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The Horticulturalist

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Everything posted by The Horticulturalist

  1. The Horticulturalist
    I am going to go through everything again, contamination is in theory possible and I have replaced the cutting boards and so on a while back. I am getting rid of the last traces of gluten in the house as my youngest son was diagnosed with celiac last week. I've always been very careful, but this has forced me to look again. I've also decided to not eat anything...
  2. The Horticulturalist
    I just posted this on an IBS forum but wanted to post here too as I know that gluten is at least part of the problem for me, but not sure that it's the only problem. If anyone has similar symptoms I'd love to know, I can't find any stories online that sound like mine and am really at my wits end *********** Almost 2yrs ago our family had a D&V illness...
  3. The Horticulturalist
    I called them, they returned my call in about 2 - 3 days. Most of the time it's an answering machine, but they do call back. I then emailed with the lady I talked to, she was very nice. The Dr did review the labs for me at the time. I found them very helpful, can't say enough good things about them.
  4. The Horticulturalist
    Quest, LabCorp or Prometheus are all good. Prometheus is good is you are going for the genetic tests in addition to the celiac panel.
  5. The Horticulturalist
    Did you have other celiac bloodwork done, and if yes what did it say? I would ask for a review of all your notes and biopsy slides from another gastroenterologist, preferably one more knowledgeable in the diagnosis of celiac disease, perhaps at one of the celiac centers.
  6. The Horticulturalist
    It's a big shift in thinking and planning that's for sure!! My philosophy is that my son's Celiac diagnosis is infinitely preferable to a missed diagnosis and all the potential complications that can go with that. I've sent my husband off to Sam's Club today to get a bunch of food for my once a month cooking attempt, I'd better go get organised before...
  7. The Horticulturalist
    Just a thought, but is it possible that the eczema could be dermatitis herpeteformis?
  8. The Horticulturalist
    If I'm reading this correctly, it looks like he may be IGA deficient, the last test listed there looks like the normal range is 20 - 100 and his result is 16, am I reading that correctly? Low IGA is not uncommon in celiacs, it would render the other tests potentially as false negatives.
  9. The Horticulturalist
    Same story here, just received biopsy results this morning for my son and he has celiac. I have been gluten free for a year so it's not too much of a challenge for me in terms of cooking, but it will require a good deal more organization on my part! I have been in touch with the University of Chigago Celiac center, they have been so helpful and have some...
  10. The Horticulturalist
    Previous thread here We had the biopsy on Monday, it went well. the surgeon saw "patchy moderate erythematous mucosa without active bleeding in the duodenal bulb" He said it was highly suggestive of celiac, or as the report said "high likelihood of duodenitis." He gave us a copy of the endoscopy report to take home, it had photos on it (which I will...
  11. The Horticulturalist
    We are in Atlanta (came from MS) for consultation today with Dr Jeffrey Lewis of the Children's Center for Digestive Health in Atlanta, he was recommended by the Atlanta area celiac support group. He was VERY thorough in going through all the details with me. He told me where they would take biopsies from, and he said that he had a very experienced pathologist...
  12. The Horticulturalist
  13. The Horticulturalist
    Duhlina, I missed that you got your test results back before I posted, glad that you have a definitive answer and can start to feel better. Consider cutting out or reducing your dairy if you continue to have symptoms, it can cause problems for many celiacs, especially in the first year. I would ask them to test your Vit D levels, it seems that a high...
  14. The Horticulturalist
    My son (7) had a weak positive about 6 weeks ago on the Ttg, it was repeated along with the EMA (which was +ve) a couple of weeks ago and it was positive this time, so don't let them fob you off with that one. You may not have celiac, but you could have it. I recently went in to my Drs office and asked for copies of the biopsy results that I had a year...
  15. The Horticulturalist
    Have been gluten and dairy free for a year or so, tried lactose free but the GI symptoms were just the same. Having been unable to find anything online about this I thought I'd ask here if anyone who was once casein intolerant in the past is now able to eat it, and how long did this take? I can leave the gluten behind, but I'd love to think that I'd...
  16. The Horticulturalist
    Out of interest,can you tell us what kind of mustard you were using?
  17. The Horticulturalist
    So sorry you've had to endure this with your son, I hope you get some answers soon! Could you post the test results here along with the reference ranges? It could be celiac, but it could be a myriad of other things. I would encourage you not to go gluten free with him until you rule out celiac, he must be eating gluten to get an accurate endoscopy. Which...
  18. The Horticulturalist
    Babs, I had a very similar experience to you though I'll never know now if I have celiac as I had -ve bloods and my GI did a colonoscopy and only took large bowel biopsies, which is pretty useless for a small bowel disease! I cannot tolerate gluten at all (severe diarrhea, like food poisoning)and went gluten free after that test. One year on I have just discovered...
  19. The Horticulturalist
    We have one other son, and of course my husband to be tested. I'm sure the insurance company will not cover it until we have the definite diagnosis via endoscopy, so we'll pursue it after we get those results. T.H. Just out of interest, how many of the celiacs in your family had significant symptoms?
  20. The Horticulturalist
    I'm reposting this from further down the page, I added it onto the end of another thread a few days ago but it seems to have been missed. Please read the short thread here first to get the backstory, thanks! *********************** Skylark and the rest of the forum, here is an update to the story above. Short version, my son has long standing...
  21. The Horticulturalist
    Skylark and the rest of the forum, here is an update to the story above. Short version, my son has long standing nut allergies, I decided to see an allergy Dr in a nearby town about it, really just for some advice. While there I asked if he would repeat the Celiac panel and include EMA, DGP and repeat the others.Plus the genetic work. He called my...
  22. The Horticulturalist
    Yes, I have not modified his diet.
  23. The Horticulturalist
    Can you help me out with translating this list of blood tests please? In speaking to a Dr nearer to home, before they would consider an endoscopy they have requested that I ask my pediatrician to order this blood panel and the HLA DQ tests from LabCorp: Deamidated Gliadin Endomysial IgA Antibodies Tissue Transglutaminase Total IgA ...
  24. The Horticulturalist
    I think your doctor is barking up the wrong tree and ill informed. Call the hotline at the Celiac Disease Center at the University of Chicago, if you get the answering machine you can leave a message and they will call you back within a few days, they are very, very helpful and will be able to give you a much clearer picture of what you should do next...
  25. The Horticulturalist

    ARCHIVED Atlanta Paed Gi?

    The Horticulturalist posted a topic in Doctors

    I Live in north Mississippi and am looking for a pediatric GI that has some experience diagnosing celiac. I found this group online and I wondered if any forum members had used them? Open Original Shared Link Thanks!
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