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Smarts

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Smarts

  1. Smarts
    I know this does get confusing. If it wasn't for my 10 yr old daughter reacting to gluten too, I'd think I'd made it all up in my head. Anyway, absolutely ice cream cones are a no no, and believe it or not, they put wheat in some ice creams!! Also what type of vinegar did you use? Malt vinegar is a problem too. I'm becoming a bit of a super sleuth, going...
  2. Smarts
    Yes I'm aware of that. The wonderful dietician did say that if this new doctor wants me to do the gluten challenge, then she will support me and advise me every step of the way. It's taken me 9 months to decide to go back to mainstream medics, if not for me, then I feel that I have to do this for my daughters. I was just getting on with my life and not...
  3. Smarts
    Thanks - well obviously he never bothered to correlate it histologically then!! So moving on to the next doctor... next installment to follow...
  4. Smarts
    Thankyou Roda - this was really helpful and insightful for me. I went to see my GP's in house dietician today. I was really not looking forward to it - I couldn't handle having somebody looking for more things wrong with me and not listening to me, so I wrote a long report of my entire family history and a detailed account about how the gastroenterologist...
  5. Smarts
    Okay I've posted a few times and have sort of considered myself diagnosed because of a lifetime's worth of Celiac disease symptoms, positive gene test with DQ2 (despite gastroenterologist telling me it was negative), seeing my 'allegedly' positive capsule endoscopy showing villous atrophy - which the gastroenterologist later verbally retracted as a mistaken...
  6. Smarts
    oh boy - if you hadn't said that your gastro was a 'she' I would have been convinced you were talking about my EX-gastro!!!! I've talked long and hard about this one ever since I was in your shoes back in July. If you want to read my whole sordid history then I posted again the other day on the post diagnosis forum. What seems to be clear to me is that...
  7. Smarts
    I'm learning to deal with the anger that this brings up. What amazes me is that here is a true medical condition, for all of us, our lives are much improved simply by avoiding eating several foods, less health problems, less strain on the health systems - but then again our suffering is lining the pockets of some fat, greedy money hungry 'doctors'. What...
  8. Smarts
    I haven't posted here in such a long time. When I last posted I was very confused. A top gastro enterologist was trying to get to the bottom of "The Family Tummy" as I call it, as stomach (and many other health) disorders have been passed down from generation to generation. After 2 years of testing and only concluding that I am very anaemic, have a hiatus...
  9. Smarts
    I don't know about reimbursements here - I'll ask the doc tomorrow - but everyone is reluctant to formally diagnose me. My GP said it just wasn't important. vbecton - your story sounds like mine. I've had my GP for 14 years since I first arrived in this country and he is a really nice man, not at all patronising - but these days I do find him a bit vague...
  10. Smarts
    Can this get any crazier - I don't know whether to laugh or cry? So I saw GP this evening - boy was I nervous. He looked at the gene test result and said that he had never heard of diagnosing by gene tests before and personally he thought a diagnosis should be based on symptoms and reaction to the gluten free diet alone (who cares about the silly tests...
  11. Smarts
    Thanks for the Bipolar advice. The Seroquel comment was appreciated, I am cautious over "mind altering" drugs, but experience also tells me they can make life bearable. When I went on the tablets I read about all these people who complained that their life was destroyed by Seroquel because they couldn't get out of bed. Most were taking 200 - 300mg and...
  12. Smarts
    Hi Nora - it was me who said my doc said I needed at least 2. Yup this is what I am dealing with. As usual you are all amazing. Having confirmed results is not only important for me but I feel my little girls too. I had to make a dash to the toilets in the shopping centre the other day so that 9 yr old could gag (she's on the gluten-free diet but maybe...
  13. Smarts
    Thankyou Skylark - I do wonder why it is so important to me to have an undeniably positive result - crazy. But I do want a piece of paper that tells me I didn't dream up the villous atrophy thing. Got to tell you a funny thing re the Bipolar though. This new doc I saw today is miles away, it was an hour & half drive (and I never drive outside my...
