BoydBT

That's not bad at all. Yesterday while at work a co-worker brought in some cookies that she said were gluten-free. I had two and within an hour the storm was rolling in. Major body aches and backaches. I had to rush home just so I could get in bed and get my back on a heating pad. Thank God I have heated car seats. I was wiped out for about 4 hours. Amazingly enough, I didn't have any bathroom problems. Would have rather had the bathroom problem than the aching body problems.

Now I only get potty trouble. I guess we are all potty soldiers here. OMG I there I go, I can't even hold it back at times. I get those where I just make it to the potty. IT IS LIKE BOMB BLOW OUT! lol.

I do wonder who hooked me up to the air hose.

STOP IT! Boyd Mods need to start a potty forum.

I know I Am Cat could write a poem on these issues for all of us.

I am Cat is my best everything when we are getting along. I knew she had celiac disease, and bugged her enough to be tested. She came up positive.

It might not have been that little taste at all. Did you use any regular soy sauce? Did you eat their wasabi paste? Alot of brands of wasabi have wheat in them. Did you eat the eel? Alot of times eel has a soy sauce drizzeled over it.

I usually stick to sashimi and some steamed rice rather than eat the prepared pieces.

True. I sometime bring the gluten-free soy otherwise I avoid it. I did have a small amount of Wasabi. But now that I think of it at home I eat only gluten-free rice, both reg and sushi rice. I wonder if it was the rice as the spider roll does have rice I think. hmmm

I forget.

I actually do the Sashimi most of the time too, without any rice.

TY

I have been gluten-free for 9 months and still have to catch myself once in a while. Its just a habit to take one or eat the leftovers. My kids have threatened to stab me with a fork if I take a cracker from thier plate. (I think they sometimes secretly hope they will get the chance.)

Funny story. thanks

Hi. I was out last night to dinner with a new friend. I was explaining to her my celiac disease.

She had never heard of it. I was very careful ordering my Sushi dinner. I t was delicious as always. She ordered a spider roll, breaded soft shell crab. One of my old favorites.

At the very end of dinner she had one piece left over. It looked good and I completely forgot it contained breaded crab, I ate it without even thinking.

Today I barely made it to work, I had to go to the bathroom asap. I was thinking why.

Then remembered.....how easy it is to make a mistake. How could such a small amount be so nasty? How could I forget? I wonder now if it will take 72 hours to clear out.

Boyd

I became extremely adamant. So much I was very rude to someone I am in love with. During that time she found another lover. Once I was DX i tried so hard to get her to believe I was Glutted and had lost my mind. I wanted to die.

boyd

What about Bob's Red Mill Oatmeal?

Until you stop the lexapro do not drink, at all. You should also mention this to your doctor. With the effect that you are having you run the risk of losing it and hurting someone else or yourself.

Thanks

I don't get violent. I just am extremely rude. You are right and I am watching myself if I do have a drink.

The lexapro and the drinking do not make me that way.

But if gluten is in the mix there is a big mental change.

Good advice to just stop. I will be on lexapro forever.

I would try to get additional blood test for micronutrients and hormones. As a celiac the body does not get everything it needs. Also Sweats can be from other allergies you get after celiac. It was 5 years but now I'm off of all dairy too.lots of changes can happen so for me it was a matter of bugging the doc to give me as many tests as he could think of and then get the appropriate supplements.

good luck

ken

All this I never knew, thank God I joined this forum. The stupid Doctors have no time to really go into all this. But I too have night sweats , I get soaked.

It doesn't happen often now but yes but a few times a week. I must be more careful.

What does CC mean exactly. Crappy Celiac.

I am glad to have found out why, now.

I have a very bad reaction with this combination. Before I new I had celiac disease I really started to mentally lose it. Big time. I felt emotionless, suicidal and at time very

mean with those I loved. It was not me, people said my whole personality could change. I would become insane at times if I took my lexapro and had too much to drink and also had Rum. I just would snap out and tell my friends the worse things I think of, I just would not stop either. This did not happen often and I never understood, and still don't LOL.

