rmmadden
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Latest Celiac Disease News & Research:
Everything posted by rmmadden
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ARCHIVED Eating Gluten Free On Norweigan Cruise Line
rmmadden posted a topic in Traveling with Celiac Disease
Hey all, I just got back from a week long Alaskan Cruise aboard the Norweigan Pearl and wanted to share the positive experience. A few weeks before my trip I was contacted by a rep from Norweigan who sent me a list of gluten free foods that I could pick from and they would make sure to have aboard. Once aboard I was contacted by the Maitre'D from... -
ARCHIVED Cedar Point Ohio
rmmadden replied to kyliekatiesmom's topic in Parents, Friends and Loved Ones of Celiacs
I went to CP last year for the first time since going gluten-free and brought all my own food. I really don't think you'll find much, if anything, to eat that's gluten-free. Maybe at some of the sit-down restaurants you can find something but my kids didn't want to take that amount of time away from the rides. Enjoy......It's the best roller coaster... -
ARCHIVED Oddest Places That Have Gluten
rmmadden replied to confused's topic in Gluten-Free Foods, Products, Shopping & Medications
Wallpaper glue has wheat starch in it. I was cleaning my son's bedroom walls and scrubbing the residue off the walls after I had removed his border and was very sick afterward. Cleveland Bob -
ARCHIVED Headed To Seattle This Weekend
rmmadden replied to VegasCeliacBuckeye's topic in Traveling with Celiac Disease
Snoqualmmie Inn has a wonderful breakfast. They were very accomodating when I explained the gluten-free diet. I will eat there whenever I'm back in the area (which will be this summer). Can't speak for the hiking but the whole area is beautiful. Cleveland Bob -
Marisa, I spent 6-days in the Big Easy for a convention not long after being diagnosed. Eating gluten-free in that town is a really tough task! Most everything is started with a roux or breaded....thus off limits. I ordered plain fish and steak and still ended-up getting glutened toward the end of my trip. They do have a whole foods (or whole paycheck...
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On top of the brain-fog / slight dizzy feeling I get when fighting-off a gluten attacked, I also develop a low-grade fever and the occassional heart palpitation. Anyone else? I've been to the Dr. twice to check the old ticker out and I'm happy to report it's fine. Just curious who else gets the palp's and slight fever? Cleveland Bob
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ARCHIVED Dizzy,tired
rmmadden replied to holdthegluten's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I went through a tired and a dizzy period and all I can say is that they eventually passed. For the tiredness I drank Ensure (Watch....Chocolate Malt Flavor has gluten) and tried to get as much sleep as possible. As for the dizzy I just had to fight through it. Best of Luck Cleveland Bob -
My younger brother has Celiac, too. It was his diagnosis that got me to thinking and testing for my Celiac. At least we don't have to worry about food issues when we are visiting one another. Also, this summer we are taking an Alaskan Cruise together and I am comforted in the knowledge that I don't have to worry about the whole food thing aboard the...
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ARCHIVED Fiber Supplement
rmmadden replied to pat e's topic in Gluten-Free Foods, Products, Shopping & Medications
Citrucel is Gluten Free. Best of luck! Cleveland Bob -
Frozen Thin Mints and Tagalongs are but a distant memory now......sniffle, sniffle!!!! Cleveland Bob
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ARCHIVED Whats Your Favorite Band?
rmmadden replied to Teku's topic in Introduce Yourself / Share Stuff
Gotta be classic rock......... 70's Springsteen 70's Genesis The Who The Stones Led Zepplin The Kinks Cheap Trick BTO Styxx Meat Loaf Steely Dan Areosmith Rush For a change of pace I also listen to....... Jimmy Buffett The Ohio University Marching 110 (Go Bobcats!) Rock On, Cleveland Bob -
ARCHIVED Red Bridge Beer
rmmadden replied to francelajoie's topic in Gluten-Free Foods, Products, Shopping & Medications
Found Redbridge @ Giant Eagle in Cleveland. It's good. It's also good to have some choices especially outside of the health food store route. Paid $7.90 for a six pack. Cleveland Bob -
ARCHIVED Supplements
rmmadden replied to Katie618's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Aside from double-checking to see that your supplements are in fact gluten-free.......Be careful with taking Iron. Some people don't excrete the excess Iron and it builds in the body's cells and can cause all kinds of bad things to the internal organs. Best of Luck, Cleveland Bob -
ARCHIVED Odd Reaction....
