ms-sillyak-screwed

This is the ONLY company I found that makes gluten free food. I haven't tryed it. I can't eat dairy.

Open Original Shared Link

All the other listings thru the links are regular food that has gluten...

Below is the email I sent and their reply:

Comments: I love your DOVE FOAM CONDITIONER - EXTRA VOLUME for use in the shower. I have been searching south east Florida Walgreens, Walmart and Publix supermarkets looking for it. I hope you haven't discontunied this product. It's the best I've found. Love what it does for my hair. Can you tell me if you still carry it? And if so where can I buy it now? If not please tell me what else you carry like it?

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Thanks for writing!

The product you have contacted us about has been discontinued. We have no stock.

Our company's goal is to provide consumers with a variety of products to meet their needs and preferences. As you know, marketing is a complex function, and many business factors are taken into consideration before discontinuing a product. Before a product becomes available at the retail level, much time and expense is involved in perfecting the formulation, consumer focus testing, and marketing support. It truly saddens us when we must discontinue a product. However, consumer demand is a major factor. When the level of demand is insufficient to ensure that consumers receive high quality products at an affordable price, the product may be discontinued.

You may want to access our website at www.dove.com for a variety of new products that may meet your needs. email - Comments.Doveusa@unilever.com

____________________________________________________________________

NOTICE THAT SHE DIDN'T TELL ME WHAT OTHER PRODUCT HAD REPLACED IT? OR what other product is like it? The compnay still has it profiled on their web site and 'new' product. And they don't even update the information published to the public...

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PS - About curly hair and thyroid. My hair didn't get thicker and curly(er) just more coarse and wirey. And more resistant to hair color.

Just a note I'm up to 107.5

I just sent an email to Dove asking where to buy the 'new' foam conditioner extra volume. It's on their web site so they haven't discontuned it. Maybe it's become very popular and it's screamin-off-the shelves and that why I can't find it. I have been to three different types of stores to find it. And no luck! I'll wait to hear back and I'll let you know what Dove says.

glutenexpat -- You will get the answers and support you will need here with the loving people on this site.

First you might like to buy the book mentioned above -"Dangerous Grains" you must must read it.

Open Original Shared Link has it right here. If you can't affort to buy it call your local library see if they have a copy, if not have them do an inter library loan. And once you pick it up, you won't want to put it down. There are a few books with accurate informations and more with misinformation. There are several threads here about good/bad books to read.

Have you started the gluten free diet yet? It's the key to wellness...

What are some of your other illnesses? Or symptoms?

Some of us here are seeking all sorts of treatment... like I have been going to my chiropractor. Sounds odd I know, but he is resetting my digestive system along with changing some eating patterns. With his help I have been able to gain some weight I was down to 98lbs, now I'm up to 107.5 and I'm feeling much better with a combination of alternative things. I also see a neurologists, endocrinologist and I've walk-out-of more gastro doctors offices then I can count. Some with celiac disease are seeking acupuncture treatments, many people are into digestive enzymes, pobotics and vitamins.

I must confess...

I dream about wedding cake! [giggle]

tarnalberry -- "(except the icy cold shower method, research shows it works, but I'm a chicken) "

I'll share my secret. -- At my house we call it a 'brain-freeze' ice packs forehead and neck, but take it a step further... your cold shower concept works.

What I do run a warm bath, use a few drops of lavender fragant oils (if you can tolerate it) and get in the tub and relax put the 'brain-free' on your head. Relax... and the difference in the the tub temp and the ice on your head, you won't feel cold. It works for me at times... try it

I agree with what they are saying.

Back when I was eating plenty of that butter substute 'I can't believe it's not butter' it's yummy when you can't eat real butter BUT...It's made from SOY. And now I know I was OD-ing on soy. Soy was in everything I was consuming, my vitimin pills, tofo, silk milk, dark chocolate candly, chips and tuna cans (listed as veggie broth to confuse us.) and 'I can't believe it's not butter'

I do miss butter...Now I use olive oil for everything.

Guess what?

One of the most unhealthy thing a person can do is eat in thin air while flying. I owned a plane and when I was single I only dated pilots. It is a known fact it's not good to eat when in-flight. The reason is the air is thinner up there and makes your body overwork itself to digest. It slows everything down. Think of how you feel when you have 2 martini's in NYC at a bar, and, what 2 martini's feels like first class at 30,000 feet? And what you feel like when you land. ??? You get drunker faster... think about it.

