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The Horticulturalist

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Everything posted by The Horticulturalist

  1. The Horticulturalist
    What exactly were your slightly raised TTG levels, do you know? Did they do the EMA? You could pay for a private consultation with a gastroenterologist if you were so inclined, if you really want some answer from them that's what I would do. If they did think you needed an endoscopy then you would of course get that on the NHS.
  2. The Horticulturalist
    Saw the dermatologist today, she thinks its eczema although it does look quite like DH. He has it on his inner elbows and behind knees, as well as other places but they are the worst, the DH pictures were all on the front of the knees and backs of the elbows. And while it is itchy, it's not nearly as horrific as I've seen it described here and in other...
  3. The Horticulturalist
    My 7yr old was diagnosed with celiac via an endoscopy and +ve bloods back in October, he has been gluten free since then and I'm fairly sure that there are no cross contamination issues for him as I had been gluten free for a year prior to diagnosis. So a few days ago he complained of being itchy, his skin on his trunk was dry and he was scratching a lot...
  4. The Horticulturalist
    Ellie, Sorry to hear about your doctor issues, that's very frustrating. I am from the UK and now live in the USA, my son was recently diagnosed here with celiac and I suspect I have it too, though they messed up my testing, it's a long story. My brother is going to a 'well man' clinic in the UK this week and I have prepped him to ask for the test in...
  5. The Horticulturalist
    I live in a small town and our local Walmart sadly stopped carrying Earth Balance, the only other supermarket that has is it is a small Kroger and it cost almost $5 per tub, so I won't buy it at that price. I noticed some dairy free Bestlife sticks and spread in Walmart the last time I was in and emailed the company to see if they were also gluten free...
  6. The Horticulturalist
    Great news that it is only a few days to the endoscopy. I hope that the GI will talk to you after the scope and tell you what he thinks, if he/she does and he give you any details do let us know what he/she said. Hopefully you will have the pathology soon afterwards. Please do let us know how your little one does on the diet!
  7. The Horticulturalist
    I would echo what the other have said about checking your pantry for hidden gluten. I have gotten rid of all gluten baking stuff and bake exclusively gluten free now and everyone enjoys it. My husband (a gluten eater) is making a gluten-free pizza for us all as I type, two of us are gluten-free and two are not. I would seriously consider doing that. Toaster...
  8. The Horticulturalist
    When is his biopsy date? So sorry that you have to endure this with him, poor little guy You've made it this far and well done for helping him with the dietary changes so far. What do his celiac blood test show, are they positive? I understand in the under fives they often don't show up. Keep us informed of your progress with him, it's a tough...
  9. The Horticulturalist
    My son (7) was diagnosed with celiac (+ve bloods and biopsy) about a month ago. prior to that his symptoms really have been mild and infrequent, occasional diarrhea every couple of months and mild abdominal pain with the same time frame. I had him tested because I suspect I have celiac and have been unwell over the last year. So, yesterday for the first...
  10. The Horticulturalist
    I can't see a +ve test there except the first one, and that's not indicative of celiac as far as I am aware. Your EMA and Ttg were both negative. I think your doctor has got mixed up somewhere, not a gastroenterologist I hope? As others have said if you want a definitive diagnosis then you need to be eating gluten for 12 weeks prior to testing for your...
  11. The Horticulturalist
    Ok, you're on! I have the probiotics, the digestive enzymes should come tommorow. I don't have the book yet, I 'll need to get that and get going on the soups/broth before next week.
  12. The Horticulturalist
    sorry to hear that. Well I'm going to head to the butchers tomorrow and see if I can get some beef bones for broth.
  13. The Horticulturalist
    I'd concur with sklyark, I'm sure they would be willing to recommend someone good in that area.
  14. The Horticulturalist
    Skylark I'm going to try and get going with it this week if I can. I made a spreadsheet over the weekend that listed all the foods allowed on the FODMAP diet, I then cross referenced it with the GAPS foods and that ruled out all grains (which I was going to stop anyway) and sugars. I have also decided to stop all the nightshades, might as well go for it!...
  15. The Horticulturalist
    I saw Dr Treyzon at Cedars Sinai, he was a very caring and knowledgeable gastroenterologist, I wasn't there for specifically celiac though but I would be confident in consulting with him about it. Or what about these people? Open Original Shared Link
  16. The Horticulturalist
    Don't have an answer really, just wondering it you had the Ttg and the EMA done as well for your son? I take it from your post that your son did have a -ve biopsy and the postive bloods, or is this a hypothetical question? I guess it's possible that the biopsy potentially missed any area of damage caused by celiac, do you know where the biopsies were taken...
  17. The Horticulturalist
    Thanks for all that info, I'll need to spend some time working it all out. I can't tolerate casein so all the fermented dairy it out. I might give the other stuff a go though.
  18. The Horticulturalist
    do you live in the USA? If she won't refer you can you see another primary care doctor who might?
  19. The Horticulturalist
    I didn't think that celiac would show up in the esophagus, perhaps someone with more knowledge can enlighten us? Typically, but not exclusively, you might expect to see it in a child in the duodenal bulb area,at least that's what I've read and what our paed GI said. did he comment on that? My son had obvious areas of erythema in the duodenal bulb, further...
  20. The Horticulturalist
    Do you take any supplements on the GAPS diet? I need to look into getting meat from organic farms, there are none nearby so I would have to order online probably. I can get venison for nothing if I speak nicely to some people,it doesn't seem to cause me problems. I can also get bass fish for nothing too, thought I'm not a huge fan it's easy to digest....
  21. The Horticulturalist
    I'm not saying that you cannot be diagosed without the biopsy as you have been, but it can be hard to be taken seriously in some quarters without the biopsy diagnosis. Like you I have -ve bloods and a severe GI reaction, I've seen 3 GI's (two hopeless though) and none were willing to diagose me, even now with my 7yr old son a year later being diagnosed (by...
  22. The Horticulturalist
    I think you may be onto something with the food combining thing. I have not read about it but I wondered if it was caused by a 'perfect storm' type thing where a combination of certain food, me being tired, and maybe some other factors all conspired together to cause it. I just don' know what the factors are though. Maybe I should just eat bananas and rice...
  23. The Horticulturalist
    I feel a little more encouraged that I'm not the only one with these random attacks! I have ordered a probiotic from amazon that I saw discussed somewhere else, I plan to completely cut out soy and corn also. This might be nothing to do with it but I've wondered if the 'stuff' they add to raw meat to bulk it out could be causing me problems, they add broth...
  24. The Horticulturalist
    Hmm, that does sound like me! The worst part is not knowing when it will happen as there is no discernable trigger, I feel like I'm being attacked by the invisible man! Like you I am eating soy, eggs, and everything else for weeks on end with no apparent symptoms, then bam, it happens again. I'm from Scotland and now living in the USA, the worst part...
  25. The Horticulturalist
    You doctor has been misinformed, a biopsy diagnosis is *still* the gold standard required for a diagnosis. Is it a gastroenterologist that told you this? There is some talk about diagnosis, for some people, being based on bloodwork only in the future, but that's certainly not the case at the moment. When did you get the blood results and are you gluten...
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