missladyj

no I'm stubborn and wanted that positive diagnosis. I am nearly ready to say screw a diagnosis and just do it.

So where we last left our hero she had a lot of blood work done, which showed nothing significant. Fecal fat test (gross) which showed more fat than it was supposed to so the doc said you have a malabsorption disorder. Okay great now what. So then we did a colonoscopy which turned up nothing. An endoscopy which turned up nothing. Then we did the pill cam...

a little update. still taking the stupid flagyl...last day is monday yay!! noticed an increase in stool frequency...about 8x a day. as of Monday evening, no gluten and very little lactose (just in my yogurt drink so I have some good bacteria). still going multiple times a day but I figure my system might a) need time to adjust and flush the gluten...

when they throw medication at a problem that you have tested negative for and my mom's story (although she doesn't have celiac, she has another autoimmune disease) her doctor told her she was overweight...my mom kindly told him "you try being on high doses of prednisone for 6 months and see if you lose weight" the nurses got a chuckle out of it and said...

yay another Colorado person!! feel better!

Thank you. This is just what I needed to read.

good call. I am strongly considering getting a second opinion

7 out of 10?!? do you have a link or anything??

I called my mom and told her what you said...and she said TRY THE DAMN DIET...it's not going to hurt you...if it barks like a dog, sounds like a dog...it's a dog I gave her many rebuttals about how I wanted an absolute postive which she quickly shut down by saying I've never tested positive for Wegener's (autoimmune disease) in 15 years but all my symptoms...

when I googled them that's exactly what I thought and found but I wasn't sure because how could the doctor have missed that? I mean it plainly says in 3 locations blood, stool, and biopsy that I am negative for parasites but he still wants me to take flagyl?! If I try the diet for a period of time and the results improve...would it be worth it to later...

unfortunately I don't have a scanner and I left my camera at home. boo. it appears as though the doc is right I am completely negative for celiac. hrm. These are my blood tests: e. histolytic ab transferrin (amoebas) Result Negative 254 Reference Negative 192-382 mg/dl celiac ab panel t. transgl IGA Result 3 interpretive criteria <20 units...

I called this morning and am picking my labs and stuff tomorrow. I just wanted to say thank you for all of these responses. Yesterday was a pretty awful day. After the doctor's appointment all I wanted to do was cry...and I did a lot. Not because I was sad but just frustrated and pissy. I began to question whether or not any of this was real. Did I make...

I live in Colorado...will they give me the results? He wouldn't even let me look at them on the computer.

got my results...well sort of. the doctor told me and i wrote: no celiac sprue no infection with bacteria or parasites no h pylori thyroid is good nutrition parameters are good but because I was in the Philippines for 2 years he says parasites are still a possibility even though I've had 5 negative stool results. so I have 14 days of flagyl...

I've seen this mentioned in a few posts and not clear on what people mean. I mentioned it to my mom and she was like ohhh yeah you've definitely got that symptom. I don't know if thats her just being a tad bit cheeky or what...I mean I definitely get frustrated very easily over things that I shouldn't. My exbf once said "it's doesn't take much to piss...