IngridBeth

Arrgh, I am frustrated!!! Today I was running back-to-school errands with the kids, and though we don't often do fast food we swung by McDonald's for some lunch. I asked them about gluten-free info, and the girl had no idea what I was talking about so she got the manager. He just showed me a "nutrition information" list which had only fat and calorie info...

I'm pretty new at this myself being only about 5 weeks gluten free, but I can tell you that First, your symptoms sound a lot like mine (Fibromyaglia diagnosis in my case, high bp, etc.) Second, my doctor acknowledged that blood tests can be misleading and based on a number of other factors, he diagnosed me with "probably Celiac but certainly gluten...

Hey, does anyone know if Curly's Baby Back Ribs are okay? I ate some tonight thinking they were (DH is usually really really careful about label reading) but now have terrible heartburn, aching, exhuastion. Now it could be a coincidence, and I am only about one month gluten free so it's still up and down anyway (plus I've just recently gone dairy free as...

My blood tests were suppoedly negative as well (I haven't seen the actual results nor do I know the specific tests they did) BUT my doctor diagnosed me as "probably Celiac - certainly gluten inolerant" based on a number of other factors. I feel like his dx is plenty good enough - I am responding to gluten free diet and now learning I have to go dairy free...

Okay, so I know many of us with the eventual Celiac diagnosis have previousy been diagnosed with Fibromyalgia. I got a diagnosis of FM in 2003 - and had it confirmed by several doctors (I think I was in a bit of denial as I didn't really believe it the first few times I heard it). My symptoms did improve over time but only after years of serious exhaustion...

I got bad headaches too, for a few days during the first week of gluten free life! I had other weird symptoms too, it has been up and down. Today is an "up" day (it's week three now) and I hope there are more of these ahead. But I know I am a believer in gluten withdrawal now! Also I have had a few major intestinal attacks, not sure that is withdrawal...

This is certainly strange! I can't imagine anyone thinking Celiac was contagious...? BUT just to put a different light on it here are two other possibilities: First, you metioned having had several miscarriages and obviously you want children very much! Do you think it's possible that she (misguidedly) thinks it would be emotionally hard for you...

Hi guys - I too have been facing the fact that I have to part with most of my beloved lipsticks...so I've been doing a lot searching for information about gluten free makeup. Here is what I have seen so far: MAC has a lot of gluten free options. AND the great part is if you bring in six old containers of their makeup, you get a new lipstick for free...

Well, I have had symptoms for years apparently, that were diagnosed as IBS and Fibromyalgia, as well as a host of other things like asthma, sleep problems, and others that have gone on for a good part of my life! I had no idea they could be something like Celiac, and certainly not that it was possible all these varying symptoms could be part of the same...

Sorry for your experience - most folks in health care professions are wonderful, but sometimes you encounter one who makes you wonder why on earth they went into a people-helping profession! I just wanted to share that I too tested "negative" (not technically in the positive range) BUT my GP still feels there is strong enough evidence of Celiac based...

Well I just wanted to say thanks for all the good advice here, and I spoke to my doctor today. Althought the antibody test was negative, he feels that based on symptoms and response to diet, he feels it is "probably Sprue or at the very least gluten intolerance." So...I feel kind of good that he agrees we are on the right track here. Very encouraged to...

Okay maybe this has nothing to do with gluten issues - but since going gluten free I have had strange cravings, especially for mustard! Is that weird, or what? It could be a coincidence but I was just curious if anyone else experienced anything like this...?

Did anyone else get "flrae ups" (episodes of bad stomach pain, diarrhea, etc.) after they've been doing better off gluten, and can't pinpoint the source? I have had this twice since going gluten free last week - otherwise I feel better. But in both cases I do not know what caused it! Once was pretty much right after lunch, what I thought was a gluten...

Thank you for the responses! I feel so frustrated right now with testing negative and yet responding so much to the diet change. I know people say just do the diet anyway and I certainly will, but for dealing with friends, family and even my other doctors I just would really like to have an actual diagnosis. Even if it's just gluten sensitivity or something...

Thanks guys! I had a small (black) coffee from DD today and it seemed fine - phew! I don't particularly like to drink it black but right now dairy doesn't agree with me Maybe I'll get used to carrying around a gluten free non dairy creamer