What they tell you to do is eat before you fly. Have a meal perhaps 30 minutes or and hour before you leave... If you have to eat, eat light snack only. And only drink water in flight, as much as you can drink. It's much better for you.

Good article. Thanx for posting it.

I've suffered with them my entire life. They started with the cycle of my periods as a teen. Mine have all the classic triggers.

HORMONE (I got a migraine every-month-with-out-fail before, durning or after my period.)

STRESS or NERVES

FOODs - coffee, tea, chocolate & nuts.

LACK of SLEEP

ENVIRONMENT smoky room, dust, mole, meldew, CATS.

intensely blindingly GLARE in my eyes.

What has made the most difference in the frequency is [getting OFF of HRT] (hormone replacement) slowed them down a little enough to notice. Which tends to make me think mine are hormonal. Over all, I will say in the last 5 years my migraine frequency has changed only a bit, at best.

Interseting article and web site linked to it, really makes you think.

They gave me peppermint tea and gum to chew when I had gas pains following my hysterectomy.

I'm a gum chewer (opps that doesn't sound very feminine) I feel it aids in my digestion.

I read it. Its a good book and the method and diet saved the authors life. I can't do the diet it too many things I can't eat. I looked in the back index and couldn't find anything referencing celiac disease. There is something on IBS.

Was thinking of donating it to my local library so other people who might need it can get some help too.

Ursula -- Your SOY posts are working. Don't stop.

I have been keeping a food & body journal of my journey with celiac disease.

It started back over a year ago when I was going for radiation on my thyroid. I wanted to know what was making me sick(er). I bought a thick spiral bound notebook. It never leaves the kitchen or dinningroom, I keep it on the counter where I have some space. The begining of the journal I left several pages blank. I went back later and added the symbols I used to highlight things. Like I made a few stars, boxes, hearts, and etc in one color and next to it I wrote what it means and so forth. Follow me? I start with the date and time. I use a black pen to write with I leave it in the book as a book mark, and I also use colored pens from time to time to bring attention to certain things I have entered to take note of later.

I write everything that goes in my mouth, on my body, what comes out and how. REALLY IMPORTANT > I feel it is most imortant to keep tract of your stool formation - it will tell you a lot; like if it formed, loose, floats, smells, explosed when flushed, steatorrhea diarrhea, the color, undigested food particles or etc. Plus I add in what I'm doing for exersize that day and s-t-r-e-s-s factors.

Every morning when I wake up I write the date and time. I will share with you yesterday.

4/25/06 --

11:30 a.m. - Normal looking formed stool.

12:00 p.m. - 75 mcg levothyroxine T-4 compound RX

12:30 p.m. - Coffee black brewed with anise stars (for flavoring) w/sugar and two bananas.

12:45 p.m. - Chicken celery soup (fresh made with chopped celery chicken and a few tabelspoons of lemon juice no major seasoning)

3 p.m. - Baked chicken thighs with thyme and baked carrots with basil and olive oil.

4:30 p.m. - Coffee same as above a small piece of dark cocolate (free of dairy and soy.)

6:00 p.m. - Gatorade and a banana

7:00 p.m. - T-bone steak rare. Mushroom sauted in olive oil w/fresh parsley, basil, tarragon a few drops of sweet balsamic vinagar. Baked zucchinni with Italian seasoning in olive oil. Steamed asparagus. Dinner was really yummy!

7:30 p.m. - PROBIOTIC COMPLEX

8:45 p.m. - Walked the dog 3 miles -- feel really good.

10:00 p.m. - Fresh cut watermelon.

10:15 p.m. My left palm hurts the vein is bulging out and hurts a lot. (I wonder if the watermellon has too much potasium? This hasn't hurted in a few weeks since I changed my medication.)

11:00 p.m. - Feel like I'm getting a headache!

11:05 p.m. - Took 8 oz. of Pedilyte

11:30 p.m. - Headache feeling went away.

No stress today!

2:30 a.m Fell asleep. Slept well. No night sweats. Slept through the night very well.

cultureslayer -- THANX FOR THE INFO. I looked up whats in it... I can't do CORN or DAIRY. That might have been why I didn't try it before. And at this stage I stay away from DYES in pills, knowing what I know now. I don't trust these companies anymore.

Thyrolar (generic name Liotrix)

Thyrolar contains triiodothyronine (T3, liothyronine) sodium and tetraiodothyronine (T4 levothyroxine) sodium. Inactive ingredients are calcium phosphate, colloidal silicon dioxide, cornstarch, lactose, magnesium stearate. The following dies are also used:

Thyrolar 1/4 -- FD&C Blue #1 and FD&C Red #40.

