ocdsgirl

Aren't the rheumatologists great? My son just had an endoscopy/colonoscopy the other day that we're waiting on results for, but they think it might be celiac. This was stumbled upon by the rheumatologist that he's been going to for his arthritis- which is mild and she felt it was connected to a bigger issue, so she ran a bunch of labs. He had a positive...

Okay, obviously still waiting to hear back on the biopsy results, but I did notice that the GI doc made this note on all her paperwork she mailed to me and the pediatrician from our labs and visit last week: IMPRESSION- Michael most likely has reactive arthritis associated with celiac disease. Other considerations- Crohn's with assciated arthritis...

My son recently had a positive celiac screen and yesterday they did an endoscopy and colonoscopy to also look for crohn's or colitis (I have colitis). At this point he will be 12 in a few months and only weighs 58 pounds and is in the 25th percentile for height, slightly anemic and slightly low vit. d, and has arthritis. Right away they said that he did...

I'm not going to say my son has never had stomach pain before, but it is not his defining symptom, either. He originally was being looked at for a possibly arthritic to. They did an ANA panel, and that was raised, then among all the tests they happened to do aceliac screen as well, and that came back positive, too. His ANA was high for IBD (among a bunch...

I could be wrong about this because I am still learning, but I think Crohn's can sometimes cause elevations. My son had elevated tTg levels, and they are doing an upper and lower scope to look for both of these things. He is not too happy about this!

I'm Catholic. You can't substitute rice wafers for wheat in the Catholic Church. And one chalice will always have a small piece placed in (though it may be the priest's chalice). I spoke with our priest about it, and it is perfectly acceptable to recieve from the chalice only- you are still recieving the full sacrament. If they don't typically offer a...

I am in the same boat as you. My son had positive labs (his tTg was at 56, so I don't know if that's very high or not- guessing not, but maybe someone more knowledgable can correct me). This was found by a rheumatologist, and she REALLY wants him scoped. He isn't able to get in for a GI consult until June 8th! I'm praying that they schedule whatever tests...

Please be careful with those grains! I'm actually on here because of my son, but I myself have ulcerative colitis, and I do know I definitely have gluten issues. My symptoms were very much like yours. I thought I'd eat healthier, so I switched to whole grains, skim dairy, and beefed up on my fruit intake. I sound a lot like you. I thought my body just...

When I used to eat ice cream, I always had trouble sleeping if I ate it late. I get that "restless leg" feeling, but all over. I know if you mess around with going on and off gluten, it can screw up any medical testing, if you do decide to go that route. I think I did that to myself. I have an 11 yr. old son that is having some issues right now, so I...

Thank you for your replies. His doctor said his Ttg level was at 35 (I think that's right), and 0-19 is normal? Does that sound right? What's funny is I went to have a screen at a clinic about a year and a half ago (after being almost completely gluten-free and then falling off the "wagon" for a few weeks), and my Ttg was at 19, which was said to be normal...

I have a feeling this might get lengthy- sorry! I have a son that will be 12 in a couple of months. He is a little guy and weighs maybe 60 pounds. Off and on he has had gut issues- mainly constipation, upset stomach, etc. He went to a GI doc last year, but they initially weren't a lot of help. Back up to a little about me- me(and my family) have big GI...