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melblondin

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by melblondin

  1. melblondin
    Hi everyone - I've been distant for awhile because life's just been busy, but I wanted to pop back again to report that all 3 of my boys are growing again!!! To recap briefly, my 3 year old had "weak positive" bloodwork for celiac, iron deficient anemia, and failure to thrive, while my 5 year old had neg. celiac bloodwork, but had elevated liver enzymes...
  2. melblondin
    Yeah - I did talk to the counselors. I totally understand that the child had no idea how the food would affect my son; the bullying aspect of it is what bothered me more than anything. I''m sure things will be fine now and he is having a great time overall :-). I was just surprised that kids that young really care about what each other is eating/not eating...
  3. melblondin
    Soooo, my son is at a Day Camp this week. Things have been going very well. I've packed his lunch and extra snacks for when they do that sort of thing and he knows to only eat what I've packed. However, yesterday there was another 5 year old who apparently couldn't understand why DS couldn't eat the graham cracker snacks that had been provided. He and...
  4. melblondin
    One thought is to have them all do the genetic testing. It wouldn't give them an official diagnosis, but it might help you know which kids to watch more closely and to have blood screens done on every couple years or so. My doctor and I think that I have celiac disease (couldn't be officially tested because I was already wheat free from a wheat allergy...
  5. melblondin
    Man I'm hoping we get to see some of this growth too!! All 3 of my boys are in about the 5th percentiles, but I just took my 1 year old in for his well child and at 4 mths he was 75th for weight, at 8 mths he dropped to the 10th, and now at 1 year he dropped again to the 5th He's been gluten free since the 8 month appt., so I was hoping for a little...
  6. melblondin
    If I had to guess, I'd say you have DQ 2.2 because I also did the Prometheus testing and mine came back as "DQ2 heterozygous," which put me in a "high" risk category. At the bottom of my report where it lists what alleles were detected it stated: DQ2.5 (HLA DQA1*05:DQB1*0201) and other non-risk alleles. I'm assuming the only thing that separates the "DQ...
  7. melblondin
    Just in case anyone else is wondering I talked to someone at Sandoz, the makers of the Levothyroxin 112 mcg that I'm taking and they said that while they can't certify that their products are gluten free because they don't test for it in their facilities, none of the actual ingredients in the medication contain gluten. Do you think it's safe to assume that...
  8. melblondin
    Thanks everyone for the responses and esp. for that website. I had tried contacting the company, but hadn't got very far, and then ended up just getting busy with other things and forgetting all about it. I will pursue that further for sure. I haven't had another migraine since Sunday and am praying things stay that way!!!
  9. melblondin
    Has anyone experienced migraines after going gluten-free? I've never had a migraine before in my life but was just hit with a terrible one last night complete with auras and everything. As far as I know I've been gluten free but maybe some sneaked in somewhere. The only thing I can think of is possibly my thyroid meds that I take everyday (Levothyroxine...
  10. melblondin
    Just wondering if you ever found out anything more? My 3 year old was just diagnosed with "weak positive" bloodwork and slight anemia among many other symptoms. My other son is 5 and we put him on a gluten-free diet since he also shows symptoms although his celiac panel was in range. His liver enzymes were elevated though and I know that I am DQ2.5 positive...
  11. melblondin
    Oh wow, Nora, thank you so much for pointing that out. From what I'm reading online, it looks like the deamidated IgG test has a 98.6% specificity rate. I guess that puts an end to my wondering if it was truly positive bloodwork for celiac! I was originally thinking that that number was sensitive to gluten, but not specific for celiac, but I hadn't realized...
  12. melblondin
    As far as I know, he wasn't tested for total IgA and IgG. The exact wording is: Gliadian (deamidated) AB, Eval Gliadin AB IGG Gliadin AB IGA
  13. melblondin
    My doctor actually is convinced that he has celiac. I just wasn't sure if technically speaking we could come to that conclusion by most medical standards w/o pos. bloodwork and/or a biopsy. I also believe that he has celiac, but there's part of me that wants to know for sure whether it's a gluten sensitivity or an AI disorder. I know it doesn't really...
  14. melblondin
    My son was diagnosed as celiac today. He definitely manifests many if not all of the classic symptoms for children, so we are going to go gluten free as we have already seen improvement, but I have a question regarding his bloodwork because as I understand it, without IgA being positive and/or a pos. scope, he can't officially be diagnosed as celiac, correct...
  15. melblondin
    My son is exactly the same. At his 2 year check up his labwork was inconclusive (like a point or two away from pos.) and now at his 3 year checkup they were normal, but he is also 3 1/2 yrs old and weighs about 27 pounds. He has tummy aches all the time, explosive BMs, and flaming red cheeks. I have issues with gluten too and just found out that I am DQ...
  16. melblondin
    Thank you!!! I've always thought this was kind of odd, but I figured maybe he just really likes milk! I haven't seen much posted on this type of a craving, so I'm thankful to see I'm not the only one who has noticed this!
  17. melblondin
    ok - so he's not totally fine now. He's gone to the bthrm twice already and starts crying uncontollably at the slightest thing. His fever is gone but belly still hurts like crazy.
  18. melblondin
    Hi all - I don't want to be hyperparanoid about the possibility of my son having celiac, so I wanted to get your thoughts and see if this could possibly be a reaction or just a matter of coincidence. My son pretty much ALWAYS has flaming red cheeks, explosive, bulky stool, and frequent tummy aches. Well, the other night I noticed that his cheeks were...
  19. melblondin
    Thx for the input Ravenwood. We have an appt. next Thurs. Now I'm leaning the other way and just want to get them gluten free as soon as possible. I recently weighed the 10 mth old and he's not even on the growth chart anymore :-( The weird thing though is that I stopped giving him gluten about 2 months ago.... On a side note, do you know if when...
  20. melblondin
    You're right that our insurance will cover it over genetic testing. Just out of curiosity, did your doctor recommend the biopsy based on symptoms since the bloodwork was negative or is that something you had to push for? Did you have the genetics done as well or no? Thanks for your input. It does seem like there are a lot of people out there with negative...
  21. melblondin
    T.H. - Thank very much for sharing your thoughts and experience with me!! I am leaning toward just going gluten free and watching to see if their main symptoms improve. It's really hard as a mom to continue feeding them food that I suspect is "poisoning" them just for the sake of a test that is largely unreliable anyway! However I do see some positives...
  22. melblondin
    Sb2178 - Thank you for your response. Their ages are 5,3 and and 10 months. Yes, the reason I question the negative bloodwork is that the year prior to this most recent test, the now 3 year old was 1 or 2 points away from testing pos., so it doesn't really seem consistent. At this point they do still eat a decent amount of gluten, but we will soon be making...
  23. melblondin
    Sooooo, I feel like I'm in the middle of no-man's land with trying to figure out if we do in fact have celiac or not. The gist of it is in the fall of '08 I was diagnosed with hypothyroid and then shortly after that with a wheat allergy. I had/have suspected celiac all along because of chronic symptoms such as anemia, joint pain, extreme fatigue, chronic...
  24. melblondin
    Thanks for the tips! It was given to me as a gift, so I'm not loyal to the company or anything and have no problem switching :-)
  25. melblondin
    My eye shadow (Revlon Cream to Powder Eye Shadow) makes my eyelids red and burn every time I've used it. I've just been looking to see if it contains wheat and tocopheryl acetate is the best that I can come up with. Has anyone already contacted Revlon to know if their use of T.A is derived from wheat? If not, I guess I'll be contacting them. I can't use...
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