Ruth UK

Hi, This is my first post here for many months, following a very frustrating time getting an officaial diagnosis of celiac disease, which was then follwed almost immedaitely by a masive OCD relapse. Yes, I have BOTH. No, the celiac disease diagnosis wasn't the cause of my OCD relapse - but I know that last summer following my 'unofficial' dx I...

I'm a real 'newbie' to the gluten-free diet - not quite two weeks in yet. But so far I've not 'slipped up' nor had the desire to do so (unless you include the 'malt extract' in the packet of cornflakes I finished off in the first two days - there's a hot debate going on about whether or not this is 'safe). I did go to reach for a regular biscuit at...

Ken, If I remember correctly magnesium is supposed to be brilliant at helping the body to relax, and therfore sleep. I used to be really badly troubled with restless leg syndrome - constant sleepless nights! - - triggered, I believe, by my long term anemia, which was in hindsight due to undiagnosed celiac disease. However, i started taking Calcium...

Hi, Kaiti, Thanks for yr reply. I have three main reasons for wanting a biopsy: 1. Need to know for certain why I've been anemic for so long - if no damage to villi (after presumably 25yrs + of having celiac disease) then why am I anemic? 2. In UK we can get gluten-free food on prescription - saves a LOT of money, which I need to do because I...

Hi, I, too, am from the UK and have just received +ve blood tests for celiac disease. However, as others have mentiond, I'm not on a gluten-free diet until I've had my biopsy. Actually waiting for appoitment with GE consultant at present and will hopefully have biopsy after that. Because I found out that I had to be eating gluten in order to get...

HI, Michael, Is your GP now prepared to send you for blood tests and an endoscopy/biopsy, or do you know of a GP that will do this for you? It's just that it would be really rough to get yourself all 'glutened up', only to find no GP will refer you. (I suppose the alternative is to go 'private'?) I'm still waiting for my GE consultant appointment...

Michael, I am honestly NOT stalking you. It's just that it's great to have someone from the UK here who is obviously very well read! May I be cheeky enough to enquire what your profession is? (Obviously, don't reply to this if you don't wish to.) I may have already mentioned this in another post to you, but my lad has ADHD, Asperger's Syndrome and...

Hi again, Michael I've learnt lots from this board - but thought I'd let you know of two UK ones which dicuss most things (if you don't already know about them). Busiest one, although not 'easy to use' is Open Original Shared Link Second has a very knowledgeable GP on board (very helpful - I believe her children have celiac disease): Open Original...

I'm glad this post has come up again - I visited one of the sites recommended by 'FreyaUSA', and was it interesting! My son has ADHD, Asperger's Syndrome and dyspraxia, and was tested a while back for 'gluten and casein sensitivty' (re 'opiate' theory of cause of autistic disorders), and came up as significantly +ve for 'gluten' and marginally +ve for...

Hi, Gapspan, I've just replied to one of your posts in one of the other 'topic areas'; can't remember which! I am just beginning to find out how little the Drs here in UK seem to know about this disease. I've had chronic anaemia for many years (mentioned in other post) and NO-ONE ever checked me for celiac disease (although at one point I did have...

Hi, 'Gapspan', I, too, am from UK - just received +ve blood tests for celiac disease from Haematologist following VERY long term (almost 30 years) iron deficiency anaemia. Been referred to GE clinic (could take up to 17 weeks!) and dietician. Haematologist mentioned I 'might need a biopsy', but wasn't sure if I should go gluten free beforehand or not...

Hi, I'm experiencing EXTREME fatigue at the moment (just recently been dx'd with celiac disease following blood tests and awaiting biopsy, so can't go gluten-free yet). My kids get really fed up with getting home from school to find me sleeping on the sofa! I'm a fulltime mature student but when I don't have to go to Uni for lectures I find it so difficult...

Celiac : +ve blood tests, awaiting biopsy Diabetes: No Sex: Female NB Brother had Type 1 diabetes I have been diagnosed with hypoglycemia (which some literature says predisposes to Type 2 diabetes). Hope you get all the responses you need! All the best Ruth UK

Hi everyone, I'm a newbie from the UK here. Was 'diagnosed' with celiac disease by my haematologist two weeks ago following more than 20 years of refractory iron deficiency anaemia. So far I've only had the blood tests and am waiting to have the biopsy - so have not gone gluten-free yet. I am SO desparate to have the biopsy come out +ve that I have...