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vegan lisa

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by vegan lisa

  1. vegan lisa
  2. vegan lisa
    We don't avoid iodine or soy so please double check for those ingredients. My daughter avoids dairy, egg, and many other ingredients. She has these: http://www.(Company Name Removed - They Spammed This Forum and are Banned)/Nutrition-Now-Vegetarian-Gummy-Multivitamin-Strawberry/dp/B0012AR6A4. Here is the ingredient list. Ingredients Sucrose...
  3. vegan lisa
    Hi! I've been struggling for a few years now with stomach pain and other celiac-like symptoms (joint pain, early menopause, brain fog). I've had negative blood work and a negative biopsy (May - June 2010). I went gluten free, just to try it, and it really helped. I'd say I'm 90% better, but not 100%. I also can't eat apples and a few other foods. I have a...
  4. vegan lisa
    I also have this pain as my primary symptom. I keep telling my family it's like I've swallowed a porcupine. I was misdiagnosed with gastritis, but the upper endoscopy didn't show any gastritis. I have terrible reactions to the PPI's and Zantac-like medications. They actually GIVE me heartburn and reflux, in addition to horrible digestive side effects...
  5. vegan lisa
    I had the exact same experience! It was horrible, but let me add that this experience is also very, VERY rare. Most patients remember nothing, as though they were asleep. I've been told many patients hardly remember going to the hospital at all for the procedure. Very pleasant for most! I believe the procedure requires the patient to be able to swallow...
  6. vegan lisa
    Very interesting. Thanks everyone. I think I will take pictures next time I have some. I've been relatively clear for a few days now (also gluten and possibly iodine free). I also think I could easily get my fancy researcher-GI doc to refer me to a dermatologist for DH testing. He thinks I likely have "non-celiac gluten intolerance" and is eager to rule...
  7. vegan lisa
    Hi, I have a skin "rash" on my stomach. (It isn't a rash, more like a handful of super itchy/stinging spots that look like chicken pox or small cold sores on my stomach that burst quickly and scab over.) It's been coming and going for at least 10 years, and for about the same amount of time that I had joint pain. The joint pain went away when I gave up...
  8. vegan lisa
    Quick History: I have had over a year of stomach pain. The GI issues (except for stomach pain) have mostly healed and they turned out to be a reaction to a medication, and were NOT food related. I've had a celiac blood panel done, which was negative (actually 0, not just below threshold of a positive test). My total IgA was normal. I had an EGD and the three...
  9. vegan lisa
    Thanks for your thoughts. I quit taking the Zantac, which as you all pointed out, makes perfect common sense! It took about 2 weeks to recover from the rebound reflux when I quit taking Nexium, but I'd been on that for 7 months. I've only been on Zantac for 3 days, so I hope to recover more quickly. I put a call in to my GI, but am going to hold off on...
  10. vegan lisa
    I'm totally baffled as to what to even discuss with my doctor. Here's a short summary of where I've been: *Misdiagnosed with gastritis after suffering from stomach pain, which at the time I thought was heartburn. I know now that sharp pain under the left ribcage isn't heartburn, but that's what I thought it was back then. I was "treated" with nexium and...
  11. vegan lisa
    I was just looking online for information about this rash. I have exactly the same thing. It looks the same, and your description is spot on. Unfortunately, I didn't have any spots last time I was at the doctor, so I've never gotten a doctor to look at it. I've been gluten free for awhile, but I made my family a gluten meal on Sunday, and sure enough...
  12. vegan lisa
    Hi! Everything will be ok. I promise. My 7 year old daughter has IgE allergies to milk, eggs, peanuts, rice, potatoes, fish, beef, chicken and pork. She reacts to trace amounts and to skin contact (hives if she even touches the food). She's had life-threatening reactions to accidental ingestion (not often) and carries (and has used) an epi-pen everywhere...
  13. vegan lisa
    I wanted to chime in here. I'm a mom to a daughter with multiple food allergies. I'm the one with gluten issues. As a parent who had to face food issues with a child, I totally hear and feel your anxiety! I had a real serious adjustment period getting used to my daughter's food restrictions. You will find a way to manage for your family. My daughter was...
  14. vegan lisa
    If you are afraid of the scope, it's really not so terrible. The "conscious sedation" they use really will make you so relaxed that you won't care a bit about the scope. Most people don't remember the scope at all, and the nurse told me at mine that many people don't remember being at the hospital at all. One advantage of the scope is that they can look...
  15. vegan lisa
    Several of your symptoms sound like allergic reactions to me. Did the allergist to comprehensive food allergy testing? If your allergist is not one who specializes in food allergies, you might want to find one who does. Your symptom list is long... I hope you find answers soon. I'm new here, and just figuring it all out too. Hopefully others who know...
  16. vegan lisa
    Some of those symptoms could be the Lansoprazole. I took Nexium and had all those symptoms. The horrible stools (oil sludge, food, urgency, etc) and bloatin got MUCH better (not all better, though) after I quit the Nexium. Incidentally, my reflux also improved dramatically once off the Nexium... what a waste that was for me, it made me horribly ill to treat...
  17. vegan lisa
    Thank you for your reassuring replies. My stomach pain is less today, though I am having dizzy spells and the feeling like my face, chest, and foot are asleep. It comes and goes, and is disconcerting, but not severe. I will stick with the diet until I feel better again, and then will be more scientific about reintroducing foods. I was wondering if maybe...
  18. vegan lisa
    Nexium caused that same kind of bloating for me. I took it for 6 months and totally regret it. My reflux is much worse now (3 months off Nexium) than before I ever started taking it; my GI said that Nexium has these side effects and that apparently it makes reflux worse for some people. Interesting about the results you are getting from your gluten challenge...
  19. vegan lisa
    I've been trying to sort out my issues for about a year. My celiac blood work was negative (I don't have a copy, but I know they tested for 3 things, not sure what "negative" means) and I had an endo that showed "no evidence of villus blunting" but did show "impressive" inflammation. My main troublesome symptoms are stomach pain and weight loss, with occasional...
  20. vegan lisa
    Hi, I have been sick with GI issues and stomach pain for nearly a year. I was initially put on nexium for my symptoms. It didn't help, and in fact I got much worse over the first 3 months. I was referred to a GI who strongly suspected celiac based on my symptoms. My blood panel and my biopsies (she took 3) were negative. My colonoscopy was also normal. I...
  21. vegan lisa
    Hi! I'm new here. Short background: I've been having severe stomach pain in the upper left abdomen for 6-8 months and off and on for years before that. My doc (mis)diagnosed gastritis and put me on nexium, which did help a little. Then I developed the strange diarrhea, foul smelling gas, total brain fog to the point of seriously impacting my family and...
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