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Latest Celiac Disease News & Research:
Everything posted by Tidings
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OK, back with a brief report on our experiences with BC choc-chip cookie mix... It was rather weird and a little difficult to mix up the dough. When they said "dough will be crumbly," they were not kidding. Maybe if they upped the amount of butter or added a little oil or more egg, the dough would stick together better? Had to roll dough in hands (like fish...
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ARCHIVED 3 Years On, Still Sick.
Tidings replied to up late's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That description is absolutely PRICELESS--and so true for so many of us! -
ARCHIVED Anybody Have Problems With Gelatin?
Tidings replied to Tidings's topic in Gluten-Free Foods, Products, Shopping & Medications
This stuff about sulphites is very interesting. Had not really considered sulphites as a problem, but when I look at the list on the following link, I do see several foods/substances that are known to provoke a reaction in my system: Open Original Shared Link Substances like gelatin, pectin, chocolate (sometimes)... Not sure if it's the sulphites themselves... -
ARCHIVED Anybody Have Problems With Gelatin?
Tidings replied to Tidings's topic in Gluten-Free Foods, Products, Shopping & Medications
EXACTLY!!! LOL! By the way, when they say vegetarian cellulose, you don't suppose there's a chance they could be talking about a gluten-containing grain (is grain a vegetable?), do you? Have noticed a lot of products specify plant cellulose, but not sure what exactly their source is. ?? -
ARCHIVED Anybody Have Problems With Gelatin?
Tidings replied to Tidings's topic in Gluten-Free Foods, Products, Shopping & Medications
"Frankinstein food" is a good way to describe some of this stuff! Recall in the old monster movies there often was a creature/being/monster that took the form of a GELATINOUS SUBSTANCE! UGHHHH. ! -
ARCHIVED Anybody Have Problems With Gelatin?
Tidings replied to Tidings's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi Kathy, Some sites online claim that there can be MSG in some gelatins (processed kind), which might explain some folks' reaction to the gelatin in foods they consume. What I find odd (intriguing) is that so many of the foods/substances that cause a reaction in me are the "GLUEY" kind that are used to hold foodstuffs together or provide smooth consistency... -
ARCHIVED Anybody Have Problems With Gelatin?
Tidings replied to Tidings's topic in Gluten-Free Foods, Products, Shopping & Medications
Hi cassP, I think it was the gelatin, because I recognized the "gelatin hangover" from many, many prior episodes, which is why I called and asked Chef if there had been any gelatin in the meal, which it turned out there was. (Interesting that your potato starch was "gelatinous"! LOL) -
ARCHIVED Anybody Have Problems With Gelatin?
Tidings replied to Tidings's topic in Gluten-Free Foods, Products, Shopping & Medications
Well, to each his or her own, but you'll never find me willingly eating CHICKEN FEET! LOL! By the way, there are a lot of articles online about allergy or hypersensitivity to gelatin, such as: Open Original Shared Link Open Original Shared Link Open Original Shared Link and so on... And here's a few gross shots of chicken feet: Open Original Shared... -
Sorry to hear this! Bought some of this cookie mix last week and have not yet had the energy to bake them! Been waiting for heat wave to let up before lighting the oven. (Hopefully, they are better than NO cookies at all!) PS Wonder what was so "aweful" about the BC c/chip cookies? Did they not hold together well? Were they too bland, blah, no texture...
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ARCHIVED Anybody Have Problems With Gelatin?
Tidings posted a topic in Gluten-Free Foods, Products, Shopping & Medications
Gelatin seems to be another substance that causes all kinds of side-effects and problems for me. Wondering if anybody else with gluten intolerance/celiac has problems with gelatin? (Wonder, too, why so many vitamins & supplements have to use gelatin when it causes problems for many people? Guess it is a cheap binder...) One evening we ate out at... -
ARCHIVED What Thyroid Tests Should We Order? & Another Disappointing Dr.
Tidings replied to Tidings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi again Roda, I wrote "Is there a particular type of Vit. D that is easier to assimilate than this one here (Calcium Citrate+D as cholcaliferol)?" and then today I realized I had grabbed the wrong White bottle with Vitamin D written on label! The one I was taking was Vit. D3 2000 IU, and sometimes I broke them in half because they're hard to swallow and... -
Hi cassP, Will try the kelp on a VERY small dosage (like one-quarter to start with!) and see if anything happens. (Probably the only thing that will happen is face will break out, which has happened in the past on iodine...) Thanks for the info on the green veggies--we eat quite a bit of br. sprouts & broccoli, mainly because they're supposed to...
