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torimuse

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  • Gender
    Female
  • Location
    Omaha, NE

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About Me

I'm 24 and very new to all of this. I'm just glad that I have this forum, and other friends and family who have multitudes of allergies and other auto-immune diseases (including two diagnosed celiacs) to talk to about this.

For non-health related stuff, I enjoy dressing up in funny clothes and hitting people with foam padded sticks on the weekends in a medieval/fantasy game called Amtgard. I also read, write songs, play instruments, sew, cross stitch, chainmaille, do beadwork, wireworking, and just about anything that is arts and craftsy other than painting and drawing. :)

  1. I'm very new to this, as my signature suggests. With my move and everything, I just wanted to get food. I was thankful that the manager came up and warned me, but I was irritated that there was absolutely nothing in the entire place that I could eat. Not even fresh veggies or anything. I knew they had veggies because of salads and the celery that comes...
  2. I'm another person to suggest going on a stricter diet for a bit and see if that helps. 2 weeks after going gluten free, I discovered myself reacting still, and so I (very extremistly) cut out ANYTHING that might possibly be giving me a reaction. 2 weeks into the re-introduction period, and I'm SO glad I did. I found a hidden shellfish allergy that I hadn...
  3. So I moved to Omaha last Sunday, and my friends decided to take me out to Old Chicago, because they have steak and salad on the menu, and I LOVE steak. Anyways, we got there, and I started asking the waitress the litany of questions I have to ask, and it seemed like I'd be able to get a pretty good meal out of it. She goes back to the kitchen and out...
  4. Just as everyone here has said. You're not a fraud. It's not all in your head. I had very similar feelings myself when I stumbled across this board. I went gluten free too soon, and my doctor wasn't able to test me, even if she wanted to. (which she didn't) I have since decided that my body is a better diagnoser than anyone could even try to be. If...
  5. I'll have to go check that forum out when I have time. Thanks. I'm so happy to be back in Omaha. I hope to meet you when you get back, then.
  6. Have you tried taking yourself off of nightshades, beans, or corn? Some people on here have problems with those. WARNING: Corn is in EVERYTHING. Baking soda, Iodized salt, etc. Someone here posted a link to a corn allergy site (I can't remember where that was) that can help find where corn is hiding.
  7. On Saturday I will be completely gluten free (with 2 cases of accidental glutening) for 3 full weeks. I was self-diagnosed after I graduated college this year, but stopped by to see some of my old professors who had to work over the summer. All of the people I saw remarked about how healthy I looked, even to my Band Director noting that my HAIR of all things...
  8. Congrats on feeling better, Marz! I'm glad you're finding out what you can and can't eat.
  9. This happened to me. I was gluten free for 2 weeks, was on the verge of feeling better, then BAM, back to what it was before. Granted, I also reacted to milk just after symptoms started coming back. Maybe you have a secondary intolerance for milk or soy? Everyone's different, but I went and stuck it out, chalking it up to Gluten Withdrawal and some...
  10. Hey, that sounds like me! I used to drink a TON of milk, but two weeks after going gluten free, I reacted to milk within 5 minutes of drinking some. I went to the extremes and cut EVERYTHING out of my diet that might have any chance whatsoever of giving me a reaction, and I'm going to start testing them here in a couple weeks. I can be an extremist at...
  11. It does sound like a gluten intolerance. The test probably showed up negative because you'd cut gluten out for so long before testing. I don't know much about any home tests, but I know the hospital tests that draw your blood require you to be on a high-gluten diet for at least 4-6 weeks before the results are anywhere near accurate. That being said...
  12. I'm going to preface this by saying I am by no means an expert on anything. However, that being said, yes. Do go get yourself tested. I caught this after only a year and a half, but the fatigue was already devastating. I almost didn't graduate college because I started sleeping through class. Now I can't go to sleep. (just kidding, but it sure feels...
  13. ME!!! Granted, I'm still new to all of this myself. I haven't even been gluten free for a month yet, and I'm feeling LOADS better. Hell, me staying up 'till 3am and KNOWING that I can wake up tomorrow in the late morning is enough for me to stay gluten-free, not to mention all of the intestinal problems that have GREATLY lessened. My doctor refused...
  14. ::hugs mushroom:: Thanks for all your information. Now that I know that, I'll probably end up separating green beans and peas from the others if I end up with a reaction, just to be sure. I don't *think* I have a lectin intolerance, but it's one of those, "You never know until you try," kind of deals. I *did* react to pork and beans, but they *did* have...
  15. Yes, welcome to the misfits club. Most of us had doctors that refused to test us at one point or another, so props to your doc for testing you!! You're definitely not crazy. I never wanted this. Nor did any single person on this forum. Far as I can tell, though, we're every single one of us happier knowing what it is that causes us to be sick. We...
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