  14. Smarts
    Okay follow up of my GI who after he said he found patches of VA, ran blood work and said no way to any food intolerance considering I only have one Celiac gene which meant nothing. I have spent the whole week trying to get capsule endoscopy report and blood test results from him - am still waiting. So I went into my GP today who gave me print outs of all...
  15. Smarts
    I'm hearing you all and gee I am feeling so mad after being told this week I am not predisposed to celiacs as I only have one positive gene and there is absolutely no chance that I have a food intolerance to anything, despite him finding villous atrophy. 4 years ago I was desperate to shed some kilos (I was hypermanic with Bipolar II then too) so I cut out...
  16. Smarts
    Hugs SJD - I didn't mention about my kids here - but I have posted elsewhere and it sounds like we have things in common. My 9yr old has reflux and IBS and still wets the bed + occasional mysterious skin allergies - it's my 7 yr old daughter I'm concerned more about (who doesn't have tummy issues). She has major anger issues, but it can't be considered...
  17. Smarts
    As usual you guys have been amazing. I am still feeling really horrible about the whole thing, and really kinda bipolar. I am now wondering if the fact that I have had a really upset stomach and this massive mood swing over the past 24 hrs could relate in anyway to what I ate at the weekend - I didn't feel great after eating a gluten free (base) pizza on...
  18. Smarts
    I'm really here for a shoulder to cry on, though I really feel like I'm not meant to be on here at all now !! Most of all I am confused and angry. Sorry - but I am going to blabber on for a bit - please bare with me. Until I was 27 I lived in UK where in hindsight my treatment by doctors was appalling. I had stomach problems, health issues, mood disorders...
  19. Smarts
    I'm hearing you Connie loud and clear - I'm at the very start of my discovery of that evil little protein!! I haven't had the double vision - but I've had a lot of other things. Missed most of high school because of mysterious illnesses where I couldn't get out of bed. My early 20's feel like a blackout. One significant thing I remember from then that...
  20. Smarts
    Believe me - I am so tempted!! My 7 yr old is going to a party this afternoon. Just bumped into the girls Mum who told me "don't worry, we have a gluten free chocolate cake for your daughter and another girl from the class". Seems my girl had told the party girl she was gluten-free, who told her Mum!!! I didn't even know there was another child in her...
  21. Smarts
    Hi - when my doc showed me the villious atrophy on the screen last month I had barely even considered gluten intolerance (crazy looking back on it considering how much ill health I have had in my life). I was pretty uninformed, and was overwhelmed by information from well wishers about the benefits of a gluten free diet for children. I discussed it with...
  22. Smarts
    Mine seemed to pop up pretty much anywhere, sides of my tongue, side of my mouth where there is a crease and behind my lips or on my gums over my teeth. My ulcers always seemed to come in clusters, but I never gave it much thought as the doctors and dentists were never interested. Hadn't had one for quite a while - but after my first month of being gluten...
  23. Smarts
    Sorry this is so long!! I just really wanted to touch base to let you guys know how my gluten free diet is going (after my doc found villous atrophy last month from a capsule endoscopy). I see him again on Tuesday and will find out the results of the genetic blood test , but meanwhile chose to go off gluten. In doing so I found I react to corn (even...
  24. Smarts
    Wow thanks for all this feedback. I'm scared to even look into dairy and eggs (I think I'm okay there). I'm also reacting to wheat (funny my doctors only comment when he sent me for a blood test was "it looks like a wheat intolerance", but later I read the blood test instructions which asked for genetic testing for celiacs). I've also had suspicions with...
  25. Smarts
    Hi I posted the other day about the possibility that I could have celiacs or gluten intolerance, because by chance my gastro doctor discovered patches of flattened villi when he ran a capsule endoscopy last month. I'm still waiting for results from blood work, but in the meantime I have been gluten free for 3 weeks now. I have had a lot of ill health over...
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