Since I have been gluten-free I have no anxiety compared to when I was really sickened with G. This week I had a few rum and cokes, I thought rum was ok. That night I got a reaction. I call a good friend up and went off on her. She hung up in disbelief.

It is more than just getting drunk, it is way beyond that. It hits fast and hard.

I hardly remember in the morning. I do know that lexapro increases the effect of alcohol. And I can control that, but when G is mixed in the loop I get insane like.

Any one else have a similar story.

Boyd

I have had a rash now for over a month. Was initially just on my chest, then in the same place on the outside of each calf. Was treated with antifungal cream, then with Elemite and oral steroids. Rash was a tiny bit better until I went off steroids, then spread to upper legs, arms, upper buttocks/low back and upper back.

Mycosis Fungoides is a very rare skin cancer. I was dx about 18 months ago and I am doing well with a special cream my Dr scripted for me. I just got my celiac disease dx. Since there is a link with celiac disease and cancer I wonder if that is why I got it.

Make sure you get this ruled out!~!!! Sounds very close to just where I got bloches and leasions.

T cell lymphoma of the skin

T cell lymphoma of the skin is the most common type of primary cutaneous lymphoma or skin lymphoma. It is also sometimes called mycosis fungoides. It is a type of cancer that starts mostly or entirely in the skin. It occurs when the white blood cells that protect us from infections (called lymphocytes) start to grow uncontrollably within the skin. In the beginning it often looks similar to psoriasis or eczema, and then it gradually becomes thicker. The cause is not known. The condition has a variety of treatments, and can usually be controlled.

It effects the chest, back, lower stomach, upper legs and groin area. The local dermatologist had never seen it before. The biopsy was a surprise to all of us.

I went to Fox Chase Cancer center in Philly and saw a speciality who only treats skin cancers. After applying a series of creams it goes dormant. But does recur or flare up which requires to start up the skin cream.

Again none of the Dr. thought of a celiac disease blood test.

Boyd

Mycosis Fungoides is a very rare skin cancer. I was dx about 18 months ago and I am doing well with a special cream my Dr scripted for me. I just got my celiac disease dx. Since there is a link with celiac disease and cancer I wonder if that is why I got it.

T cell lymphoma of the skin

T cell lymphoma of the skin is the most common type of primary cutaneous lymphoma or skin lymphoma. It is also sometimes called mycosis fungoides. It is a type of cancer that starts mostly or entirely in the skin. It occurs when the white blood cells that protect us from infections (called lymphocytes) start to grow uncontrollably within the skin. In the beginning it often looks similar to psoriasis or eczema, and then it gradually becomes thicker. The cause is not known. The condition has a variety of treatments, and can usually be controlled.

It effects the chest, back, lower stomach, upper legs and groin area. The local dermatologist had never seen it before. The biopsy was a surprise to all of us.

I went to Fox Chase Cancer center in Philly and saw a speciality who only treats skin cancers. After applying a series of creams it goes dormant. But does recur or flare up which requires to start up the skin cream.

Again none of the Dr. thought of a celiac disease blood test.

Boyd

I just found out my Igg count is 37.

I never know what it was or anything until I saw it on here. LOL.

I did read it lasts 72 hours. Today is good. No runs.

TY

You may need to try a very strict diet where you're not eating processed foods. Also, some celiacs react to oats and casein as if they were gluten so stop eating oats, and consider removing dairy from your diet as well. I'm not diagnosed so no experience to share, but I generally feel better if I don't eat processed "gluten free" cookies, breads, and so forth as they all have a chance for minor CC.

What is CC?

I am just learning more every day about celiac disease. It is very amazing just how bad it can be. So now I am not being as careful and have been eating or drinking stuff I later find out has gluten.

I get diarrhea for days once I make a mistake. Is this normal? How long does it take to flush out.

And where does the gluten go when I eat it. Does it go into my blood stream?

Boyd