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snoopylian

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by snoopylian

  1. snoopylian
    I am planning on traveling this summer to PR. I haven't yet determined the exact town/city-- much of that will be determined on the availability of gluten-free "supplies". Has anyone traveled to PR? Any suggestions would be appreciated. Thanks.
  2. snoopylian
    Oh, Penn Yan is just north of where I'm staying at in Lakemont off of Route 14 as well (I think) lol. I'm definately interested in the hamburger/sandwich rolls. I don't know how to do a pm, so I'll let you pm me. Thanks.
  3. snoopylian
    Relax. Breathe. Knowing that you have celiac disease at this stage is fantastic. There is so much that can be avoided. Your body will be healthier than ever since you now have this knowledge. Join a local support group, some groups have sponsors to help newly diagnosed people (do a search on the net like "gluten free support group dallas"). Get a...
  4. snoopylian
    Traveling to Lakemont NY (Seneca Lake, Watkins Glen area). I use to just pack our food, but now we have to pay for luggage too!! I was hoping someone could tell me where to buy gluten-free food in that area, and hopefully someone knows if they have Green's gluten-free beer also. Thanks a bunch!
  5. snoopylian
    Any infor on eating & shopping gluten-free in Corpus Christi, TX would be greatly appreciated. I know about Chilis & Outback. Thanks
  6. snoopylian
    Hubby finally going gluten-free !!! He travels to downtown Houston, TX often and we need some help w/places to eat. This is what I have thus far: www.chickfila.com, Taco Cabana, Outback Steakhouse, Carrabbas, PF Chang's, Pei Wei, Flemings Steakhouse, McDonalds, Wendy's, First Watch, Chipotle, Jack in the Box, Denny's will bring out a list...
  7. snoopylian
    My sons (ages 5 & 3 1/2) have celiac disease, they each have a celiac gene (from dad) and a wheat sensitivity gene (from me). They've had all kinds of symptoms which have cleared up since being gluten-free, but no biopsy. Hubby has had a difficult time accepting all of this (approx 2 1/2 yrs since initial diagnosis). Well, he's (hubby) finally...
  8. snoopylian
    There is a connection - a Dr. Jekle Mr. Hyde connection with my son. Malabsorbtion of nutrients = all kinds of problems, including behavioral. The behavioral problems use to go away about two weeks after the accidental glutenization until recently. I have a great book - Superimmunity for kids by Leo Galland, MD, starting on p 83 talks about behavioral...
  9. snoopylian
    Thanks so much!!
  10. snoopylian
    I will be going to Cumming, Georgia in July and would like to know where to get my gluten-free food and other things like rice milk. I usually shop at Whole Foods but there isn't one in that area. My sister wasn't much help in finding a health food store there. So I am turning to you guys. Thanks.
  11. snoopylian
    Leslie, Does that mean you have two genes predisposing you to gluten sensitivity - like say 0501 and 1301 for example? and what does that exactly mean? Talk to me like I'm stupid Thank you very much.
  12. snoopylian
    my son was gluten-free for four months then went back on gluten for three months (awful!!) and still showed negative blood work. (
  13. snoopylian
    You have the same genes I have - mine are - HLA-DQB1*0501, 0301 - ) maybe we're sisters. lol Anyway, I / we have two genes predisposing us to gluten sensitivity. (I know this because when I got my results I emailed them back and confirmed that interpretation). The difference between celiac and gluten sensitivity is that celiac is confirmed damage...
  14. snoopylian
    Here is a first for this thread - I am Hispanic. Mostly Spaniard w/a little Puerto Rican. I have two gluten sensitivity genes. From what I've read not much difference between gluten intolerance/ sensitivity/ celiac.
  15. snoopylian

    ARCHIVED Looking For Derm In Dallas

    snoopylian posted a topic in Doctors

    Has anybody been to a good derm in dallas who knows about DH? Thanks. Dallas, Texas -- sorry Thanks
  16. snoopylian
    Does anyone have a recommendation for a dermatologist, who has experience in DH - in Dallas, TX? Thanks.
  17. snoopylian
    I'm sorry, I forgot to answer the main question re: bread. I've eaten a piece of gluten-free bread made in a 2lb bread mahine, that was soft. It was the best gluten-free bread I've tried. The mix was by gluten free pantry. The person who made it said that the key is to put all your liquid ingredients in first, then the mix on top, then the yeast, and...
  18. snoopylian
    Since the intestines begin healing as soon as you go gluten-free then you can not have an accurate biopsy. Therefore, you may not get a diagnosis of celiac. That is what happened to my son. Although I know he is celiac I can not prove it and I am not willing to go back on a gluten diet. We already did that for three months and it was hell and he still...
  19. snoopylian

    ARCHIVED Itch

    snoopylian replied to njferrero's topic in Dermatitis Herpetiformis

    I used all of those for my son as well as 8 different prescriptions for eczema and none of them helped. I believe he has DH. There is also a DH online website that may be useful to you: Open Original Shared Link I know that there are prescription meds for DH but I don't know any of their names. I try and control my sons through diet (no dairy, eggs...
  20. snoopylian
    I did a search on dogpile.com (select images first) for DH and it shows all kinds of pics of DH. Apparently there are many forms of DH. There is also a DH online website that may be useful to you: Open Original Shared Link I know that there are prescription meds for DH but I don't know any of there names. I try and control my sons through diet (no...
  21. snoopylian
    ...and I read several places that vitamin E can sometimes contain gluten.
  22. snoopylian
    My son is three and his behavior is dramatically different too. It's like Dr. Jeckle and Mr. Hyde (sp?). Pretty amazing. Anyway, anything she comes in contact with, if it has gluten, can cause her problems. I was at his "school" once and saw cracker crumbs left on the table, floor and chairs. My husband has eaten bread in the living room and...
  23. snoopylian
    Yes, I believe the dairy is causing the problem. The enzyme for digesting lactose is formed on the tip of the villi in your intestine. Since celiacs villi are atrophy, damaged, blunted, etc. they lack the enzyme. From what others have told me and what I've read, there is a strong possibility this can rectify itself in time - the longest I've heard so...
  24. snoopylian
    Ok, Last week I saw a post (that now I can't find) where someone said they make their own soap and it is great for their skin. So, can someone tell me if they make it and how to make it....and how hard is it, etc.... ) THANKS!!!
  25. snoopylian
    Does anyone have the gluten-free playdoh recipe?
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