Thyrolar 1/2 -- FD&C Red #40 and D&C Yellow #10

Thyrolar 1 -- FD&C Red #40

Thyrolar 2 -- FD&C Blue #1, FD&C Red #40 and D&C Yellow #10

Thyrolar 3, FD&C Red #40 and Yellow #10

I have a confession to make....

Me too! I've been in denial.

OUCH! $500.oo -- Is it really that high?

What labs do it? How do we find them?

What test code do we ask for?

Have you tried Armour thyroid? If you are hypo then some T3 might help. There's also cytomel and thyrolar (a synthetic version of Armour) if you are concerned about the pork origin of armour. It helped me, and every little bit helps when you are in grad school.

One thing I haven't done yet is get a B complex, probiotic, and prebiotic supplements to add to my daily multi. I love sushi and I'll probably have it at least once a week now that I'm off gluten so iodine's not a problem.

I took ARMOUR THYROID. It made me feel better then taking LEVOXYL. <That makes me feel like I'm crawling-out-of-my-skin. You are right you can't get a steady balance with your thyroid. I know the feeling. Somewhere I read that there was a class-action suit against the major thyroid manufacture it was a few years ago, and I would assume they've worked their problem out?! But now I know why. I've done some research. It's the dyes used in our thyroid medication is cross contaminated with gluten. Not the pills; but the dyes used in the different doses. However, I can't tolerate ARMOUR because of the pork my symsptoms are I get a sore on my tongue and my mouth. Although I 'feel better' I have had to go to a COMPOUNDING DOC to make the RX. ...And and still searching for the right level.

No, I haven't tried T3 yet, though it has been part of my plan. I have had lousy control since getting diagnosed - hugely frustrating besides the fact that I feel crappy as hell. I have been euthyroid for just a few weeks I think since starting treatment. I've been hypo, then hyper, then hypo again. I've feared the worst - that my thyroid is flailing about as it gets ready to go kaput!

So I've had no resolution of symptoms - the fatigue is maddening. My cold intolerance is the same. My hair is falling out like crazy. My skin is dry and has a snake-like texture on my legs. My eyes and red and dry. I'm ravenously hungry. This is on 50 mcg of Synthroid. I got testing 3 weeks ago when I was on 25 mcg and my TSH was 6.73 (I don't know how we are going to figure out the right dose - when I was taking about 64 mcg., I was hyperthyroid).

I intend to test again in a week, see where my TSH and T3 are at and find a doctor who will give me T3. Yes, it'll have to be either Cytomel or Thyrolar for me as I'm vegetarian and won't take Armour. I would do anything for more energy - I have a dissertation waiting to be written!

It's been tough though - figuring out if my pathetic state of being at any given time is due to gluten, some other food sensitivity, thyroid, low vitamin D, or low blood sugar. Or some other as yet undiagnosed condition!

Probiotics are also on my list to be researched, soon (along with digestive enzymes). I have not heard of prebiotics though.

Probiotics are good. They made me feel better.

WHERE DID EVERYONE GO? Lost interest?

Anyways here is a few links to some useful infromation, if you want to take it upon yourself to do something.

Open Original Shared Link

I told him that tree nuts like pecans and walnuts make my mouth itch, but almonds and peanuts don't. He said that's because you're allergic to tree nuts, but almonds are in the peach family and peanuts are beans. I knew that about the peanuts, but not the almonds.

ChelsE -- thank you for that information. Now I know why when I eat peaches I get tiny mouth blisters. I have issues with almonds, peanuts, and SOY.

This sounds odd but my chropractor is doing me more good then any of these other doctors I've been to. I have been able to put on about 7 or 8 lbs, I'm up from 99lbs. And I'm sleeping better too. He is 're-setting' my digestion system and my body some how.

Eggs are dairy. Some say not. I can eat chickens; just not the eggs. I've had a problem with dairy since birth. Eggs are a problem for me too. I get a painful feeling a few hours after I eat it. I feel like I have gas really bad. It is painful until I pass and the eggs pass out of my system.

This past week I began some new mainstream medication. I checked to make sure it was free of gluten, soy and dairy. I took it for a few days and I got a moon face with slits for eyes, my glands got swollen. That is another sympton I have from eggs. Puffy eyes and glands. I called Walgreens RX in the middle of the night. It has a complex lab name for egg starch.

In what way are you feeling worse? Are you depressed? It's hard giving up everything you have loved to eat your entire life.