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Have LOST HOPE on current/recent two doctors and LOSING MED COVERAGE on Thursday, so further testing's probably not going to happen in the foreseeable future. Am resorting to acupuncture for time being, and whatever supplements seem helpful. --Although I have been taking vitamins and various supplements for YEARS and don't see a lot of benefit; I wonder if...
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Will KELP help? (Not meaning to be a poet, there, by the way!) ;P Am tempted to start taking a low dose of "Icelandic Kelp" to see if that would help my overall health, assuming I have a sluggish thyroid (which it is beginning to look like is the case). But I've read some articles online (see links below) as well as some posts in this forum that suggest...
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ARCHIVED What Thyroid Tests Should We Order? & Another Disappointing Dr.
Tidings replied to Tidings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Roda, Wow, that sounds like a lot of Vitamin D. How low was your D-level? The doctor wanted me to take 1,000 units a day (which I was already getting in my multivitamin; I added between 500-1000 additional IU per day); but that was during "darker" months when we weren't outside much. (What's weird is how quickly my level fell back down as soon as I stopped... -
ARCHIVED I Think I Have Celiac
Tidings replied to Nancy19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi ravenwoodglass, The only explanation I can come up with about the doctor(s)' advice/treatment is that I, like many people here and elsewhere, have been wasting my time with very UNhelpful (and probably inadequate/quacky) doctors, period. (!) Anyway, yes, I have resumed the Vitamin D supplements; and I've taken a "good multivitamin" (NatureMade Multi... -
ARCHIVED Insomnia With Itchy, Antsy Bottoms Of Feet?
Tidings replied to Tidings's topic in Related Issues & Disorders
Quick followup on this thread: As soon as I stopped the Lisinopril, the itchy/twitchy feet thing stopped, so I'm pretty sure that was the source of the restless FEET syndrome that caused so much insomnia. Am trying to do daily walking to address blood pressure, and maybe it will also help with the sleep problem... Time'll tell! -
ARCHIVED What Thyroid Tests Should We Order? & Another Disappointing Dr.
Tidings replied to Tidings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi again, folks, Have been away for a while, busy with doc appointments and blood work. As noted in another thread, I'm getting REALLY confused (and discouraged) about the various test results, especially the Thyroid levels and what they mean. My TSH in July was 2.32; then in September it went to 4.35. When I pointed this out to doctor, she said "TSH... -
ARCHIVED I Think I Have Celiac
Tidings replied to Nancy19's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Sigh... I'm getting REALLY confused about these Thyroid levels and what they mean... My TSH in July was 2.32; then in September it went to 4.35. When I pointed this out to doctor, she said "TSH goes up, TSH goes down; means nothing." ??? Just had additional blood work done with following results: Thyroxine (T4) 6.9 range 4.5-12.0 Triiodothyronine (T3)... -
Interesting responses. Thanks for your input. Mari, I often get "sore spots" (reddish inflamed areas that are sensitive and painful) right on my knuckle areas. I noticed when I take BLACK WALNUT HULLS, these areas disappear almost overnight! Black Walnut is a blood cleanser and is rich in silica; is often included in "parasite-cleansing" formulas. (Funny...
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Hello folks, This might sound a little odd... but... Was wondering if anybody here with Celiac/gluten intolerance and/or Chronic Fatigue Syndrome noticed that they rather suddenly manifested "liver spots" (brown freckle-like marks) on the backs of their hands, wrists or fingers? Had always thought this was a marker of "old age," but when I got C...
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Hello again, folks, Those of you who've read the TOP FIVE REASONS TO CHANGE DOCTOR thread will perhaps remember that I "fired" my former G.P. (sort of) and was hoping the new one would be better... Well! Saw her yesterday and had hopes dashed... Brief synopsis of encounter: First, they were running horribly BEHIND, and I had to wait over 1.5 hours...
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Forgot this one: I describe recent Atrial Fibrillation to G.P. doctor and he goes, "That's not atrial fibrillation!" and proceeds to hammer me with "There's absolutely nothing wrong with your heart. There may be a psychological component..." I insist on a heart monitor test, and on the first or second night of wearing it, my heart goes into Atrial-fib...
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Good for her! More doctors need to be lambasted about their "crappy bedside manner"--not to mention their disdain for patients, their thin-skinned "professional jealousy" ("I'M THE DOCTOR HERE, NOT YOU" attitude), and their all-too-frequent lack of essential medical knowledge.
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ARCHIVED More Test Results:
Tidings replied to Tidings's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Hi Mushroom & LookingforAnswers: Maybe a "subclinical" thyroid problem has been kicked into hypergear by the Lisinopril? (And I wasn't even taking a large dose, either, because I'm so hypersensitive to meds & chemicals!) (To add to the confusion, had eye surgery in June (as well as starting the Lisinopril) which made it necessary to take a LOT...