rmmadden
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Everything posted by rmmadden
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ARCHIVED Seattle - Flying Apron Bakery
rmmadden replied to tarnalberry's topic in Gluten-Free Foods, Products, Shopping & Medications
I visited The Flying Apron in Seattle this summer while on vacation (It's near the University of Washington Campus). It's a really (and I mean really) tiny place where you just walk up to the window and order your items. The whole place can't be more than a small bedroom in overall size. The best item they had in my opinion was the berry scone. The... -
Michelle, I too was glutened on my vacation (To Seattle) and it's no fun. I think as your body is purging itself of gluten you become more sensitive and thus the attacks last longer (at least they do for me, anyways). I also checked with the kitchen before eating something that was supposed to be gluten-free but, alas I got sick. I was sick for...
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You could try Peppermint or Spearmint Tea, gum or mints to sooth your stomach. If the naseau gets really bad then I turn to Pepto Bismol for relief..... Best of Luck! Cleveland Bob
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ARCHIVED New Member With ?s
rmmadden replied to rin34's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Rin, Welcome to the forum. This is a great place to ask questions and just plain get things off your chest because we all know how frustrating this life can be. As for the question of being tested or not.........Even if you get tested you are still going be grasping at straws because not many doctors know all that much about celiac disease. Most... -
ARCHIVED Cross Contamination Possibility?
rmmadden replied to Mjohnson73's topic in Coping with Celiac Disease
Last time I ate at McDonalds all I had was the fries and I got sick. I know they say they use dedicated fryers but you wonder what some 16-year old who's working the night shift does when they must make a fish sandwich and the other fryers are shut down already. Too easy for cross-contamination so I'm staying away from now on. Best of luck! Cleveland... -
ARCHIVED Found Gf Hard Cider Beverage
rmmadden posted a topic in Gluten-Free Foods, Products, Shopping & Medications
A general FYI -- I was vacationing near the Lake Erie Islands last weekend and came across a hard cider alcoholic beverage called "K". I went on their website (www.Kcider.com) and in their Q&A section they answer the gluten question...it has none. I have a 4-pack chillin' in the fridge and now that I have firm info against any gluten I plan on trying... -
To quote a famous line from an old movie...."Judi, Judi, Judi...." First off welcome to the board. This is really a great place for getting info and in general just keeping your sanity by talking to other celiac disease people. To answer your questions (as best as I can) I definitely think a correlation exists on how you feel on a day-to-day basis...
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Unfortunately I avoid eating Ice Cream out pretty much altogether. I went around my local places at the beginning of the summer and asked all the questions, etc. and had them wash the scoops and yet I still ended up getting glutened Now If my family goes out I pretty much abstain unless it's DQ and then I get the vanilla soft-serve in a cup. I look...
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ARCHIVED I Always Feel Hungry
rmmadden replied to a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Since I came down with celiac disease I have to eat small meals every 3-4 hours. I agree with the theory about malabsorption causing the need to eat more frequently. I have noticed that as I slowly heal I am able to go longer periods of time between meals. Hopefully I can get back to a regular schedule eventually. Best of Luck! Cleveland Bob -
Personally I miss a pint of well-drawn Guinness! Also, a real cheesy deep-dish pizza from Giaradano's (sp?) in Chicago. A gluten-free brownie or an apple just can't substitute or replace some things.......Oh Well. Cleveland Bob
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ARCHIVED Starbucks Coffee
rmmadden replied to a topic in Gluten-Free Foods, Products, Shopping & Medications
I just returned from Seattle and enjoyed Starbucks quite a lot on my trip (even went to the original Starbucks at Pike's Market). Anyways, I emailed them about their Tazo Chai Tea Latte (which is awesome!) and they replied that it's fine. The Ginger Chai Tea and the 2 previously mentioned frapps contain gluten. Otherwise enjoy! Cleveland Bob -
ARCHIVED Will Damage Already Done Heal
rmmadden replied to matt4444's topic in Introduce Yourself / Share Stuff
I repeat what the others have said......It varies from person-to-person depending upon what amount of damage you have and how well you stay away from Gluten. I have been gluten-free for 8-months but I didn't really see any improvement until after the 5th month. I'm still not without accidents or days where I feel lousy but I guess that's just par for the... -