How strict is your gluten free diet? You might need to give up dairy so things can heal...

Are you drinking beer or alcohol?

You might have other food sensitivities or allergies. Some have problem with corn, legumes (the bean family) and SOY. Oh and veggies called 'deadly night shade' too. They are like eggplant, potatoes, onions, peppers and more.

I drink (baby) PEDILYTE when I feel really bad. It helps restore the lost elecrolytes and balance them. It helps me a lot.

"Let's get one thing straight. There is NO such thing as a reliable stool test for sprue. That is pure quackery. Furthermore, looking at your symptoms, I can tell you right now you CLEARLY do not have sprue. In 25 years I have yet to see a celiac patient who has weight gain problems. In fact, if you think you're fat now, and we "fix" your malabsorbtion problems, you can expect to start gaining alot more weight. See, celiac is the disease of the month right now. Everyone wants to have. They want to have something to focus on in life right now, and for them, this is it. In fact, I think all this support group nonsense is really getting out of hand. It's become an obsession with these people! It's like their obsessed with finding every last molecule of gluten on the earth, and sitting around to talk about it. Rediculous. If you ask me, you probably have Irritable Bowel, and you're following this crazy gluten thing for no reason. So let's go ahead and have you return to gluten, and we'll do a biopsy in 2 weeks to put your mind at ease. I have 7 colleagues in this building that will all tell you the same thing. See you in 2 weeks!"

You must live in Florida... that sounds like my experience. Doc did a colonoscopy I asked for a biospy. He [never performed] the biospy; DX'ed with IBS. They say if you get sick in Florida, where do you go? To the airport!

Open Original Shared Link The doctors and the hospital staff botched the tests on purpose to hide the fact I demanded answers why they were poisoning her with gluten & dairy & etc. For years I fought with them about her diet and they inserted a feeding tube against Auntie's wishes. Then ultimately what was in the feeding tube was poisoning her body. I no longer trust the medical community!

Jocelyn -- Save your money, go gluten & dairy free...take it a step further...I had too, I removed a few other things and for me it wasn't the in the begining. It was 5 years after 'thinking' I'm getting better. I developed secondary allergies. Try to eliminate CORN, LEGUMES, SOY (a no-no) maybe RICE, and NIGHT SHADE VEGGIES too. Go basic. Real basic. Get the book mentioned in this thread. Also THE PAILO DIET is good to start. Do a simple diet, and slowly introuduce the foods back into your diet. If you become symptomatic you'll know whats happening. You will be able to 'read' your body.

Know there is love and support here. Forget that doc.

moonunit -- I wanted to bring your link alive...Open Original Shared Link

Section 3, paragraph 2, consensus statement.

I talked to my husband today, just about the possibility that this could be the problem, and although overall supportive, he kept saying "Well, honey, you're self diagnosing yourself. You really shouldn't do that."

Hubby doesn't get it... I feel for you. And you will get the same reaction from main stream doctors. They get money $$$$ from the insurance companies NOT to DX us. They only has 20 minutes of celiac disease in medical school. And years-ago they were told only europeans get it [not] Americans. Also remember there is NO magic pill yet (although there is one on the horizon) we DO NOT have no cure, but diet. And doc's don't make a penny if we go on the diet and get well. No more patients. Celiac is not so rare 1 out of 100 un-DX'ed. People don't want to talk about sitting on the queens-throne, the dash-to-the-john, or steatorrhea diarrhea that smells like I can't even say. See what I mean? I was on a local radio show on a Friday night telling the world I have steatorrhea diarrhea it was embarassing and no one knew who I was, or could see my face.

I have a 85-year-old daddyO that lives with me winters. He's the crumb man I call it. He sees me have these seizures, he picks me up off the bathroom floor and puts me into bed, he cleans up the mess when I loose control of my bowels and cares for me. But his crumbs make me crazy. I'm paranoid in a big way, I wake up in the morning and the kitchen is covered in crumbs. His eyes are not so go so I think he doesn't see what he's doing. I don't think the dishwashers gets all the food particles and I'm sure I'm being cross contaminated.

If you are touching wheat bread and cooking for your family and have DH that can pose a problem, I would imagine. I don't know much about the DH part of celiac disease... others know more about it then I do.

Are you going to see a GASTRO doc, or a SKIN doc?

I have a thought -- call the local labs and ask if they can do the blood work? If they can, call and ask to see if he can write the script for the blood work, go in and pick it up, go to the lab and have it done before you go in for your office visit. Follow me?