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DianeByrd

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by DianeByrd

  1. Oops! I clicked add reply before typing! Thanks for the advice. We tend to use the term allergry, but that leads to the inevitable question of what happens when you eat it? That's where the awkwardness arises; his symptoms tend to be emotional. What teen wants to say that? And he doesn't even believe that he has an allergy, since we've only tested...
  2. My 14yo ds is gluten, milk, and soy free (and free of artificial colors, flavors, preservatives). He and his two younger siblings are home schooled, so managing his diet is fairly simple. Our home is free of all those foods. The difficulty arises when there are special events - parties, invitations to spend the night at a friend's, weekend retreats. We...
  3. I found a great recipe for quinoa flakes Open Original Shared Link My kids love it. Now the problem is buying the flakes at a decent price. Does anyone have any suggestions for one online store that is generally least expensive? I though I had found a bargain price, but then the shipping still made it about $7 per 12 oz box of Ancient Harvest Quinoa...
  4. It's been awhile since I've posted. We've been trudging along on a gluten, milk, and soy free diet for a couple years now. I've honestly lost track of time. It's been a tough road at times - the high cost of food, the time involved in cooking from scratch, always packing food when we go somewhere, wondering if my family is getting enough of the right nutrients...
  5. I'm not certain what is available up in Canada. Pacific rice milk is what we were using previously. Perhaps there is a health food store brand. We have a couple down here; Trader Joe's and Wild Oats both sell their own label of rice milk. It is good to know that you haven't reacted. I don't know how careful I need to be with my girls. I guess, as long...
  6. I've been gluten free now for most of the last year and a half because of my two little girls' failure-to-thrive. At one point I thought I noticed a diminishing of my geographic tongue and the little, non-itchy bumps on the backs of my arms and my legs. I also seemed to be putting on a few much-appreciated pounds. That seems to have all disappeared. I...
  7. I just went to their website and read the following quote of their FAQ: "Is Rice Dream Beverage a gluten free product? No. Rice Dream Beverage is processed using a barley enzyme. Even though the barley enzyme is discarded after use, the final beverage might contain a minute residual amount (less than .002%) of barley protein. For a list of gluten...
  8. I'm always grateful for new recipes! I have a taco seasoning recipe that the family likes, but it may be too spicy for her. What is your chili powder substitute? What percent fat is the ground beef you use? I've always wondered if the fat cooks off anyway. What does covering the chicken do? I've usually only roasted whole chickens uncovered...
  9. Hi everyone! I'm looking for ideas of foods to feed my 19mo daughter who is "failing-to-thrive" (ftt) and the rest of the family who will have to eat along with her. We're already on a gluten-free diet because our older daughter was ftt. We just recently received results back from Enterolab indicating an intolerance to milk and soy, and we haven't yet...
  10. How about Manischewitz macaroon cookies? Their website lists foods that are free of a given allergen. If the package also says "pareve", it's dairy free also. I'm not sure why they don't just give a list of all their items that are milk free. Open Original Shared Link Cappaccino Chip Macaroons Chocolate Chip Macaroons Chocolate Chunk Cherry Macaroons...
  11. I so agree with all the posts that this lawsuit is very bad for the celiac community. It's hard enough to get a company (restaurant or food manufacturer) to say that a product is safe to eat. Even companies that sell specialty gluten-free foods and ingredients have warning labels! How can we ever be certain if what we've eaten is gluten-free if our symptoms...
  12. This is a great question! I've been wondering the same thing. I don't see an answer to the question, though. Has anyone replied? Even if there isn't any documentation, I'd love to know what others say to people who question them about avoiding even the smallest contamination. Our family has been gluten-free since January 26th, except for a couple...
  13. My son and I have had the bumps our entire lives. Mine seem to be disappearing after 2 weeks gluten-free but now for the first time ever they are itching. Could this mean I'm getting glutened? How quickly would the bumps return after being glutened?
  14. Our family has been gluten-free for thirteen days, except for an accident four days ago (malt in the chicken broth we used for homemade soup). Our 2 1/2 year old daughter is the only one who has been tested through Enterolab. Her results indicated that she not only had antibodies for gluten but also for casein. Can I hope to see improvement without eliminating...
  15. Thanks for all the helpful info!
  16. We're going gluten-free starting Thursday for a trial period of 6 weeks. Do we have to change personal care products to be truly gluten-free? My son and I have had bumps on the backs of our arms and legs all our lives. I onced asked an expert in the celiac community and she didn't think it sounded like dh. We're primarily going gluten-free for our 2 ...
  17. Our family is about to go on a gluten-free trial for 6 weeks because of our 2 1/2 year old (Enterolab results are positive and previous gluten-free trial a year ago was successful). I suspect that my husband, 9 year old son, and myself may all have a gluten intolerance. My question is what to do with my 8 month old daughter who is breastfed and has only...
  18. I've been reading this board periodically for the past year, wondering the entire time whether our now two- and-a-half-year-old daughter has gluten intollerance. We're in the last stretch, hopefully, of coming to a definitive conclusion. We finally turned to Enterolab after the pediatric gastroenterologist exhausted her efforts at getting to the bottom...
  19. Wow! Can you give me any tips on getting my HMO to pay? I have Blue Cross and the medial group has denied the request to pay, so I'm appealing to the insurance company directly. With Blue Cross HMO, the medical group is responsible for paying for labwork. I haven't yet ordered the tests, hoping to first get approval. Diane
  20. DianeByrd

    ARCHIVED Wary...

    Has anyone ever heard of someone getting negative test results from Dr. Fine? It seems to me that everyone I've read about already believed they had celiac disease or some form of gluten sensitivity and that Dr. Fine simply confirmed it. I'd love to know what percentage of patients he tests have positive results. I'm asking because I've put off the test...
  21. If she's not being paid off by the wheat industry, she at least has a prejudice against parents who would consider a gluten-free diet without "an objective diagnosis". Thanks for the link. I love quinoa! I've printed it out for the doctor.
  22. RE: Question 1 She was on the gluten-free from mid-January till the end of February. She has been on a gluten-free challenge ever since. The endoscopy was performed September 2nd. RE: Question 2 The test was done by Prometheus and only mentions HLA-DQ2 / HLA-DQ8. I appreciate the tip. I'll ask about HLA-DQ1. Is Entero Lab the only one that...
  23. In brief, has anyone else had sores in the esophagus and small bowel show up in the endoscopy? Are these potential signs of celiac disease/gluten intollerance as opposed to reflux? For more details, read on. Otherwise, I'd just love to know I'm not crazy to think that my doctor may be wrong. I've been reading this site for months. We just had an endoscopy...
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