
CNV2855
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by CNV2855
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ARCHIVED High Fructose Corn Syrup & Corn Byproducts
CNV2855 replied to CNV2855's topic in Super Sensitive People
If corn caused a reaction in celiac patients enough to cause a DH flare, wouldn't we know about it? Is there really that little research being done about this disease? There's almost no information out there regarding adverse reactions to corn or a corn enteropathy. I'm having an endoscopy done tom. and I'm interested in the results for sure. I don... -
ARCHIVED High Fructose Corn Syrup & Corn Byproducts
CNV2855 replied to CNV2855's topic in Super Sensitive People
I've had a reaction almost every single time I've tried corn chips. Tried diff. brands, same thing. I've reacted to potato chips too... so I figured it was just CC at factory. Fritos aren't exactly CC safe. What's weird though is if it was CC, then why doesn't rice give me the same problems? Rice is one of my safest foods... I feel fine when... -
ARCHIVED High Fructose Corn Syrup & Corn Byproducts
CNV2855 replied to CNV2855's topic in Super Sensitive People
This is what I reacted to: http://springsbargains.com/wp-content/uploads/2011/05/bobs-red-mill-cornbread-mix.png Says gluten free on the bag. Are you feeling much improved or just slightly better, now that you've removed corn? -
ARCHIVED High Fructose Corn Syrup & Corn Byproducts
CNV2855 replied to CNV2855's topic in Super Sensitive People
How have you been doing since you completely removed corn from your diet? I noticed in your signature that you have a lot more foods cut out than just corn, have you been able to reintroduce those foods since you cut out corn? Ravenwood, the corn flour is Bob's Red Mill. Someone said there are two kinds, one kind that says "gluten free" and one that... -
ARCHIVED High Fructose Corn Syrup & Corn Byproducts
CNV2855 replied to CNV2855's topic in Super Sensitive People
No but I've been dairy free for about 2-3 months. I'd hate to call this a sensitivity. I'm allergic to fish, nuts, eggs, and other proteins but my reaction to those foods is very, very different. When I'm glutened I have a very specific and harsh reaction. This reaction I had to the corn bread was identical to my gluten reaction but less severe... -
ARCHIVED High Fructose Corn Syrup & Corn Byproducts
CNV2855 posted a topic in Super Sensitive People
I've been gluten free for over four years and I haven't had a complete resolution of my symptoms during that time. I've had moderate improvement but I'm still symptomatic. I do seem to have completely resolution of my symptoms when I completely fast, a clue that I'm eating something I'm not supposed to. My glutening symptoms are worse than many and I get... -
ARCHIVED Did I Get Glutened Or...?
CNV2855 replied to CNV2855's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Yeah, but what guarantees are there than generic corn byproducts like "HFCS" aren't also produced in a facility with wheat? -
ARCHIVED Did I Get Glutened Or...?
CNV2855 replied to CNV2855's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Well I'd rather discover what's making me ill, than stay ill. If I'm sensitive enough to react to CC in corn, assuming that's the problem, is HFCS an ingredient I can count on being gluten free or not? If I react to corn CC, I'd assume that I'd have very, very minor reactions to HFCS and other corn byproducts, right? -
ARCHIVED Did I Get Glutened Or...?
CNV2855 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
A couple months ago, I made some cornbread, which isn't something I usually eat, and roughly around that time I started feeling poorly. I really wasn't sure what was going on because I didn't notice any GI symptoms so I figured it was just an autoimmune flare. It took me a week to eat the cornbread and I stayed sick for about a week and then over the next... -
ARCHIVED Stomach Acid Deficiency - Is This Possible?
CNV2855 posted a topic in Coping with Celiac Disease
So there's a weird phenomena that I go through that neither me or my doctors can explain. It's a shortlived cycle that lasts for a few hours after daytime meals, that usually happens after being glutened. It will continue to happen for 2-4 weeks or even months but eventually subsides the better I follow the diet. Basically, roughly 30 minutes after eating... -
I have problems with rice and soy as well. I really think there's something else at work. Refractory Celiac scares me but the gastroinestinal symptoms mostly disappear when I avoid gluten.
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I seem to have a problem that I haven't seen discussed much but is probably a complication of years and years of untreated Celiac disease, even though I've been on the diet recently for a couple years. I react to protein almost as if my body can't digest it. Gluten is bad and causes the worst reaction but I seem to have some sort of reaction to just about...
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ARCHIVED I'm *finally* Seeing Progress
CNV2855 replied to julandjo's topic in Food Intolerance & Leaky Gut
What are those safe foods? I, like you, have reactions to everything. Fish, tree nuts, coconuts, pork, grain, etc. I'm 25 years old and I'm doing everything I can to get better... but right now my diet is meat+fruits+vegetables but it's very heavy in nightshades - we're using tomatoes on EVERYTHING. I've felt particularly bad these last few days... -
ARCHIVED Has Anyone Achieved Remission Of A Secondary Ai Disease By Treating celiac disease?
