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poopedout

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Everything posted by poopedout

  1. poopedout
    See my reply on your new thread. I think it helps to answer some of your questions.
  2. poopedout
    I found another paper that says that the anti-tTG levels usually drop in people with refractory celiac disease who are adhering to a gluten free diet. There is another substance that is characteristic of RCD. "Taken together, the antibodies persisting in the sera of RCD patients adhering strictly to GFD were IgA antibodies to CRT, while IgA antibodies against...
  3. poopedout
    I found a couple of papers that dicussed failure to respond to a gluten free diet. One said this: "The case patient is among a small proportion of individuals with celiac disease whose illness does not respond to a gluten-free diet. The 3 main causes of treatment failure are (i) inadvertent or unintentional failure to adhere to a strict gluten-free diet...
  4. poopedout
    Perhaps you have microscopic colitis. I read that anyone with celiac disease who does not respond to a gluten free diet should be tested for microscopic colitis.
  5. poopedout
    Thank you for the reply. You have answered my questions about the gluten sensitivity genes and now I know why I can't find information about them except from Enterolab. I did stop eating gluten before I knew anything about Enterolab and I was better but still had diarrhea. I am only back on gluten because I am having a tTG Iga test soon and I want to give...
  6. poopedout
    Thanks for the great answer. That was just the kind of information I was looking for. I don't have any ataxia, but my husband might say my brain is missing something. I seem to have the genes that are commonly found in people with microscopic colitis. My symptoms fit that and microscopic colitis responds to a gluten free diet.
  7. poopedout
    What they say is that I have two copies of a gene that predisposes to gluten sensitivity so that means that each of my children will have one copy of the gene. What I am not sure of is whether there is a gene that predisposes to gluten sensitivity. I cannot find any information about it except on the Enterolab website.
  8. poopedout
    My problem is that I have received this report stating that each of my children has inherited a gluten sensitivity gene from me. I need to tell my sons about this but I do not know if this is bogus science or if it is real.
  9. poopedout
    My question is about the difference between the genes for celiac disease and the genes for gluten sensitivity. I did not know that there were different genes for gluten sensitivity and I have not found anyone else talking about them except on the Enterolab website. Is this just an Enterolab disctinction or is this something that is commonly held to be true...
  10. poopedout
    So is it only Enterolab who calls these genes gluten sensitivity genes and tests for them?
  11. poopedout
    Dr. Peter Green says in his book that there are two types of gluten sensitivity. One is patients that improve when gluten is removed from their diet and relapse on re-introduction and the other is patients with positive blood tests for celiac disease but normal intestinal antibodies. I'm not sure what he is calling intestinal antibodies and which are the...
  12. poopedout
    Should my GI take these results seriously? He is the one (also my family doctor) who said I am too old to have celiac disease. I suppose he will say it is "just gluten sensitivity".
  13. poopedout
    So if I am just "gluten sensitive" I can keep eating gluten and it will not harm me. They also mention "immunologic gluten sensitivity" which can be more severe with having two genes. Does that mean that I probably produce anti-ttG antibodies but it will not lead to villous atrophy?
  14. poopedout
    I posted quite a long time ago and I decided to have genetic testing by Enterolab. I have not had much help from the medical profession. I saw the GI doc and he refused to do the gene testing and grudgingly agreed to do a ttg IgA but not a total IgA. I have not had that test yet as I had to go back to eating gluten after being gluten free for six months...
  15. poopedout
    I think it just means you have inflammation of the lining of the small bowel. The lymphocytes are the troops that fight inflammation.
  16. poopedout
    They look like mine. They could be long, red cayenne peppers. Just dry them in a single layer in the sun inside. At first they go soft and then they dry. You should use seeds and all when you cook with them. You can grind them up and put them on pizza, too. His red pepper flakes are just ground-up, dried, hot peppers.
  17. poopedout
    I'm not sure how big your peppers are. I grow Thai Dragon and they are thin and 4 or 5 inches long. I have great success with drying them on a paper towel in a sunny window. It takes quite a while, but you can store them in a jar after they are dry and use them in spaghetti sauce, etc. You must live in the South if they are ready now. They are much hotter...
  18. poopedout
    That's the treatment I am going to try. How long did it take to work? What happened when you stopped taking it?
  19. poopedout
    Thanks for the great article. I did not find that one in my research. Maybe kids produce the antibodies in the blood quicker than adults do.
  20. poopedout
    I had a similar experience with a GI clinic appointment recently. This doctor would not even consider the possibility that I might have celiac disease but he did say that I could have microscopic colitis or post-infective IBS. I did some research on this today and found some interesting papers on it. One said that 15% to 20% of patients with microscopic...
  21. poopedout
    I am no expert on this and I still don't know if I have celiac. You, however, have a positive biopsy, one of the genes for celiac, and a positive response to going gluten free. It sure seems like you have your answer. I hope you are not spending a lot of money to see the people at Columbia because you may not need to see them.
  22. poopedout
    I decided to order the Enterolab gene test as that will tell me if I do not have the genes for celiac. I think that would be useful information for me. I don't care about the doctor. He did order some stool tests so I will do those. I am hoping to get the anti tTg/Iga and the total Iga done now. I may or may not eat some gluten. I will have the colonscopy...
  23. poopedout
    I think I have figured out the answer to the second part of this question. The two reactions are quite different. The reaction after eating a small amount of gluten is an immune response with a lack of suppression and the antibody test is based on the tissue damage in the gut and it seems to take a long time for the antibodies to build up enough to be measured...
  24. poopedout
    It looks like the regulatory T cells are suppressor T cells and they suppress autoimmune responses. Also the suppressor activity of the regulatory T cells is significantly impaired in celiac patients.
  25. poopedout
    I have been doing some more research and I think I found an answer to one of my questions. It is very interesting. In this paper it says that going gluten free removes the antigen that stimulates T-cell mediated tissue damage in the gut, but it does not remove the immune response and may heighten the immune response stimulated by gluten since regulatory T...
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