Kathy59

Just want to put this out there...see if neuro will run panels to check for other viruses active in body. I have nerve damage due to that very reason. It is painful and dibilitating....I take an anti-viral med along with lyrica and cymbalta to combat the pain...after 4 years the ebv seems to be down....however, I recently decreased my med and the pain has...

I would get my dinner to go from another resturant as a previous poster stated. However, I would go ahead and eat my dinner, so it doesn't get cold and enjoy every bite while they are still waiting for their dinner! I agree that is not nice to pick especially an Italian Resturant...however, you might make a call ahead of time and see if they can accomadate...

I have tried both the rice and corn pasta..I prefer the corn pasta because i feel like I am biting in to something...however, I do not have an allergy to corn...at least that I am aware of..

Hang in there! In the beginning I went from not being able to stay awake to insomnia at night! Remember, we are all different and are bodies are at different stages of the disease! Highly recommend B12 sublinguial (dissolve under the toungue) Vit D3 (most people are lackin Vit D) B Complex...I take others, fish oil, Vit E. I also ate straight fresh fruit...

To everyone here: please do not give up...I have been where many of you are...I am feeling better, but it has been a long, uphill battle! My first words...do not be so hard on yourself...second, accept your new normal. I have also had and suggest bloodwork to check your viral levels. Seems like every virus I had ever been exposed to was active in my body...

I just made the most wonderful pizza this evening! I usually use Bob's Red Mill, but had a box of Gluten Free Pantry French Bread/Pizza Mix....I used milk instead of water and butter instead of vegetable oil! It is a keeper....crust was thicker than we like...so next time I will divide in half for the thin crust effect, but this made into french bread would...

I would not work with any kind of dough! You could be inhaling flour; yes, touching items those have touched can cause cc. I don't even go down the bread isle or flour isle in grocery store unless I absolutely have too!

I used to be exactly the same way with coffee! Since being gluten-free, I too know longer have the effect! My husband still asks, "You o.k. in the bathroom?" before he uses the bathroom. However, in the end, when I got so sick; didn't matter what I drank or ate, I could never be far from a bathroom. I have since learned my electrical shocks are/were nerve...

Most of it is too in depth for me to explain, all I know is my blood work was negative for Celiac; I had an endecsopy (sp) prior to blood work and nothing was found (but not sure even looking for) at time was sent due to B12 deficiency, but they were not looking for Celiac....treated for active mono, EBV, Chronic Fatigue Syndrome, some improvement, but still...

I have gained weight since going gluten-free; however, after reflecting on some of my food choices...I think I have figured it out...I am currently off loaded baked potatoes! LOL! I was going to the store and getting potatoes, cheese, sour cream, and bacon bits (real)..eat those 2 times a week, plus a coke...plus, I was binging on the pasta, once I found...

I can tell when I return to the Neuro I need to have him write me some Rxs for supplements I am out of...sometimes I get soooo tired of taking all the pills! Been having more trouble with the neuropathy (pins & needles) in my hands; the muscle spasms and pain in my feet are also increased....time to get more supplements! Thank you!

What I did when I was diagnosed was focus on what I could eat! It was several months before I tried any processed foods made gluten free. I ate all the vegetables, meats, and fruits I wanted. months later I tried my first gluten-free beer "Redbridge" It tasted sooooo good! Then I tried a gluten-free pizza from a local parlor in a very small town; however...

While visiting my daughter in Rising Sun, IN, we ordered pizza from "Toppers" I ordered the gluten-free pizza. It is the best pizza I have ever had...The toppings certainly lived up to the name of the place. I am not kidding; must have been a good inch of toppings. So, if you ever find yourself in Southeastern Indiana in quaint little town of Rising Sun,...

Enjoy..and please let me know if your experience was as good as mine!

Hope I spelled the name of the resturant correctly. Ate at Biaggio's in Evansville, IN. GREAT!!!! Linen tablecloths and excellent service and gluten free menu! Even brought out Gluten Free Bread I could have with Pesto!!! This is a chain resturant. Check their website for a location near you. In my case, the closest one and only one in NC is 2-3 hrs away...