rmmadden replied to JerryK's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Jerry, Welcome to the wonderful world of Celiac! Your description sounds very familiar especially during my first year post diagnosis. I had several bouts with anxiety and feeling shakey. It was only thru this forum that I didn't go crazy. People like Deb (and countless others) were there to share their similar stories and help me feel as if I... -
Christy, Welcome aboard! I don't know about a "great" doctor (Is there really such a thing?) but, I have been going to Dr. Michelle Inkster at the Cleveland Clinic - Independence office. She is a gastro specialist who diagnosed me via endoscopy & blood work and, has been receptive to my questions/concerns post-diagnosis during the past two...
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ARCHIVED High Ferritin Blood Level
rmmadden replied to rmmadden's topic in Coping with Celiac Disease
The number is 812 (300 is considered high). Cleveland Bob -
Hey all........It's been about 6-months since I've been online as I started a new job. Everything is going well and I have been feeling better. My recent check-up showed an abnormally high level of Ferritin in my blood. All my other blood work was normal and I had a recent bone scan which was also normal. I did some online research for high Ferritin and...
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ARCHIVED Whats In Your Car celiac disease Player?
rmmadden replied to lindzay's topic in Introduce Yourself / Share Stuff
Genesis - Platinum Collection The Rolling Stones - Flashpoint Steve Miller Band - Greatest Hits E.L.O. - Greatest Hits Can You Tell I Grew Up In The 70's????? MeatLoaf - Bat Out Of Hell Steely Dan - A Decade Of Steely Dan Queen - Greatest Hits Eddie Money - Greatest Hits Rock On! Cleveland Bob -
ARCHIVED Bumblebars
rmmadden replied to purplemom's topic in Gluten-Free Foods, Products, Shopping & Medications
I've enjoyed them for about a year without any problems......... Best of Luck! Cleveland Bob -
ARCHIVED Someone Please Just Tell Me What To Do!
rmmadden replied to JenP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Jen, Based on my experience I have come to understand that medicine is not the exact science I once thought it to be. Doctors are guessing based on any number of variables. Guess right and order the correct tests then you've got a good doctor. Guess wrong.....well, we've all been there. Your best bet is to listen to what your body tells you. Going... -
I've had the brain fog, tongue tied thing the past two weeks. It feels like someone has placed a rubber band around my head. Never experienced this before and I've been gluten-free for 17-months. It's hard to concentrate especially since I work on a computer all day. Cleveland Bob
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ARCHIVED Problems Digesting
rmmadden replied to Lister's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Don't panic....................It is very normal for celiac disease people who have intestinal damage to pass foods that are undigested. Corn and nuts are noticable as well as lettuce like you mentioned. Over time you will notice less and less of these items in the bowl as your intestines heal. Just be sure to try and chew your food as good as possible to... -
Your husband is about the same age as I am. I drank High-Protein Boost for a few months to help w/ the fatigue. Any flavor except chocolate malt is gluten-free. Don't worry, the fatigue will pass eventually. Now I'm back to playing softball, golf, walking and bicycling. Best of luck, Cleveland Bob
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ARCHIVED Bourbon Whiskey:
rmmadden replied to jenvan's topic in Gluten-Free Foods, Products, Shopping & Medications
Jen, I knew you had good taste (How could you not w/ relations that come from Cleveland, right?). I usually just have it over ice and enjoy some smoooooth sippin'. Hope all is well, Cleveland Bob -
Ain't nothing wrong with the old spuds & whiskey diet....................hiccuip!!!!! Erin Go Braugh! Cleveland Bob