FL 33308 (954) 267-8866 He's won a couple of awards for his bedside manner, so if you're looking for a doc who will take time with you, he's a good choice. And he's got the softest touch with an endoscope of anybody.
  21. DrLeonard
    Hi I was diagnosed with celiac disease about three years ago and was responding well to the gluten-free diet. I recently picked up a brand new diagnosis: polycythemia vera, also known as: Polycythemia rubra vera; Myeloproliferative disorder; Erythremia; Splenomegalic polycythemia; Vaquez's disease; Osler's disease; Polycythemia with chronic cyanosis -...
  22. DrLeonard
    I think this comes up with both children and adults. When I was diagnosed I certainly stopped eating for a few weeks. Just coincidentally, my partner was a psychologist who specializes in eating disorders. It was very hard on her to watch me develop these bad eating habits, but at the same time, one thing was clear: Getting into a power struggle over food...
  23. DrLeonard
    The hardest thing for me to give up was beer. Here are some things I've figured out... First, the ramapo valley brewery does make gluten-free beer. I ordered a case (it was $60, I think) and a few of the bottles were broken in the mail. The beer itself was okay, and I've since been told that it's technically illegal to ship alcohol this way across state...
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