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The Horticulturalist

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Everything posted by The Horticulturalist

  1. The Horticulturalist
    October, I called the hotline earlier this week, most of the time it rang out and there was an answering machine, I did manage to speak to someone early Tuesday and I briefly gave her my history and my sons and asked if they were able to review his blood work for me, which they were happy to do. I faxed it to them Tuesday and waited, I got an email back...
  2. The Horticulturalist
    October, I just had my son's blood results reviewed (for nothing) at the UofC Celiac Disease Center hotline, they were very helpful indeed, I can't praise them enough. I talked to them on Tuesday and faxed them the copies from my doctor, they emailed me back today. I don't know if biopsies are kept or destroyed, but if they are perhaps one of their GI pathologists...
  3. The Horticulturalist
    Very, very helpful people! The hotline there is really a wonderful service. Anyway, I am seriously considering planning the long drive up there, it's about 11.5hrs from north Mississipi where we live. The lady I spoke to gave me her direct office number so I'll speak to her monday about other blood test and/or the genetic tests.
  4. The Horticulturalist
    I'll echo what everyone else has said. I went gluten free before I realised that I should have been on it for accurate testing, now I'll never know for sure whether I have celiac although I have a severe GI response to gluten. So go ahead and get the blood test and let us know what that says.
  5. The Horticulturalist
    Got an email today from the Celiac Center at UofC, it reads as follows: "I received Dr. Guandalini
  6. The Horticulturalist
    Thank you October for your reply. Do you have a family history of celiac? I do not, but several family members have other autoimmune disorders. EDIT: update, just got an email from UofC Celiac Center, their doctor recommends an endoscopy for my son, based less on the weak positive and more on his symptoms (which I would say are very mild) Will need...
  7. The Horticulturalist
    Absolutely. I've had the misfortune of having several tests that I now know were useless, but I only found that out recently, and I've been gluten free for a year so an endoscopy is probably not worthwhile for me, If I need to get an endoscopy for my son then I'll be going out of my way to find someone with experience in diagnosing celiac in kids. My local...
  8. The Horticulturalist
    I don't have a family history of celiac, I may need to get these additional bloods done. I'll see what the Chicago people say. If I were closer to UOC then I'd absolutely take my son there, the more experienced the gastroenterologists are the better!
  9. The Horticulturalist
    I posted a query previously in the forum section for kids with celiac forum here. I called the Celiac Center at the University of Chicago a couple of days ago and they now have a faxed copy of his bloodwork, I'm waiting for a review by their doctor, it's hard to be patient! These are the results for my 6yr old: Immunoglobulin A 157 (range 8...
  10. The Horticulturalist
    Did I read in another post that you are in NYC? perhaps the people at the Celiac Disease Center at Columbia can offer some help for you? Open Original Shared Link If his blood work comes back positive,or in the 'weak' positive range I'd absolutely contact a place like that with experienced pediatric gastroenterologists who are knowledgeable in this area...
  11. The Horticulturalist
    Technically, yes, it can be diagnosed that way. The gold standard test, however, is with an endoscopy and several biopsies. Have a read up about it on a website like the Mayo Clinic of the Uni of Chicago Celiac Disease Center. I've read that it's better to have someone with some experience in diagnosing celiac do the endoscopy, I also read that many GI Docs...
  12. The Horticulturalist
    Thanks Skylark! I'm hoping that the Chicago place can answer my questions,I'll let you know what they say.
  13. The Horticulturalist
    Mushroom, thank you. My son just had the Iga and TTG only. I have been reading on the website for the University of Chicago Celiac Disease Center, they have a hotline and will try to call Monday to see if someone can help interpret the results.
  14. The Horticulturalist
    Thanks to everyone who replied. I am trying to find out online if his "mild positive" result would be considered significant by Drs who are more expert in celiac, but so far I'm not finding anything. I am very reluctant to start a gluten free diet for him right now given his vague symptoms and the fact that it would rule out the chance for accurate diagnosis...
  15. The Horticulturalist
    A little bit of background on me, for the last 18 months I have a post infectious IBS type illness, my celiac blood work was -ve. I had a colonoscopy early on, however the doctor only took biopsies of the large bowel which is pretty useless for diagnosing celiac, I thought that's what he was looking for but it looks like we had our wires crossed. I only got...
  16. The Horticulturalist
    Just wondering if any of you have found, or heard of, any GI docs that would acknowledge the possibility of non-celiac gluten intolerance? From just reading around the internet it seems to be mainly naturopath type docs that would be willing to consider this. I know my own doc probably isn't one who would consider this, given that he thinks it's IBS as...
  17. The Horticulturalist
    Thanks, I am already gluten free and will add in dairy of course.
  18. The Horticulturalist
    Just got my Enterolab results in a few moments ago. I can understand the first part but will have to do some reading on the genetic stuff, I'm posting it here to see if anyone here speaks genetic Thanks for your input Fecal Anti-gliadin IgA 40 Units (Normal Range is less than 10 Units) Fecal Anti-tissue Transglutaminase IgA ...
  19. The Horticulturalist
    So I'm still waiting for Enterolab results, hopefully next week, I posted my full story a few days ago here if you're interested Anyway about 2 weeks ago (about 1 month into gluten free diet) we went on a trip to Atlanta to see Dave Ramsey Live, I'd booked this way back before I got sick and had been looking forward to it for a long time. We had...
  20. The Horticulturalist
    So I had the colonoscopy, the doctor said he didn't see anything but he took a biopsy anyway. My friend was with me when the doctor spoke with me afterwards, apparently he mentioned the dreaded IBS as the likely cause,(I don't remember anything he said) So, I'm not really sure what to do next. The doctor was very nice and all that, but I'm not happy with...
  21. The Horticulturalist
    Thank you both for your reply, I will let you know what, if anything, shows up on Tuesday. The Enterolab stuff was sent away about 2 weeks ago so hopefully not long for those results. I agree on the IBS, it feels a bit like I'm being fobbed off. If he insists on the IBS label I think I'll have to find another GI doctor. In the meantime I'm using the...
  22. The Horticulturalist
    Hello all, This is my first post here, though I have been reading a lot here for the last few weeks. I hope I am posting in the correct forum, if not maybe one of the moderators can move it. Anyway, I wonder if I might give a brief rundown of my symptoms/ history so far and see if anyone can shed any light on my symptoms. I have no prior history of...
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