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jessicajane

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  1. jessicajane

    ARCHIVED Celiac Doctors

    Here's the link to the Celiac Center at Columbia Presbyterian where Dr. Green is Director. There's some good info there. The Pocket Guide (see Online Store tab) is really helpful, especially if you're a 'newbie' Open Original Shared Link I think Dr. Green can actually be called a celiac doctor if anyone can!
  2. Have to admit I've been a little resentful about having to expend so much effort to feel normal, but it's getting easier and I'm feeling so much better. I like to be a little "unconscious" at times, and this is forcing me to pay attention and make changes...not at all a bad thing. I've learned so much here; can't imagine how I would have coped without...
  3. celiac3270 - I've heard of Dr. Green and am going to try to get an appointment. Also Dr. Suzi Lee at Columbia-Pres. I feel I need to rule out celiac disease or embrace it completely! But thanks for making the point that either condition requires the same response - looks like I'm going to be embracing the gluten-free diet no matter what. You are...
  4. This is completely fascinating because I am in the process of trying to get a medical diagnosis...I know I feel better on a near-gluten-free diet, and I'll continue to eat this way regardless of whether I have an official diagnosis. However, if I have celiac disease, I know that 100% dietary compliance is critical because of all the damage to the small intestine...
  5. Thanks so much to both of you for the encouragement and good information. One more question: is it accurate to say that if you are gluten sensitive or intolerant, you have celiac disease? or are there gluten-related conditions other than celiac disease? I am hoping to be able to figure out what exactly is wrong with me so that I can do the right thing...
  6. That's an amazing menu...no deprivation whatsoever! You are so lucky to have such a supportive daughter! I am just starting on this journey and feel optimistic about the future. There's a lot to learn, but it will be so worth the effort. All best birthday wishes from a fellow-Pisces (3/1) JJ negative blood test 2/25/05 close-to-gluten-free...
  7. So happy to find this thread...for me, it's actually been a big relief to learn the effect gluten has on me, even if the bloodwork came back negative. Why not avoid the substance that makes me sick?! It's a virtual cure. Like alcoholism, you're safe if you avoid the substance. Feeling nearly normal for the first time in years is giving me the impetus...
  8. I was so sure that celiac was the right diagnosis that I started a close-to-gluten-free diet while waiting for the blood test results...which were negative. Still, the improvement in my many symptoms was dramatic. In less than 1 week. 1. Is there any compelling reason to have an absolute medical diagnosis? 2. Is it critical to be 100% gluten-free compliant...
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