ARCHIVED Gi Symptoms Develop After On Gf Diet
rmmadden replied to jterrano's topic in Coping with Celiac Disease
I too have noticed an increased sensitivity after going gluten-free. Each time I accidentally get glutened I think the reaction is worse and the symptoms last longer. I do feel better versus when I started the diet but It's a long, slow road to recovery. Best of luck to you! Cleveland Bob -
Forgettabout the "Yinkees" and paaark a caaaar on the Dead Sox as well. There are sports teams outside of the East coast or big cities for that matter. My allegiance is with the Tribe and always will be. Cleveland Bob
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I like LARABARS (not a great amount of protein but they taste good) and something new I found while on vacation in Seattle........Bumble Bars. They are made with sesame seeds/flax seeds/nuts and say Gluten Free right on the package. Cleveland Bob
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ARCHIVED Irish Heritage And Celiac's
rmmadden replied to Queen Serenity's topic in Related Issues & Disorders
1/2 Irish & 1/2 Italian here (What a temper combination, huh?). I can drink you under the table and then throw it at you when I'm done........lol Cleveland Bob -
ARCHIVED I Need Advice
rmmadden replied to nadinec's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It's a long, slow process to heal your intestine's. I didn't start to feel better until after 5-months and I still have bad days after being gluten-free for 8-months. I hear that depending upon how much damage one has it could take up to 2-years to heal. Some theories talk about Gluten withdrawal after going gluten-free. You might have that or other... -
Mel, I don't cramps but there are something like 200+ symptoms so I guess it's different for everyone. The one thing I can say to a "Newbie" is to try and not judge your day-to-day feeling/health too much. I had someone tell me when I was first starting out that it's better to judge a period of time (like a quarter) versus daily. You will look back and...
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I am curious to know if anyone else gets knots in their shoulders, neck and/or back from a gluten episode? When I am gluten-free I don't have any of these symptoms/problems but boy do I get tight in the shoulders when I am suffering thru a gluten attack. I can feel the knots and it just adds to the misery on top of the lousy gluten feeling. Can...
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ARCHIVED Food Allergies & Intestinal Healing
rmmadden replied to Emme999's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Michelle, First off I wanted to say that you are one of my favorite "Posters" on this board. You really choose interesting topics and it seems you also do your homework.....Thanks! After reading this post I wondered how many celiac disease people have also been tested for other allergies? I did the at-home York test but they lost my sample and I... -
ARCHIVED More Of A Rant Than Anything
rmmadden replied to browneyedgrl73's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
This board was made for ranting! I for one am thankful to have found this board because it provides the opportunity to get things off your chest and speak to others who know how you feel. I look at this forum as therapy and I can't begin to imagine how I would deal with this disease if it wasn't for the internet and this board. Rant away all you want... -
ARCHIVED Changes Since Going Gf...
rmmadden replied to VydorScope's topic in Coping with Celiac Disease
For the first 7-months of being gluten-free I pretty much stayed at the same weight no matter what or how much I ate. Now in my 8th month I have finally gained a few pounds back (which I hope is a sign that my intestine's are healing?). I think it's different for everyone. I guess the main thing is if you are feeling better than that's good. Best... -
ARCHIVED This Is Ridiculous, Everything Has Gluten In It.
rmmadden replied to groogle's topic in Coping with Celiac Disease
Greg, I completely understand your frustration. I went nearly 37-years of eating whatever I wanted before all-of-a-sudden I got sick last August and was diagnosed with celiac disease. I had no prior symptoms and it was a shock to change my lifestyle that fast. The best advice I can offer is to read, read & read. Go to your local library and... -
ARCHIVED Curious
rmmadden replied to ShortStuff2309's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Not for me! The few times that I've slipped-up and felt so awful are enough to answer the question. The pain and suffering far out-weigh any possible enjoyment from a donut, etc. Cleveland Bob -
ARCHIVED Good Milk Substitute For Kids?
rmmadden replied to a topic in Parents, Friends and Loved Ones of Celiacs
I prefer Almond Milk and/or Hazelnut Milk myself. Pacific makes both and they say Gluten Free right on the package. Best of Luck! Cleveland Bob