BrookeT
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Latest Celiac Disease News & Research:
Everything posted by BrookeT
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ARCHIVED Hemp seeds
BrookeT replied to dania's topic in Gluten-Free Foods, Products, Shopping & Medications
I was wondering the same thing. Anybody? -
ARCHIVED Need Help Understanding Follow-Up Bloodwork Results
BrookeT replied to BrookeT's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I guess I will need to get both books and research them. I definitely don't want to have to mess with getting a yogurt maker & making the yogurt, so maybe I will go the sauerkraut route. Is that something you just buy already prepared? Do you know how long it should take to know whether or not the diet is working? Thanks! -
ARCHIVED Need Help Understanding Follow-Up Bloodwork Results
BrookeT replied to BrookeT's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Great advice! Thanks. : ) -
ARCHIVED Need Help Understanding Follow-Up Bloodwork Results
BrookeT replied to BrookeT's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
So, is the Breaking the Vicious Cycle SC diet still the best one to follow? -
ARCHIVED Need Help Understanding Follow-Up Bloodwork Results
BrookeT replied to BrookeT's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I don't have any other auto-immune disease. My doctor did the TTG igg/iga and the endomysial IGA. (The endomysial came back normal.) So, I am not really sure how to interpret that. Also, I haven't had oats since being diagnosed. I am considering trying the SCD diet though. Although, it sounds so restrictive. -
ARCHIVED Need Help Understanding Follow-Up Bloodwork Results
BrookeT replied to BrookeT's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks. I am just frustrated as it's been around 20 months and I still have some digestive issues. I had hoped my blood test numbers would have been in the normal range by now so that I could attribute my ongoing symptoms to IBS or SIBO. -
ARCHIVED Need Help Understanding Follow-Up Bloodwork Results
BrookeT replied to BrookeT's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
How long should it take for the follow-up blood panel results to normalize? It's been a little over a year and a half for me and although my numbers have come down quite a bit, they are still not in the normal range. I am extremely cautious with my diet & products that I use, so I'm not sure if it's from cross-contamination at restaurants or that I... -
ARCHIVED Need Help Understanding Follow-Up Bloodwork Results
BrookeT replied to BrookeT's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
That's good to know. I will check the articles out. Thanks! -
ARCHIVED Need Help Understanding Follow-Up Bloodwork Results
BrookeT replied to BrookeT's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thanks. I am still having some continued digestive issues, however many other things have resolved. My doctor thinks my continued symptoms could be due to IBS, SIBO (small intestinal bacterial overgrowth), or refractory celiac. He wants to do a follow-up endoscopy to see if my intestines are healing. -
ARCHIVED Need Help Understanding Follow-Up Bloodwork Results
BrookeT posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, I need some help understanding my follow-up celiac blood panel results. At diagnosis, about a year and a half ago, my TTG igg was 53.7. It is now 13.7. My TTG iga was 222.5 and is now 22. My question is, is it a good thing that my numbers have come down quite a bit, or is it bad that they are not negative by now? I follow a very strict... -
Glad that it's working for you and you're doing better.
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Thanks for the info. What about the probiotics? Which brand/type do you take?
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What specific probiotics do you recommend? There are so many different strains and different brands. Some are not effective, as they are not live past the date of manufacture. It's difficult to know which one would be beneficial. You stated that reducing carbs & sugar may not work on a bacterial overgrowth. This is a quote from Elaine Gottschall's...
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I know, this totally sucks! What type of probiotic are you taking? Have you been reducing your carbs & sugar as well?
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I suspected that I had SIBO after reading about it in a book, "Real Life with Celiac Disease." (great book btw) I am very careful about staying gluten-free, so I know it was not gluten exposure, plus a lot of other bad symptoms that I was having resolved themselves with the diet. I was still however experiencing, diarrhea, lots of stomach noises, burping...
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Thanks for sharing. What a nightmare. First celiac, now this?! I may try the SCD diet and see how it goes.
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Has anyone successfully treated SIBO (small intestinal bacterial overgrowth) and if so, how?
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ARCHIVED 3 Months Down. But Still Having Ups And Downs!
BrookeT replied to jess-gf's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, I can definitely empathize with you. I am about 7 1/2 months gluten free and am still having some issues myself. My level of damage was a Marsh III which is the highest amount you can have. I think the length of time it takes to heal is different for everyone and depends on the amount of damage you have to your intestines as well. I've learned... -
ARCHIVED Snyders Naturals
BrookeT replied to GFreeMO's topic in Gluten-Free Foods, Products, Shopping & Medications
The gluten-free Garden Veggie Crisps and gluten-free pretzels are great! I love that they are now certified gluten free. -
ARCHIVED Gluten Free & Still Having Gi Troubles
BrookeT replied to BrookeT's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I have just figured that one out, as you mentioned, that some companies say their product is gluten free but they have wheat grass or barley in them. I definitely pay close attention to labels now! I am pretty strict about avoiding cross-contamination in my house. I am not taking any meds. The only things in my diet that I question are cooking oils... -
ARCHIVED Gluten Free & Still Having Gi Troubles
BrookeT posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Hello, I was diagnosed with celiac 5 months ago and have been strictly gluten free and eliminated dairy as well, although I have it occasionally in processed foods. (I don't drink milk or eat cheese but I sometimes eat a lactose free organic plain yogurt.) All my supplements say they are gluten free on the bottles and I am careful about toothpaste, shampoo... -
ARCHIVED Those Who Are Reacting To Udi's Bread
BrookeT replied to catarific's topic in Gluten-Free Foods, Products, Shopping & Medications
What's wrong with flax? -
ARCHIVED Those Who Are Reacting To Udi's Bread
BrookeT replied to catarific's topic in Gluten-Free Foods, Products, Shopping & Medications
You could also maybe ask your store if that's something they could order for you. -
ARCHIVED Celiac Wine Lovers
BrookeT replied to BrookeT's topic in Gluten-Free Foods, Products, Shopping & Medications
I will try it, thanks! I wish I could help with the beer, but I've only tried Bard's & Redbridge (I think that's what it's called) and I'll bet you've already tried those. I thought they were decent but I'm not a big beer drinker.