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Tidings

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Everything posted by Tidings

  1. Tidings
    Aha! Now I see an envelope under your name! Thanks, Peter, for all your help. (The messaging had been disabled, but is now enabled.) As for "PIP," I've seen it under some members' names in bold face. Once I saw it under my log-in name and another time I saw it under somebody's name as PIPPIPPIPPIP!? Have no idea what it means... Been scratching my head...
  2. Tidings
    Hi, I personally hope that the old posts remain because many of them contain valuable info. One such older post was several years old and I didn't realize it when I replied to it, but the content was still valid and interesting. Hopefully, such older posts will not be designated as "closed" or "inactive" which would bar us from interacting with the content...
  3. Tidings
    Hello folks, This is a wonderful and very friendly place to learn more about Celiac and hear others' experiences! A few technical questions: 1. What does "set status" mean?, as in "has not set status"? 2. What does PIP mean? 3. Is Javascripting necessary to see everything and make everything work on the site? Or just Cookies? 4. Is there a way...
  4. Tidings
    Hi everybody, Was wondering if folks with Celiac disease or Gluten Intolerance tend to be DISORGANIZED and/or have problems with DYSLEXIA? I guess those are two unrelated (?) conditions, but ever since I got CFS (back in mid-1980s) (feels more like mid-1800s!!), I have been plagued with both a tendency toward dyslexia and an inability to be organized in...
  5. Tidings
    Some time ago a friend who was nursing her new baby came by and I noticed the baby's cheeks had a mild red rash on them. She wondered what was causing it. I suggested it might be something SHE was eating or drinking that the baby was allergic to... In recent years, I noticed my left cheek was slightly puffy and red. Just the left one, not the right one...
  6. Tidings
    Lots of good ideas here. Thanks, everybody! Will definitely try some of these suggestions, especially the peppermint & green tea and coconut water. Have been taking "Align" probiotics and stepping up yogurt with all those good little critters. And yes, the "motility" thing definitely seems to be the problem. Maybe cutting out all dairy for a while...
  7. Tidings
    Hi srall, Guess what's wrankling me is the "Gluten Intolerance" INTOLERANCE that some family members exhibit! (LOL) It probably speaks more to their fears than anything else when people feel compelled to DENY other people's lived experience. Thank heavens for supportive forums like this one. :-)
  8. Tidings
    Okay, here's another example of FAILURE TO VALIDATE a relative's suffering, which also prompted my original post in this thread. My mother-in-law tends to pooh-pooh any health problems I'm having, which means she's pooh-poohing a LOT because, like most folks here, I have a LOT of chronic, ongoing health troubles, including CFS, high blood pressure, glaucoma...
  9. Tidings
    Hey rdunbar, Your relatives sound so much like MY relatives that maybe we are related! Haha... To those who were confused about my initial post (which I thought was clear and felt others would readily grasp from their own firsthand experience with family's tendency toward denial about the reality of gluten intolerance and its painful side-effects):...
  10. Tidings
    Like so many others with Celiac disease or gluten intolerance, my digestion is chronically slow and sluggish. Over the years, have gotten used to taking Magnesium tablets, which seems to help. Used to take one 250 mg Magnesium in morning and one at night; then it became two in morning and two at night. Now am up to FIVE Magnesium tablets a day, on most days...
  11. Tidings
    Darn! Just found out on the Hyland's Calms Forte website that the natural sleep aid, Calms Forte, which I've been using apparently has GLUTEN in it. :-( Quote from Hyland's site: "Does Calms Fort
  12. Tidings
    Hello, folks, Am sure this topic has been discussed somewhere among all the many fascinating topics on this site. Thought I'd start a new thread devoted specifically to the frustration/problems experienced when immediate relatives constantly DENY that gluten can be the source of our relentless G.I. problems, and ask how others deal with it. It is bad...
  13. Tidings
    Hi Peter, Thanks for the info. What is puzzling is how or why companies are still permitted to simply state "NATURAL FLAVORINGS" or "SPICES" and similar nondescript terms on their list of product ingredients. All too often, vague terms like "FLAVORINGS" or "SPICES" can really mean "MONOSODIUM GLUTAMATE" and MSG-derivatives, which can provoke serious allergic...
  14. Tidings
    Thank you to all who have answered in this thread thus far. Very interesting, the way so many of us have folks with "stomach problems" including intestinal cancers in our family tree. Most of the books I've read about Celiac disease do suggest that untreated Celiac can progress to various cancers. Knowing this, especially when you've lost relatives to intestinal...
  15. Tidings
    To Richard and nora_n, The post carrying those two links did not "recommend" or consider them either "right" or "flat-out wrong." My post was listing ingredients that I personally have negative reactions to, and was asking if anybody knew whether there might be a GLUTEN connection with any or some of them. Then the post said, "Found some links..." It is...
  16. Tidings
    Hi, Just found this article about increased ZONULIN levels in people with Celiac Disease: Open Original Shared Link Was wondering if anybody knows whether there are tests involving Zonulin levels that would clarify if a person has Celiac or Gluten Intolerance? In other words, just as biopsies that determine a person has DH can clarify that a person...
  17. Tidings
    Having had CFS for decades and along with it, MANY MANY food sensitivities, I've had to develop a list of ingredients to AVOID if I don't want to suffer incredible side-effects like heart arrythmias, intense head/eye pain, increased glaucoma (ocular hypertension) and high blood pressure, puffy eyes, water retention, etc. etc. Some of the no-no items very...
  18. Tidings
    Thanks, Lisa. Some of the posts quoted GlaxoSmithKline as follows: "Thank you for contacting us regarding Sensodyne
  19. Tidings
    Does anyone know for sure if SENSODYNE does or does not contain Gluten? Seems like the only thing one can find is "we're not sure our supplies are gluten free" dodgey answers from the Sensodyne company?
  20. Tidings
    Hi again, Was wondering if others here who have diagnosed Celiac Disease have noted a trend of intestinal or colon cancers in their family tree? Was doing some research in that regard recently and noted that several family members have died from intestinal or colon cancer (father, grandmother on mother's side, aunt on mother's side, cousin on mother's...
  21. Tidings
    Hello folks, The dreaded "SHIN ITCH" returned last night about the time I was trying to fall asleep. Have not been bothered with this annoying, intense itch on the front, shin-area of leg(s) for a long time, but suspect that something in the Eggplant Parmesan dinner I made last night might have had some GLUTEN or a similar substance in it to set off this...
  22. Tidings
    Hello folks, Would like to hear some details from those of you who have experienced a "glutened" after-effect, such as: *How soon after you ingest gluten do you begin to feel "glutened"? *What after-effects or reactions do you experience? *How long do/es the "glutened" effect(s) or reaction(s) last? Had always expected to feel "morning after...
  23. Tidings
    Hi Skylark, Am curious about your itchy blisters on your hand. Could you please describe them further? Were they on your hands (back or front) or more on your fingers? Did they take the form of small blisters that were fluid-filled? Did they eventually break, dry up, and go away? Am really wondering about the details of the DH that plagues some folks with...
  24. Tidings
    Thanks to all of you who have posted your thoughts in this thread. And yes, the thought of a "gluten challenge" does induce a certain amount of queasiness, based on recent SEVERE pain and problems after enjoying a carrot cupcake and, the week before, some pizza! Have kept a journal for years that substantiates the growing suspicion (conviction?) that...
  25. Tidings

    Thanks to Sarah at personalizedcause.com for allowing me to adapt their beautiful green Celiac Awareness ribbon as my "avatar" graphic.

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