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CNV2855

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by CNV2855

  1. CNV2855
    I'm probably far more sensitive and to a lot more substances than your average poster here. I also have a sulphite intolerance in addition to being very sensitive to gluten, and I almost undoubtedly react to gluten free oats. Salicylates are also something I react to. The problem is that I do amazing on a diet consisting of potatoes and butter, with...
  2. CNV2855
    Heinz originally certified their original ketchup as gluten free and initially said their organic wasn't. I think that's changed and both versions are supposed to be gluten free. I tested three products this week with EZ gluten (down to 10ppm). Heinz original ketchup (not the organic) tested positive for gluten. I want to make clear that this bottle...
  3. CNV2855
    I'm having a real problem finding foods that I'm good with and I've always noticed that I've "felt" better when my diet is heavy in ENER-G breads. Everytime I stray and start adding other foods, especially other processed foods I get hit. Amy's, has always gotten me, and just recently I got glutened by a can of Van Camp's baked beans. Now that...
  4. CNV2855
    I get very little iodine in my diet. The rash flared from a can of Van Camp's Pork N Beans, the only processed food that I've eaten in weeks. With me, being glutened isn't about the GI symptoms - I have autoimmune symptoms that flare. I just tested the Van Camp's and it showed positive on my home testing kit. Awesome!
  5. CNV2855
    I just want to get confirmation. This is what my dermatologist STRONGLY believes is DH although all biopsies have been inconclusive. It flares when I eat gluten, becomes itchy, but hasn't disappeared in 4-5 years of being gluten free. This morning I woke up feeling like I got hit by a mack truck, some really, really bad pain. Later on, this rash started...
  6. CNV2855
    Apparently, acetimetophen is a salicylate free so I have no clue what is going on...
  7. CNV2855
    I have noticed that my face/neck start swelling up whenever I take acetemetophin painkillers or eat lots of tomatoes and other types of food. I had a dinner with a ton of spaghetti sauce the other night and I swelled up worse than I have in a long time, voice became hoarse, just was really out of it! It happens when I take painkillers as well. There...
  8. CNV2855
    I've been gluten free for roughly 4-5 years and my GI/endoscopy/blood results have all normalized but my DH rash is still there. I'm not positive it's DH but my dermatologist strongly believes it is; it's been biopsied but always inconclusive. She says I have to be eating gluten for the DH markers to show up on biopsy, so it's normal for the results to...
  9. CNV2855
    I'm almost 120% positive that I have sero-negative primary sjogren's syndrome so that could cause the inflammation. I feel so much better on prednisone but I can't take it long-term...
  10. CNV2855
    Ok the biopsy results were not completely normal. I don't know what any of it means because there isn't a plain english explanation but hopefully one of you guys can help me decipher this. A. The duodenal biopsies consist of small bowel mucosa having overall preservation of normal villous architecture. No villous blunting, villous atrophy, increased...
  11. CNV2855
    I am not the demographic that usually suffers from autoimmune disease. I was an otherwise healthy 17 year old one day, and very, very sick the next... almost completely out of the blue. I'm still fairly healthy considering what I've been through, but you don't see many young males get hit with autoimmunity like that. I have all of the symptoms of primary...
  12. CNV2855
    My biopsy results were "completely normal". I have been gluten free for four years and incredibly strict in the last few months, but I'd have expected at least partial damage. I have extremely adverse reactions when I get glutened, very bad GI problems, and a DH rash on my back that flares... but I can't believe everything is normal. I wasn't expecting...
  13. CNV2855
    The gastroenterologist I spoke to seemed very knowledgable and I asked about HBT for SIBO and he said that they no longer do the test because of a shortage in the reagents required for it... but that he'd definitely trial me with the antibiotics after the results of the biopsy come back. I probably don't have anything to worry about and I'm probably overreacting...
  14. CNV2855
    I have widened my diet but I had to because I was losing weight extremely fast on the GAPS diet. I just haven't felt well in the last few weeks/months. The only good thing I can say is that the acute pain seems to move around a lot, and if it was cancer I think it'd be stationary although I don't know. I guess I just need to wait for the histology results...
  15. CNV2855
    I was admitted to Methodist in Houston after experiencing abdominal pains, weight loss, loss of appetite, nausea, and diarrhea. I'm absolutely certain it's not gluten related because the DH rash on my back has been steadily disappearing as I've been more careful with my diet now than I've ever been. They gave me a CT scan with contrast and an MRI and...
  16. CNV2855
    Well my esophinils were only slightly elevated, I think at 7 and the normal parameter is 0-5. And they've come back down. I really, really think this is a possibility and I've seen it before, but I noticed how rare it is and sort of disregard it. Honestly though, it sounds a lot like what I'm going through. Open Original Shared Link Open Original...
  17. CNV2855
    Thank you SO much for this post. With me, I have days where I don't feel like I'm going to survive (not normal for a 25 year old male in otherwise good condition), and other days where I feel like I can run a marathon. I've known for a long time it was food, but since everything I was eating was causing this reaction I really couldn't get well for long...
  18. CNV2855
    Almost definitely have a problem with dairy, and I haven't eaten eggs in about a year. I might try them... And I'm not sure about beans.
  19. CNV2855
    Open Original Shared Link I'm almost exactly like the lady mentioned in this journal, who was suffering from shock and cyanosis from certain proteins. I had a trip to the ER a few days ago after eating a couple of bananas, and I really didn't think I'd make it. My skin was turning purple and I couldn't breath. Anyway, I'm KNOW I'm allergic to seafood...
  20. CNV2855
    I'm starting to think it was an anaphylactic reaction to either the bananas or the vinegar. I've felt like this before, especially with seafood, where I seem to lose blood pressure, become super weak, super confused, and incredibly lethargic. I've been eating bananas over the last couple of weeks as my primary carbohydrate source and I've felt pretty bad...
  21. CNV2855
    Yeah, I've been taking probiotics. Can't eat anything with seafood as I'm allergic to it, but I have been getting a good amount of olive oil. I just started feeling incredibly weak, almost like the life was fading out of me. I really can't explain it, it was a horrible feeling but I seem to be doing better right now. I've always been the kind...
  22. CNV2855
    My blood sugar is fine, albeit it's a little less responsive than I'd like. It goes up to about 160-180 after eating and then drops back down to the 90-105 range after about 3 hours. I ate lots of potatoes and I feel my strength returning fairly quickly. I don't think I am able to digest fats and proteins well or something. I just don't think I was...
  23. CNV2855
    I'm extremely scared right now and I need some advice. I responded to the gluten-free diet at first, then sort of relapsed, and really hunkered down and tried to get things under control. I ended up adopting the GAPS diet and I've been on it for quite a while, but I started losing a ton of weight. Went from almost 180 to 145 in a couple months, even though...
  24. CNV2855
    I'm sorry you got this impression of me. I do not want to eat processed foods again and I've accepted the fact that I won't ever be able to. My plan is to use the steroids for a limited time (2 months) to give my body respite and also give me a "head start" with healing. Even on my good diet, I'd imagine that it would take a good bit of time to normalize...
  25. CNV2855
    I would like to preface this post with me saying that this will be the last long winded post I make, as I know I'm not the only sick person here, and that I'm actively seeking a specialist, and doing my very best to see someone who can help me. The waiting list for most of the specialist centers is around 3-6 months, so I may be waiting. My entire family...
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