CNV2855 posted a topic in Related Issues & Disorders
I have secondary Sjogren's to Celiac and it's ruining my life, and I'm only 25. I've been gluten-free for the last four years but I've been particularly bad about cross contamination and I just recently removed several food allergies that I know were bothering me. Has anyone here had remission of a secondary autoimmune disease such as Scleroderma, Sjogrens... -
ARCHIVED I'm *finally* Seeing Progress
CNV2855 replied to julandjo's topic in Food Intolerance & Leaky Gut
Julando, may I ask what your symptoms are/were before you started this diet? I seem to have Sjogren's that just won't go away, I'm hopeful that if I'm very faithful one day it'll disappear but idk. -
ARCHIVED I'm Worried That I May Have Pituitary/adrenal Involvement.
CNV2855 replied to CNV2855's topic in Coping with Celiac Disease
I just wanted to say that I went out and actually bought some supplements, something that I've resisted doing over the last four years that I've been diagnosed. I think I bought Acetyl-L-Carnitine, based on the study that showed that even healed Celiacs have extremely low levels of it and in a double placebo controlled trial showed great results in alleviating... -
ARCHIVED I'm Worried That I May Have Pituitary/adrenal Involvement.
CNV2855 posted a topic in Coping with Celiac Disease
Retracted, thanks for the advice everyone . -
ARCHIVED Fast Food & Processed Foods Aren't Safe.
CNV2855 replied to CNV2855's topic in Coping with Celiac Disease
This is a shot in the dark but you don't live in SW Louisiana do you? -
ARCHIVED Fast Food & Processed Foods Aren't Safe.
CNV2855 replied to CNV2855's topic in Coping with Celiac Disease
Glad to help. I made a dedicated topic regarding the fryers just to get some awareness going because I've yet to see it mentioned. Anyway this thread was just a rant because I the last two weeks were absolutely miserable for me. All because I ate a "gluten free" sandwich. Just had to get this off my chest. It also seems like my sensitivity keeps... -
ARCHIVED There's No Such Thing As A "dedicated Fryer"!
CNV2855 posted a topic in Gluten-Free Restaurants
There's no such thing as a dedicated fryer when it comes to avoiding cross contamination. My family owns a restaurant, or rather a chain of restaurants, and I had eaten there several times post diagnosis and suffered reactions. The foods were fried with a batter consisting of nothing but corn flour, seasoning (salt, red/black pepper, garlic), pure peanut... -
ARCHIVED Fast Food & Processed Foods Aren't Safe.
CNV2855 replied to CNV2855's topic in Coping with Celiac Disease
I base my reactions to gluten on a rash. While I may be allergic to corn and soy, nothing but gluten causes the DH-like rash (never been confirmed DH but I'm almost positive that's what it is). It's the first symptom and the most reliable that I've been glutened and I've never gotten it from dairy/corn/soy, etc. After the rash comes, almost exactly... -
ARCHIVED Fast Food & Processed Foods Aren't Safe.
CNV2855 replied to CNV2855's topic in Coping with Celiac Disease
Poppi did you read Fasano's new study? Even people who were on a gluten free diet for over two years still had over 30x the intestinal permeability that the healthy controls had. You may not be symptomatic from your exposure but there's a good chance that the minute amount that we do get, and we do get it, is causing a lot of what people around here report... -
ARCHIVED Fast Food & Processed Foods Aren't Safe.
CNV2855 replied to CNV2855's topic in Coping with Celiac Disease
It's not consistent but usually when I eat out one time, I think it's safe to do it again and again. Within a week, I'm usually glutened. Potato chips, such as Lay's, are definitely contaminated and while I don't react to every bag it's the same thing as eating out, as it's just a matter of time. My family owns a restaurant and they cook quite a bit... -
I've been biopsied twice for DH because the rash is the first, and most reliable indicator, that I've been exposed. Diarrhea can be caused by illnesses, etc. but the rash only appears when I'm glutened and covers my back/chest and now has apparently spread to my elbows. I've gone in twice and both times they said, "oh this is nothing but folliculitis...
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ARCHIVED Can We Sue The Makers Of Rice Dream?
CNV2855 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I bought some of this milk after I noticed it was labeled gluten free at the local health food store. I drank it and had the same tell-tell reaction that I always have when glutened. Rash>Diarrhea>Systemic Autoimmune Flare. Considering I usually always make my own food, there's nothing else it could've been and it was a fairly bad reaction (I drank...